“It’s their way of protecting them”: Between care and control in an honor context for youths with intellectual disabilities

Abstract

Today’s multicultural society is characterized by contradictory sexual norms that may have consequences for youths with intellectual disabilities’ possibilities of choosing a partner and expressing their sexuality. However, the body of knowledge concerning the area of youths with intellectual disabilities is limited. This study aims to examine professionals’ views on honor-related experiences among youths with intellectual disabilities. The data consists of nine qualitative interviews with professionals in special schools (personal assistants and teachers). In addition, 11 professionals were included at pre-meetings while designing the study. A thematic analysis was conducted while using sexual script as a theoretical framework. The results are presented in the following themes: (1) The professionals’ perceptions of the young people’s abilities to deal with honor-related experiences; (2) The professionals’ opinions of the existence of honor-related experiences among youth with intellectual disabilities; and (3) Descriptions of the professionals’ conduct toward the youths with intellectual disabilities concerning honor-related experiences. The analysis shows an honor script geared towards youths with intellectual disabilities, which can be described as a continuum between care and control connected to cultural sexual norms and to the disability. The families’ strive for a so-called normality seem to be an important factor in understanding for example arranged marriages among youths with ID. To meet the needs of these youths, the professionals require tools to navigate between care and control in this complicated arena of contradictory sexual and cultural norms.

Adolescent Sexual Development: A Family Perspective

“…It may be difficult for them to oppose their families or be aware of alternatives not offered by their parents. Adolescents with disabilities that put them in a dependent situation with their families may also find it more difficult to identify as non-heteronormative, to an extent partially influenced by cultural background (Löfgren-Mårtenson & Ouis, 2018).…”

‘We need “culture-bridges”: professionals’ experiences of sex education for pupils with intellectual disabilities in a multicultural society

“…In addition, having a child with a disability is often perceived as shameful in many cultures (Östman 2008). Therefore, an arranged marriage is sometimes viewed as an opportunity for the young person with a disability to have an 'ordinary life' with a spouse and children instead of living in isolation (Löfgren-Mårtenson and Ouis 2018). Not the least, it can also be a way of securing an economic and social future.…”

“…Löfgren-Mårtenson and Ouis (2018) argue that young people with intellectual disability growing up with a cultural background other than that which is typical of Swedish society may undergo a 'complicated tug of war' between contradictory cultural norms connected to sexuality and disability. Because of life-long dependency, it is difficult for young people with intellectual disability to oppose the values and wishes of parents and school staff concerning how they should express their sexuality and/or choose a partner (Löfgren-Mårtenson 2012;Löfgren-Mårtenson and Ouis 2018;TRIS 2012).…”

“…Because of life-long dependency, it is difficult for young people with intellectual disability to oppose the values and wishes of parents and school staff concerning how they should express their sexuality and/or choose a partner (Löfgren-Mårtenson 2012;Löfgren-Mårtenson and Ouis 2018;TRIS 2012). In addition, having a child with a disability is often perceived as shameful in many cultures (Östman 2008).…”