It’s Complicated: Negotiating Between Traditional Research and Community-Based Participatory Research in a Translational Study

Abstract

The model presented by the ISF is difficult to achieve, but we offer concrete solutions to community members and scientists to move toward that ideal.

It’s time for a change!: The appreciative inquiry/bootcamp translation to address disparities in the Latino community with autism spectrum disorders.

“…While CBPR is an important and useful engagement approach to overcoming health disparities with numerous successful examples (e.g., Holliday, Wynne, Katz, Ford, & Barbosa-Leiker, 2018), these partnerships sometimes can be difficult to implement (Hopkins et al, 2016), especially if there is not a clear method to facilitate the partnership. Without a robust method, it can be all too easy for partnerships to focus on the topics or programs championed by experts rather than focus on pre-existing solutions developed by the community.…”

“…Without a robust method, it can be all too easy for partnerships to focus on the topics or programs championed by experts rather than focus on pre-existing solutions developed by the community. For example, some partnerships focus on translating existing health information into terms that are perceived to be more culturally appropriate (e.g., Hopkins et al, 2016), or adapting existing programs for this community (e.g., Fawcett, Collie-Akers, Schultz, & Cupertino, 2013). These may be completely valid programs and lead to positive change within the community, however, they also tend to assume that existing programs will reduce disparities if they are adapted or translated appropriately.…”

Active involved community partnerships: co-creating implementation infrastructure for getting to and sustaining social impact

“…Many researchers already recognize the contributions of CBPR and other partnership strategies at various stages of the research process (i.e., to strengthening the relevance of research questions, increasing acceptability of data collection tools, designing relevant interventions, and improving data interpretation). In contrast to the application of community partnering and engagement approaches as instrumental strategies for individual research project goals and outcomes [32,[50][51][52][53], system-based participatory research in implementation would engage community and tribal partners with agency workers and operational and administrative leaders of organizations in capacity building and organizational change [54,55]. This more deliberate integration of community engagement and partnership capacities into such system-based approaches to implementation may be key in moving from intervention Bdelivery systems^to host organizations for sustainable change.…”