It is not just about sex: viewpoints of men with inflammatory arthritis on the overall impact of the disease on their sexual health

Perez-Garcia, L. F.; Röder, Esther; Pastoor, Hester; Bolt, Johanna M.; Exel, Job van; Dolhain, Radboud J E M

doi:10.1136/rmdopen-2021-001821

Cited by 7 publications

(2 citation statements)

References 32 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…However, sex and erectile dysfunction are not currently addressed in professional guidelines for managing SSc. These findings support research in men with inflammatory arthritis, suggesting an emotional, mental, and social impact beyond the physical act of sex [ 20 ]. Some scleroderma charity websites provide basic information about sex and advise patients to speak to their general practitioner [ 21 ].…”

Section: Discussionsupporting

confidence: 86%

‘I turned in my man card’: a qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis

et al. 2022

View full text Add to dashboard Cite

Objectives Men with Systemic Sclerosis (SSc) have a more severe clinical phenotype and reduced survival compared to women. No previous psychosocial studies have focused solely on men with SSc. This study aimed to explore experiences, coping strategies, and support preferences of men with SSc. Methods An international qualitative research study comprising seven focus groups (3 USA, 4 UK) of 25 men with SSc. Transcripts were analysed using reflexive thematic analysis. Results Three overarching themes and one underpinning theme were identified. In “impact of SSc on masculinity,” the men described an “impact on roles and activities,” reported “sex, intimacy, and erectile dysfunction” as a salient issue that may be overlooked by clinicians, and experienced challenges to “masculine self-image”. “Dealing with SSc” meant “always being prepared”, “becoming an expert”, and “balancing priorities” in responsibilities, activities, and symptom management. In “support for living with SSc” men were selective in “(Not) talking about SSc”, would “(reluctantly) accept help”, and described “preferences for support”. Underpinning these experiences was “facing an uncertain future” with some participants preferring not to focus on an unpredictable future, and others worrying about disease progression. Conclusion These novel data suggest SSc impacts male patients’ masculine identity and roles, and although they will accept practical help, they may mask the full emotional impact. Sex and intimacy are important overlooked issues with erectile dysfunction often not discussed at diagnosis. Further research should develop a self-management intervention for men with rheumatic diseases with a combination of disease specific and common core components.

show abstract

Section: Discussionsupporting

confidence: 86%

‘I turned in my man card’: a qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis

et al. 2022

View full text Add to dashboard Cite

show abstract

“…Due to the higher incidence of RA in women compared to men, most studies have focused on female patients (26). Consequently, information regarding PNRS and SNRS in male patients is limited and inconsistent (26,27).…”

mentioning

confidence: 99%

Age, Sex, Metabolic and Pharmacologic Factors May Predict Nonresponse Status to Rheumatoid Arthritis Therapies

BORDEAN,

CHIS,

CIMPEAN

et al. 2023

In Vivo

View full text Add to dashboard Cite

Background/Aim: A real challenge for patients with rheumatoid arthritis (RA) and rheumatologists is primary nonresponse status (PNRS) or secondary nonresponse status (SNRS) to various therapies. Despite their detrimental influence on patient life quality, PNRS and SNRS have no accurate definition and no early predictive criteria for their development exist. Patients with RA under 40 years of age are rare, hence PNRS and SNRS data for this age group are scarce. This study examined the PNRS and SNRS according to sex, age, BMI, therapy type, and duration. Patients and Methods: Retrospectively, 115 patients with RA having PNRS and/or SNRS were stratified by age (22-39, 40-59, and 60-81). The association between body mass index (BMI), proinflammatory cytokines inhibitors, JAK inhibitors, and TNF-alpha inhibitors, sex, age, and PNRS and SNRS was examined. Results: All three proinflammatory cytokine inhibitors (rituximab, tocilizumab, and abatacept) were associated with PNRS and SNRS in women with a high BMI aged 40-59 years.

show abstract

Sex and Intimacy

Flurey

2024

Talking Men's Health

View full text Add to dashboard Cite

It is not just about sex: viewpoints of men with inflammatory arthritis on the overall impact of the disease on their sexual health

Cited by 7 publications

References 32 publications

‘I turned in my man card’: a qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis

‘I turned in my man card’: a qualitative study of the experiences, coping styles and support needs of men with systemic sclerosis

Age, Sex, Metabolic and Pharmacologic Factors May Predict Nonresponse Status to Rheumatoid Arthritis Therapies

Sex and Intimacy

Contact Info

Product

Resources

About