Issues in Recruiting and Retaining Asian American Breast Cancer Survivors in a Technology-Based Intervention Study

Kim, Sangmi; Xu, Shu; Lee, Chiyoung; Hamajima, Yuko; Inohara, Ayako; Chang, Kathleen; Chee, Eunice; Chee, Wonshik

doi:10.1097/ncc.0000000000000657

Cited by 15 publications

(34 citation statements)

References 42 publications

(50 reference statements)

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“…There were 2 systematic reviews of e-mental health interventions among Asian American women and mobile health (mHealth) research participation among African Americans, including 79 studies and 56 studies, respectively. [18] communities or groups of Asian Americans using communication guage chat function about breast cancer; web-based educoaching interven-apps that are well known to the cation sessions that were cultion on improving subethnic groups (weChat for turally tailored (ie, acupunc-Asian American Chinese, KakaoTalk for Korean, ture for Chinese and red ginbreast cancer survivor experience and Line for Japanese); recruitment and retention rates not reported seng for Koreans); and webbased cultural resources and the American Cancer Society website for 3 months; control: use of the American Cancer Society website for 3 months…”

Section: Characteristics Of E-checc-up and Other Relevant Studiesmentioning

confidence: 99%

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Recruitment and Retention Strategies Among Racial and Ethnic Minorities in Web-Based Intervention Trials: Retrospective Qualitative Analysis

Hwang¹,

Lee²,

Song³

et al. 2021

J Med Internet Res

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Background Racial and ethnic minority groups are underrepresented in health research, contributing to persistent health disparities in the United States. Identifying effective recruitment and retention strategies among minority groups and their subpopulations is an important research agenda. Web-based intervention approaches are becoming increasingly popular with the ubiquitous use of the internet. However, it is not completely clear which recruitment and retention strategies have been successful in web-based intervention trials targeting racial and ethnic minorities. Objective This study aims to describe lessons learned in recruiting and retaining one of the understudied ethnic minority women—Korean Americans—enrolled in a web-based intervention trial and to compare our findings with the strategies reported in relevant published web-based intervention trials. Methods Multiple sources of data were used to address the objectives of this study, including the study team’s meeting minutes, participant tracking and contact logs, survey reports, and postintervention interviews. In addition, an electronic search involving 2 databases (PubMed and CINAHL) was performed to identify published studies using web-based interventions. Qualitative analysis was then performed to identify common themes addressing recruitment and retention strategies across the trials using web-based intervention modalities. Results A total of 9 categories of recruitment and retention strategies emerged: authentic care; accommodation of time, place, and transportation; financial incentives; diversity among the study team; multiple, yet standardized modes of communication; mobilizing existing community relationships with efforts to build trust; prioritizing features of web-based intervention; combined use of web-based and direct recruitment; and self-directed web-based intervention with human support. Although all the studies included in the analysis combined multiple strategies, prioritizing features of web-based intervention or use of human support were particularly relevant for promoting recruitment and retention of racial and ethnic minorities in web-based intervention trials. Conclusions The growing prevalence of internet use among racial and ethnic minority populations represents an excellent opportunity to design and deliver intervention programs via the internet. Future research should explore and compare successful recruitment and retention methods among race and ethnic groups for web-based interventions. Trial Registration ClinicalTrials.gov NCT03726619; https://clinicaltrials.gov/ct2/show/NCT03726619.

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Section: Characteristics Of E-checc-up and Other Relevant Studiesmentioning

confidence: 99%

“…• Incentives matching with study participants' interest [16] • US $50 electronic gift cards [18] • US $20 gift card at each in-person visit [17] • Incentives periodically or at the end [21] (e-CHECC-uP study)…”

Section: Financial Incentivesmentioning

confidence: 99%

Recruitment and Retention Strategies Among Racial and Ethnic Minorities in Web-Based Intervention Trials: Retrospective Qualitative Analysis

Hwang¹,

Lee²,

Song³

et al. 2021

J Med Internet Res

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“…Again, all the intervention components were accessed through computers, mobile devices, and tablets. More detailed information on the intervention is available elsewhere (Im et al, 2018(Im et al, , 2019Im, Kim, Xu et al, 2020;Im et al, 2017).…”

Section: The Technology-based Programmentioning

confidence: 99%

A technology‐based information and coaching/support program and self‐efficacy of Asian American breast cancer survivors

Kim

Chee

2020

Research in Nursing & Health

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Women's self‐efficacy for coping with breast cancer is one of the key factors that lead to successful breast cancer survivorship. Due to the cultural stigma linked to breast cancer (e.g., breast cancer is a genetic disease), Asian Americans are known as a high‐risk group within breast cancer survivors. However, healthcare providers are challenged to promote women's self‐efficacy while considering their cultural beliefs and attitudes. In this study, the efficacy of a technology‐based information and coaching/support program was examined in improving self‐efficacy for coping with breast cancer among Asian American survivors. A randomized repeated measures control group study was conducted with 67 Asian American breast cancer survivors. The questions on background characteristics, the Personal Resource Questionnaire, the Perceived Isolation Scale, the Supportive Care Needs Survey Short Form 34, and the Cancer Behavior Inventory were used. The data were analyzed using repeated measurement analyses, χ2 tests, and decision tree analyses. There were significant increases in the self‐efficacy scores of both control and intervention groups over time (p = .017). However, the increase in the control group's self‐efficacy scores was only up to post 1 month, and there was a decrease in the scores by post 3 months. When the participants were divided into high and low‐change groups based on the changes in their self‐efficacy scores for 3 months, the intervention group had more participants who belonged to the high‐change group (p = .036). The technology‐based intervention was effective in improving self‐efficacy for coping with breast cancer among Asian American breast cancer survivors.

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“…The missing data may be due to the anonymous and voluntary nature of the survey, and potentially the limited literacy and poor health status of some participants. 51 Finally, as we did not use validated measures for program evaluation, the feasibility and acceptability of HTH Cards and Café, especially among seriously ill patients, remains to be investigated.…”

Section: Limitationsmentioning

confidence: 99%

Heart to Heart Cards: A Novel, Culturally Tailored, Community-Based Advance Care Planning Tool for Chinese Americans

Jia

Stokes

Pan

et al. 2021

Am J Hosp Palliat Care

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Context: A paucity of literature describes the growing Chinese American community’s end-of-life (EOL) priorities and preferences. Objective: Develop a culturally-tailored advance care planning (ACP) tool to understand the EOL preferences of this underserved minority group. Methods: Informed by the Cultural Appropriateness Theory, the Chinese American Coalition for Compassionate Care (CACCC) developed Heart to Heart (HTH) Cards using a 3-step approach. First, CACCC created and refined a list of bilingual, culturally relevant EOL issues. Next, CACCC organized the EOL issues into a card deck. Finally, CACCC developed a unique playstyle of the cards—the HTH Café. From 2014-2019, CACCC recruited Chinese American volunteers and participants for HTH Cafés. Following each Café, participants completed an anonymous survey describing their sociodemographics, top 3 cards, and café evaluation. Results: The 54 HTH Cards were organized into 4 suits (spiritual, physical, financial/legal, and social). Each card displayed a culturally-tailored EOL issue in English and Chinese. Playstyles included one-on-one and group formats (ie. HTH Café). CACCC volunteers conducted 316 HTH Cafés for 2,267 Chinese American adults. Most participants were female (61.6%), between 18-50 years old (56.7%), lived in California (80.2%) and born in Asia (74.3%). The top priority (25.5%) was “If I’m going to die anyway, I don’t want to be kept alive by machines.” Participants thought the session was pleasant (99.5%) and expressed intent to complete advance directives (86.5%). Conclusion: HTH Cards represents the first, theory-driven, culturally-tailored ACP tool for Chinese Americans. More research is needed to establish its impact on ACP conversations and outcomes.

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Issues in Recruiting and Retaining Asian American Breast Cancer Survivors in a Technology-Based Intervention Study

Cited by 15 publications

References 42 publications

Recruitment and Retention Strategies Among Racial and Ethnic Minorities in Web-Based Intervention Trials: Retrospective Qualitative Analysis

Recruitment and Retention Strategies Among Racial and Ethnic Minorities in Web-Based Intervention Trials: Retrospective Qualitative Analysis

A technology‐based information and coaching/support program and self‐efficacy of Asian American breast cancer survivors

Heart to Heart Cards: A Novel, Culturally Tailored, Community-Based Advance Care Planning Tool for Chinese Americans

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