“…As study participants emphasised, unlike many other cancer trajectories, there is no typical trajectory for patients with haematological cancers [21]. This means that, at least for the haematological malignancies with less standardised trajectories, it can be difficult to plan when to start survivorship care.…”
Addressing the issues identified will facilitate cancer nurses' provision of survivorship care and help address haematological survivors' needs with regard to the physical and psychosocial consequences of their cancer and treatment.
“…As study participants emphasised, unlike many other cancer trajectories, there is no typical trajectory for patients with haematological cancers [21]. This means that, at least for the haematological malignancies with less standardised trajectories, it can be difficult to plan when to start survivorship care.…”
Addressing the issues identified will facilitate cancer nurses' provision of survivorship care and help address haematological survivors' needs with regard to the physical and psychosocial consequences of their cancer and treatment.
“…3 Persons with hematologic malignancies undergo complex therapies, including hematopoietic stem cell transplant (HSCT), resulting in substantial short-and long-term effects. 4 This patient population persistently experiences a high level of symptom burden equivalent to patients with advanced metastatic solid tumor cancers. 2,5 Fatigue is an especially prevalent symptom, with 30 – 75% of patients reporting fatigue depending on disease stage and diagnosis.…”
Background: Persons with hematologic malignancies have a high symptom burden throughout the illness journey. Coping skills interventions effectively reduce fatigue for other cancer patients. The purpose of this systematic review is to identify if coping interventions can reduce fatigue in patients with hematologic malignancies. Methods: A search of PubMed, Embase, CINAHL, APA Psych INFO, Scopus, Cochrane, and non-traditional publications was performed in June 2021 for studies introducing coping interventions for adults with hematological cancers within the past 20 years. The Transactional Model of Stress and Coping was used as a framework with fatigue as the primary outcome. The Johns Hopkins Nursing Evidence Based Practice Appraisal tool was used for quality appraisal. Results: Twelve interventional studies met criteria for inclusion. Four studies significantly reduced fatigue, with an additional 3 showing a reduction in fatigue. Interventions that utilized both problem and emotion-focused coping were more effective at reducing fatigue compared to interventions that only used emotion or problem-focused coping. Conclusion: This systematic review found moderate-strength evidence to support that coping interventions can reduce fatigue, with mixed, but mostly beneficial results. Clinicians caring for patients with hematologic malignancies should consider using coping interventions to reduce fatigue.
“…Information and psychological needs were found to be greatest at the time of diagnosis and during treatment, suggesting that survivorship care strategies should begin from time of diagnosis to enhance long‐term outcomes and improve quality of life (Bugos, ).…”
Section: Resultsmentioning
confidence: 99%
“…Educating patients with acute leukaemia in daily measurements of FEV1 and PEP is feasible and reduces incidence of pneumonia . Information and psychological needs were found to be greatest at the time of diagnosis and during treatment, suggesting that survivorship care strategies should begin from time of diagnosis to enhance long-term outcomes and improve quality of life (Bugos, 2015). A QOL trial of patients with haematologic malignancies identified the need for additional education while undergoing treatment and/or in the immediate period after treatment (Mattson, Demshar, & Daly, 2013).…”
Objectives
The aim of this study was to identify future research agendas that reflect the concerns and unexplored areas of interest for patients with life‐threatening cancer, their relatives and the clinical specialists during the cancer trajectory.
Methods
Six focus group discussions were conducted addressing two different cancer trajectories: primary malignant brain tumour and acute leukaemia. For each of the two cancer trajectories, separate FGIs were carried out with patients, relatives and clinical specialists to identify important concerns, challenges and uncertainties. The FGIs were video/audio‐recorded, transcribed and thematically analysed within and across FGI groups to construct research topics. Finally, the literature was reviewed for existing evidence concerning the identified research topic(s) to strengthen the suggested research agendas.
Results
New research agendas related to high‐grade glioma brain tumour and acute leukaemia with corresponding research questions were formulated within the topics of supportive care/palliation, education/information, rehabilitation, complementary and alternative therapy and organization of health care.
Conclusion
User involvement in identifying research agendas has the potential to improve quality of care for patients and caregivers across the cancer trajectory, while minimizing the gap in research between the healthcare user and healthcare provider.
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