Is there an association between help‐seeking for early detection of Alzheimer's disease and illness representations of this disease among the lay public?

Shinan-Altman, Shiri; Werner, Perla

doi:10.1002/gps.4661

Cited by 9 publications

(8 citation statements)

References 22 publications

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“…Among these publications, four outcome variables were examined: help-seeking, professional burnout, sense of coherence, and willingness to discuss concerns about cognitive changes. Findings showed that students and the lay public were more likely to indicate an intention to seek help if they perceived dementia as having severe symptoms and consequences, such as permanent damage, with higher perceived coherence 33,35. Among older adults with subjective memory complaints, it was found that IRs including social comparison and causal attributions predicted help-seeking behavior 26.…”

Section: Resultsmentioning

confidence: 97%

“…It should be noted that research in the area of dementia and IRs is mostly descriptive, and only few studies have examined correlates of IRs. Three studies found an association between IRs and help-seeking 26,33,35. This is a significant finding for two reasons.…”

Section: Discussionmentioning

confidence: 94%

“…In addition, the lay public believed that the main causes of dementia stem from risk factors, followed by psychological factors. They perceived dementia as being chronic with serious consequences, and as a disease that is not controllable, but moderately dependent on treatment effectiveness 35…”

Section: Resultsmentioning

confidence: 99%

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<p>Illness representations of dementia: a scoping review</p>

Shinan-Altman

Werner

2019

CIA

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As the number of persons with dementia grows, an increasing number of families, professionals, and laypersons will come into contact with persons with cognitive deterioration. Assessing dementia illness representations (IRs) among these groups may have great importance for understanding their responses to dementia. The purpose of this study was to summarize and critically review the literature on dementia IRs. A total of 25 articles that satisfied the inclusion criteria were identified. The review revealed that conceptually, research attention on dementia IRs has increased over the past several years as a result of changes in the notion of IRs and in the dementia discourse. Regardless of the population examined, dementia was mostly described as a chronic condition, presenting more cognitive than behavioral symptoms, and as being caused mainly by age, heredity, and abnormal brain changes. Methodologically, the area of dementia IRs is characterized by design, sample, and data collection weaknesses. Findings suggest that although the literature in the area of dementia and IRs is increasing, several conceptual and methodological limitations still have to be resolved in order to advance knowledge in the area. The research and clinical implications of these findings stress the importance of IRs in the area of dementia.

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Section: Resultsmentioning

confidence: 97%

Section: Discussionmentioning

confidence: 94%

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<p>Illness representations of dementia: a scoping review</p>

Shinan-Altman

Werner

2019

CIA

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“…Three per cent of participants in Luck et al [ 39 ] agreed that ‘scientific research’ could reduce the risk for dementia but did not specify to what research this referred ( n = 1002). Finally, Shinan-Altman et al [ 48 ] did not report raw scores and could not be pooled, but reported below average endorsement on a scale of one (strongly disagree) to five (strongly agree) that AD is attributable to risk factors (M = 2.47), psychological factors (M = 2.05), and immunity (M = 1.83).…”

Section: Resultsmentioning

confidence: 99%

What does the general public understand about prevention and treatment of dementia? A systematic review of population-based surveys

et al. 2018

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ObjectivesTo synthesise results of population surveys assessing knowledge and attitudes about prevention and treatment of dementia.MethodsMEDLINE, EMBASE, PsycINFO, and grey literature were searched for English language entries published between 2012 and May 2017. Survey questions were grouped using an inductive approach and responses were pooled.ResultsThirty-four eligible studies and four grey literature items were identified. Surveys were conducted in Europe, the US, Eastern Asia, Israel, and Australia. Nearly half of respondents agreed that dementia is a normal and non-preventable part of ageing, but belief in the potential for prevention may be improving over time. The role of cardiovascular risk factors was poorly understood overall. Less than half of respondents reported belief in the availability of a cure for dementia. The value of seeking treatment was highly endorsed.ConclusionsResults suggest that knowledge about the potential for dementia prevention and treatment remains poor but may be improving over time. Knowledge among those living in low- and middle-income countries are largely unknown, presenting challenges for the development of National action plans consistent with World Health Organization directives.

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“…Early awareness of a disease, familiarity with likely symptoms, readiness to seek early diagnosis could serve physicians and individuals in early treatment, and at the same time could ease the burden on society of late-stage treatment [46]. …”

Section: Educating the Publicmentioning

confidence: 99%

Building Eminence through Evidence

Horgan¹

2017

Biomed Hub

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With modern-day medicine going the way it is - new developments, great science, the advent of personalised medicine and more - there's little doubt that healthcare can move in the right direction if everything is put in place to allow it to do so. But in many areas progress is being halted. Or at the very least slowed. Like it or not, many front-line healthcare professionals still do things the way they did things three decades ago, and are reluctant to adapt to new methods (assuming they are aware of them). Evidence exists that today's rapidly developing new medicines and treatments can positively influence healthcare in modern-day Europe, but a gap in education (also applying to patients and politicians), often exacerbated by “fake news” on the internet, is hampering uptake of new and often better methods, while even causing doubts about vaccines. More understanding at every level will inevitably lead to swifter integration of innovation into the healthcare systems of Europe. The time to look, listen and learn has come.

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Is there an association between help‐seeking for early detection of Alzheimer's disease and illness representations of this disease among the lay public?

Cited by 9 publications

References 22 publications

<p>Illness representations of dementia: a scoping review</p>

<p>Illness representations of dementia: a scoping review</p>

What does the general public understand about prevention and treatment of dementia? A systematic review of population-based surveys

Building Eminence through Evidence

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