Is patient autonomy a critical determinant of quality of life in Korea? End-of-life decision making from the perspective of the patient

Mo, Ha Na; Shin, Dong Wook; Woo, Jae Ha; Choi, Jin Young; Kang, Jina; Baik, Young Ji; Huh, Yu Rae; Won, Joo Hee; Park, Myung Hee; Cho, Sang‐Hee

doi:10.1177/0269216311405089

Cited by 52 publications

(71 citation statements)

References 46 publications

(57 reference statements)

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“…The outcomes of this study showed that patients prefer that their physician take the responsibility of decision making, meanwhile they had a great tendency towards becoming informed of diagnosis, prognosis, and therapeutic methods; these results are in line with the findings of other related studies (15,16). Although our finding matches other studies on different populations and other illnesses which some are mentioned above, the discussion of patients' attitude and preference to truth-telling and self-determination may not be ended, because the amount of information and participation needed by patients have not been measured.…”

Section: Discussionsupporting

confidence: 90%

Attitudes of Patients With Cancer Towards Truth-telling and Self-Determination in Kerman, 2016: A Cross Sectional Study

2017

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Background: Regarding the patient autonomy principle, patients have the right to make informed decisions about their medical care. In situations like cancer diagnosis, telling the truth is still a challenge for health care providers, especially in eastern countries. Methods: The present cross sectional study was conducted from March to June 2016, in which the convenience sampling method was used. The questionnaire used to collect data consisted of 3 parts. The first part included demographic characteristics; the second part consisted of 22 items that examined the patients' attitudes towards truth-telling; third part of the questionnaire was Ende (1989) autonomy preference index (API). Results:The overall scores showed that the participants had a positive tendency to truth-telling and self-determination. The majority of participants believed that knowing the truth might make them more cooperative during treatment period, prevent unnecessary treatments, and help them deal better with their difficulties. Participants reported their preferences for decision making as low and seeking information as high. They preferred that leave decisions be made by doctors. However, they reported a positive attitude towards information seeking. Conclusions:The results of this study showed that Iranian patients with cancer had highly positive attitudes towards truth-telling and self-determination. Patients expect that their physician play the main decision maker role. Moreover, the preference for selfdecision making is high, correlated with education level.

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Section: Discussionsupporting

confidence: 90%

Attitudes of Patients With Cancer Towards Truth-telling and Self-Determination in Kerman, 2016: A Cross Sectional Study

2017

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“…A few quantitative studies (Mo et al, 2012;Yun et al, 2004Yun et al, , 2010Yun et al, , 2011 have examined preferences and attitudes toward disclosing cancer status in Korea, which broadens understanding about prevalence and needs in disclosure of terminal illness. However, there is a dearth of in-depth qualitative information regarding to what extent and how Korean participants expect unfavorable news to be delivered to patients.…”

Section: End-of-life Decision Making and Culturementioning

confidence: 99%

Preferences and Expectations for Delivering Bad News Among Korean Older Adults

Ko¹,

Nelson-Becker

Shin

et al. 2014

Journal of Social Service Research

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The purpose of this study was to explore Korean older adults' perspectives toward physicians' disclosure of serious illness to patients. Seventy Korean older adults residing in the community were interviewed in person using a semistructured interview guide. Major themes included conflicting desires among participants to: 1) inform the patient directly, 2) inform the patient indirectly, and 3) inform only the family. Subthemes under the first theme included: a) decision making about treatment, b) planning and preparation for the future, c) need for use of an ethical standard, d) consideration of patient coping responses, and e) disclosure of serious illness as a relational process. Disclosure of bad news is more than revealing or concealing information. Needs and preferences regarding to what extent and how information is delivered differ by culture. Thus, understanding preferred communication pathways for advanced care planning in specific cultural frameworks is important. Future studies using clear concepts and measures about serious illness disclosure can better prepare health care professionals in interacting with those from minority cultures. In addition, studies of those with poor health status from diverse cultural groups may further assist social workers to tailor interventions to accommodate cultural needs and expectations in end-of-life settings.

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“…Contudo, as ações que demarcam a divisão entre a beneficência e o paternalismo são tênues, o que leva os profissionais, em alguns estudos 17,18 , a reduzi-los ao mesmo constructo.…”

Section: Introductionunclassified

Comunicação em saúde: percepção dos usuários em um serviço de oncologia

Soares

Polejack

2016

Cienc. Saude

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Exceto onde especificado diferentemente, a matéria publicada neste periódico é licenciada sob forma de uma licença Creative Commons BY-NC 4. RESUMOObjetivo: Analisar a percepção da pessoa com câncer, em tratamento, sobre a comunicação em saúde, identificando suas preferências sobre a transmissão de informações relacionadas ao adoecimento e ao tratamento, para o próprio usuário e seus familiares, e as dificuldades relacionadas ao direito à informação e ao exercício da autonomia. Materiais e Métodos: Optou-se pela realização de um estudo exploratório e descritivo, de abordagem qualitativa. Foi utilizada a técnica da linha do tempo juntamente com um roteiro de entrevista semiestruturada. As entrevistas foram transcritas e submetidas à análise de conteúdo segundo proposta de Bardin. Resultados: Participaram do estudo dez sujeitos (n=10). A maioria dos participantes (n=8) destacaram querer receber informações sobre a doença. Contudo, não se sentem capazes de participar do processo de tomada de decisão sobre o tratamento (n=9). A análise dos dados revelou ainda seis categorias temáticas: a importância de saber sobre a doença; acesso aos serviços de saúde; interesse em saber sobre a doença e participar do tratamento; participação da família no tratamento; entraves à comunicação e; postura do profissional como facilitador da comunicação em saúde. Conclusão: A inclusão no processo de comunicação é esperada pela maioria dos usuários do presente estudo, o que propicia condições para o exercício da autonomia. Contudo, permanece o desafio de preparar melhor os profissionais de saúde para promover condições para os sujeitos desempenharem sua autonomia. Sugere-se a implantação dos princípios da Política Nacional de Humanização para o enfrentamento de tal obstáculo.

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Is patient autonomy a critical determinant of quality of life in Korea? End-of-life decision making from the perspective of the patient

Cited by 52 publications

References 46 publications

Attitudes of Patients With Cancer Towards Truth-telling and Self-Determination in Kerman, 2016: A Cross Sectional Study

Attitudes of Patients With Cancer Towards Truth-telling and Self-Determination in Kerman, 2016: A Cross Sectional Study

Preferences and Expectations for Delivering Bad News Among Korean Older Adults

Comunicação em saúde: percepção dos usuários em um serviço de oncologia

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