Is it time to address survivorship in advanced breast cancer? A review article

Lascio, Simona Di; Pagani, Olivia

doi:10.1016/j.breast.2016.10.022

Cited by 34 publications

(14 citation statements)

References 72 publications

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“…We found that patients with ES-BC and Met-BC experience similar side effects and have comparable side effect management experiences. Despite their similarity in responses to this survey, patients with Met-BC clearly have a different experience with different supportive needs compared with those with ES-BC [ 64 – 66 ]. Patients with Met-BC may be on some form of endocrine therapy for life, often in combination with other agents.…”

Section: Discussionmentioning

confidence: 99%

How patients experience endocrine therapy for breast cancer: an online survey of side effects, adherence, and medical team support

et al. 2020

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Purpose Many patients with hormone receptor-positive (HR+) breast cancer do not adhere to endocrine therapy (ET), and treatment-related side effects are often discussed by participants in online breast cancer forums. Our aim was to survey this unique group of patients about their ET-related experiences. Methods We partnered with patients active in breast cancer social media communities to develop a survey assessing ET-related side effects and medical team communication. Patients with a history of HR+ breast cancer who had received a recommendation to take ET were eligible to participate in the anonymous, online survey. Results Respondents included 2353 women and 54 men. Aromatase inhibitors were the most commonly used medication. Side effects were reported by 91.2%, were more often experienced by women than men (p < 0.001), and were primarily related to medication type. Approximately one-third of respondents discontinued therapy early. While most felt supported by their medical team, 31.5% reported that their side effects were dismissed or minimized. Survey respondents most frequently reported that a healthy diet and exercise, yoga/acupuncture, and vitamins/supplements were helpful in managing ET-related side effects. Conclusions ET-related side effects are very common, and one-third discontinued treatment early. Lifestyle changes and complementary therapies can be important tools for side effect management. One-third of patients did not feel that their side effects were taken seriously. Implications for Cancer Survivors This is the largest survey of ET use by participants in online breast cancer communities. Further research is needed to identify strategies to improve treatment adherence and to better manage ET-related side effects.

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Section: Discussionmentioning

confidence: 99%

How patients experience endocrine therapy for breast cancer: an online survey of side effects, adherence, and medical team support

et al. 2020

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“…This raises a question of routine psychological assessment of breast cancer patients during treatment and afterwards. The idea of death and dying should be appropriately processed rather than avoided during the process of psychological counseling and patients should be empowered to reorder their life priorities 25 . One of the top clinical research needs in breast cancer is to increase efforts in survivorship research including supportive care and quality of life.…”

Section: Discussionmentioning

confidence: 99%

Defining Health-Related Quality of Life in Localized and Advanced Stages of Breast Cancer – the First Step towards Hereditary Cancer Genetic Counseling

Žigman

Lukša

Mihaljević

et al. 2020

ACC

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The important goal in breast cancer treatment is to improve patient quality of life. Due to the huge economic burden, it is necessary to estimate the health state utility values for different breast cancer stages accurately. A group of 114 women filled out the euroqol-5D-3l questionnaire at two time points. The participants were divided into three groups, as follows: group 1 including healthy high-risk individuals; group 2 including patients with localized stage breast cancer; and group 3 including patients with advanced stage breast cancer. results were expressed either as summary health state utility score or summary visual-analog score. The euroqol utility index score and euroqol visual-analog score were statistically significantly higher in the group of healthy high-risk individuals. The euroqol visual-analog score was mostly correlated with the anxiety/depression and pain/ discomfort quality of life dimensions. health state utility values for different breast cancer stages are a necessary tool to perform economic analyses in breast cancer management decision making, due to its huge economic burden. Special attention should be paid to assessment of the psychosocial aspects of the disease, as well as pain management.

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“…Despite evidence of high levels of distress and support needs, individuals with advanced breast cancer (ABC) frequently report low rates of their needs being met; particularly health information and psychosocial needs . Recommendations have therefore prioritized development of ABC‐specific resources, including ABC‐specific psychosocial interventions, to meet these needs…”

Section: Introductionmentioning

confidence: 99%

Internet use and preferences among women living with advanced breast cancer

et al. 2019

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Despite high distress and unmet informational and psychosocial needs, and recommendations for development of advanced breast cancer (ABC)‐specific resources, there remains a paucity of appropriate, accessible psychological interventions. This survey study examined internet use and preferences of women with ABC, to gauge feasibility of providing an ABC‐specific internet intervention. Most participants (83%) used the internet daily. Results indicated most women with ABC would find an ABC‐specific internet intervention helpful, and that it would address gaps in current internet resources, including provision of strategies to manage treatment side‐effects and fear of cancer progression.

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Is it time to address survivorship in advanced breast cancer? A review article

Cited by 34 publications

References 72 publications

How patients experience endocrine therapy for breast cancer: an online survey of side effects, adherence, and medical team support

How patients experience endocrine therapy for breast cancer: an online survey of side effects, adherence, and medical team support

Defining Health-Related Quality of Life in Localized and Advanced Stages of Breast Cancer – the First Step towards Hereditary Cancer Genetic Counseling

Internet use and preferences among women living with advanced breast cancer

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