Is care of stillborn babies and their parents respectful? Results from an international online survey

Atkins, Bethany; Blencowe, Hannah; Boyle, Frances M.; Sacks, Emma; Horey, Dell; Flenady, Vicki

doi:10.1111/1471-0528.17138

Cited by 11 publications

(10 citation statements)

References 33 publications

(70 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Despite recent medical advances, disrespectful care was still described by parents in perinatal bereavement practice. 10 This suggests that nurses and midwives need to receive relevant trainings so that they can be fully prepared to provide high-quality perinatal bereavement care for parents. Therefore, it is important to explore a dependable and effective PBCTP that can be disseminated quickly and promptly.…”

Section: Discussionmentioning

confidence: 99%

“…7 9 Disrespectful care of parents and infants was reported. 10 Nursing professionals experience challenges such as a lack of perinatal bereavement care confidence (PBCC), heavy emotional burden and insufficient organisational support. 11 Recently, published results revealed that systematic training was an essential influencing factor of midwives' perinatal bereavement care competence.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Effectiveness of the implementation of a perinatal bereavement care training programme on nurses and midwives: protocol for a mixed-method study

et al. 2022

View full text Add to dashboard Cite

IntroductionThe psychological outcomes for many parents who experience perinatal loss depend on nursing staff’s ability to provide effective bereavement support. However, most nurses and midwives lack the ability to provide bereavement care and suffer from heavy emotional burden. The study aims to investigate the effectiveness of the perinatal bereavement care training programme on nurses and midwives to increase their perinatal bereavement care confidence (PBCC) and to reduce secondary traumatic stress and emotional exhaustion.Methods and analysisThis study will follow a mixed methodology consisting of two stages. The first stage will adopt a pre/post repeated quasi-experimental design without a control group. The second stage will use a qualitative interview study. This study will be conducted in a tertiary maternity hospital in China in 2022–2023. Ethical approval was obtained from the institutional review board in January of 2020. Outcome measures will be assessed using the Chinese version of the PBCC, STS and the EE subscale of Chinese Burn-out Inventory at baseline, postintervention and at the 3-month follow-up. Participants will be interviewed to understand their perceptions of the training programme.Ethics and disseminationThis research protocol was approved by the Ethics Committee of the Women’s Hospital School of Medicine, Zhejiang University (IRB no. 20210091). The results will be disseminated through peer-reviewed journals and academic conferences.Trial registration numberChiCTR2100049730.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Effectiveness of the implementation of a perinatal bereavement care training programme on nurses and midwives: protocol for a mixed-method study

et al. 2022

View full text Add to dashboard Cite

show abstract

“…No themes were related to spending time with their baby or making memories, however, subsequent research has challenged the concept that this opportunity is unwanted by parents in low and middle income countries. 86 …”

Section: Care After Stillbirthmentioning

confidence: 99%

“…An analysis of 3769 parents’ experiences of stillbirth gathered through a 2015 survey found that parents in middle income countries were less likely to report respectful care after their baby was stillborn compared with parents in high income countries (351/619 (57%) v 2462/3150 (78%); odds ratio 0.37 (95% confidence interval 0.30 to 0.44)). 86 Parents in middle income countries also felt less involved in decision making, a principle common to all three existing national bereavement care guidelines. As such, urgent attention is needed to develop, implement, and evaluate bereavement care guidelines.…”

Section: Care After Stillbirthmentioning

confidence: 99%

Stillbirth: prevention and supportive bereavement care

Atkins

Kindinger

Mahindra

et al. 2023

bmjmed

Self Cite

View full text Add to dashboard Cite

Around half of the two million stillbirths occurring worldwide each year are preventable. This review compiles the most up-to-date evidence to inform stillbirth prevention. Many general maternal health interventions also reduce the risk of stillbirth, for example, antenatal care attendance. This review focuses on specific aspects of care: glucose metabolism, targeted aspirin prophylaxis, clotting and immune disorders, sleep positions, fetal movement monitoring, and preconception and interconception health. In the past few years, covid-19 infection during pregnancy has emerged as a risk factor for stillbirth, particularly among women who were not vaccinated. Alongside prevention, efforts to address stillbirth must include provision of high quality, supportive, and compassionate bereavement care to improve parents’ wellbeing. A growing body of evidence suggests beneficial effects for parents who received supportive care and were offered choices such as mode of birth and the option to see and hold their baby. Staff need support to be able to care for parents effectively, yet, studies consistently highlight the scarcity of specific bereavement care training for healthcare providers. Action is urgently needed and is possible. Action must be taken with the evidence available now, in healthcare settings with high or low resources, to reduce stillbirths and improve training and care.

show abstract

“…Women who experience perinatal loss often receive unsatisfactory care, feeling that the care they received did not meet their expectations ( 4 ). An online survey done in 44 high-and middle-income countries reported that 25.4% of 3,769 bereaved parents reported disrespectful care and 23.5% reported disrespectful care of their baby ( 5 ).…”

Section: Introductionmentioning

confidence: 99%

Experiences of obstetric nurses and midwives receiving a perinatal bereavement care training programme: A qualitative study

et al. 2023

View full text Add to dashboard Cite

AimTo explore obstetric nurses and midwifery professionals’ experiences with the Perinatal Bereavement Care Training Programme (PBCTP) after implementation.DesignA qualitative descriptive design was used.MethodThis qualitative study was conducted at a tertiary level maternity hospital in China. The PBCTP was implemented at Women’s Hospital School of Medicine, Zhejiang University from March to May 2022. A total of 127 nurses and 44 midwives were invited to participate in the training. Obstetric nurses and midwives studied a 5-module training programme comprised of eight online theoretical courses and submitted a reflective journal after each session. Semi-structured interviews were conducted with 12 obstetric nurses and four midwives from May to July 2022 as a post-intervention evaluation. Thematic analysis was used in data analysis.FindingsA total of 16 participants in this study ranged in age from 23 to 40 years [mean age (SD), 30 (4) years]. Six main themes within participants’ experiences of PBCTP intervention were identified: participants’ aims of undertaking the training; personal growth and practice changes after training; the most valuable training content; suggestions for training improvement; directions for practice improvement; influencing factors of practice optimization.ConclusionNursing and midwifery professionals described the PBCTP as satisfying their learning and skills enhancement needs and supporting positive changes in their care providing for bereaved families. The optimized training programme should be widely applied in the future. More efforts from the hospitals, managers, obstetric nurses, and midwives are needed to jointly contribute to forming a uniform care pathway and promoting a supportive perinatal bereavement care practice.

show abstract

Is care of stillborn babies and their parents respectful? Results from an international online survey

Abstract: Objective: To quantify parents' experiences of respectful care around stillbirth globally.

Cited by 11 publications

References 33 publications

Effectiveness of the implementation of a perinatal bereavement care training programme on nurses and midwives: protocol for a mixed-method study

Effectiveness of the implementation of a perinatal bereavement care training programme on nurses and midwives: protocol for a mixed-method study

Stillbirth: prevention and supportive bereavement care

Experiences of obstetric nurses and midwives receiving a perinatal bereavement care training programme: A qualitative study

Contact Info

Product

Resources

About