“Irre menschlich Hamburg” – An Example of a Bottom-Up Project

Böck, Thomas; Urban, Angela; Schulz, Gesa; Sielaff, Gyöngyvér; Kuby, Alma M.; Mahlke, Candelaria

doi:10.1007/978-3-319-27839-1_25

Cited by 5 publications

(6 citation statements)

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“…From a clinical perspective, persons with a lived experience of suicide should be involved in all stages of treatment development [44]. The same applies to antistigma programs [50]; certainly, one strength of the presented online suicide prevention program is the close involvement of the lived experience team over a period of roughly three years. Our team consisted of persons with different kinds of lived experiences of suicide in different phases of life (e.g., regarding age).…”

Section: Discussionmentioning

confidence: 99%

“…The lived experience team was established using a purposive sampling strategy. At first, the project idea was presented twice to members of the trialogical association Irre menschlich Hamburg e. V. [50,51]. This association comprises people affected by mental disorders, relatives of people affected as well as professionals working in the mental health care system.…”

Section: Recruitment Of the Lived Experience Teammentioning

confidence: 99%

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Development of an online suicide prevention program involving people with lived experience: ideas and challenges

et al. 2021

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Background Fear of stigmatization, self-stigmatization, and insufficient information can lead to secrecy, reduced help-seeking, lower self-esteem, and lower self-efficacy among people affected by suicidality or suicide. Therefore, we developed an online suicide prevention program aiming to improve knowledge about suicidality and suicide stigma. Methods Inspired by the Australian program The Ripple Effect, a German team comprising people with lived experience of suicide, researchers, and clinicians was established for developing an online suicide prevention program. Therefore, we oriented on guidelines for evidence-based health information, for reporting on suicide, and on dealing with suicidality. The lived experience team discussed and developed concept, structure, and content of the program. This manuscript presents summaries of protocols from 16 team meetings and 3 written text reviews to outline the program development process. A summative evaluation 3 years after program development began was qualitatively analyzed based on thematic analysis. Results Between 2018 und 2021, the lived experience team (n = 10) discussed possibilities of support in suicidal crises, attitudes towards suicide, content, and design of the online program. In a structured process, six members of the lived experience team reviewed the content. Eight persons shared their lived experience of suicide in video reports by focusing on constructive ways of dealing with suicidality or a loss by suicide, conveying hope and encouraging people to continue living. Team members recommended greater public and patient involvement from the application stage, as well as more financial and personnel resources. Conclusions Through contributions to discussions and text reviews, the lived experience team shaped decisions in the program development process. While involving persons with lived experiences of suicide, it is important to consider that suicidality is 1. emotionally challenging, 2. a stigmatized issue, and 3. that the aspect of safety must be a priority. A distinction must be made between the duty of care based on actual risk and inappropriate overprotection. Hereby, transparency, autonomy, and a clear structure appeared to be helpful. For further research, we recommend a structured formative review process of the development of the program. Additionally, we recommend discussing the purpose and the specific design of the evaluation with a lived experience team in advance. Trial registration German Clinical Trial RegisterDRKS00015071 on August 6, 2018.

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Section: Discussionmentioning

confidence: 99%

Section: Recruitment Of the Lived Experience Teammentioning

confidence: 99%

Development of an online suicide prevention program involving people with lived experience: ideas and challenges

et al. 2021

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“…All German-speaking adults with internet access can participate in the online intervention. The material provided in this online intervention is developed trialogically [50, 51], following a structured process with high quality standards. Thus, high quality and evidence-based content will be provided.…”

Section: Discussionmentioning

confidence: 99%

“…friends, family members), and professionals [48–50]. Recruitment was done via the trialogic assembly “Irre menschlich Hamburg e.V.” [51, 52]. This lived experience team reviews all text materials in a structured process before its online release.…”

Section: Aim 2: Development Of E-mental Health Interventionsmentioning

confidence: 99%

Development and evaluation of e-mental health interventions to reduce stigmatization of suicidality – a study protocol

et al. 2019

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Background Worldwide, approximately 800,000 persons die by suicide every year; with rates of suicide attempts estimated to be much higher. Suicidal persons often suffer from a mental disorder but stigma, lack of available and suitable support, and insufficient information on mental health limit help seeking. The use of internet-based applications can help individuals inform themselves about mental disorders, assess the extent of their own concerns, find local treatment options, and prepare for contact with health care professionals. This project aims to develop and evaluate e-mental health interventions to improve knowledge about suicidality and to reduce stigmatization of those affected. In developing these interventions, a representative telephone survey was conducted to detect knowledge gaps and stigmatizing attitudes in the general population. Methods First, a national representative telephone survey with N = 2000 participants in Germany was conducted. Second, e-mental health interventions are developed to address knowledge gaps and public stigma detected in the survey. These comprise an evidence-based health information package about suicidality, information on regional support services, a self-administered depression test—including suicidality—and an interactive online intervention including personal stories. The development is based on a trialogical exchange of experience between persons affected by suicidality, relatives of affected persons, and clinical experts. Australian researchers who developed an e-mental health intervention for individuals affected by rural suicide were invited to a workshop in order to contribute their knowledge and expertise. Third, the online intervention will be evaluated by a mixed methods design. Discussion From representative telephone survey data, content can be developed to address specific attitudes and knowledge via the e-mental health interventions. These interventions will be easily accessed and provide an opportunity to reach people who tend not to seek professional services, prefer to inform themselves in advance and/or wish to remain anonymous. Evaluation of the online intervention will provide information on any changes in participants’ self-stigma and perceived-stigma of suicidality, and any increase in participants’ knowledge on suicidality or self-efficacy expectations. Trial registration German Clinical Trial Register DRKS00015071 on August 6, 2018.

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“…Betroffene (Personen mit Suizidgedanken oder Suizidversuchen) sowie Angehörige (Personen, die eine nahestehende Person durch Suizid verloren haben, und Personen, die sich um eine nahestehende suizidale Person sorgen) sollten in die Entwicklung der Onlineintervention einbezogen werden. Zusammen mit den Expert:innen fand ein Erfahrungsaustausch in einer trialogischen Arbeitsgruppe statt, die über den Verein „Irre menschlich Hamburg e. V.“ gegründet wurde [ 26 ], der von Psychiatrieerfahrenen, Angehörigen und Therapeut:innen getragen wird. Irre menschlich Hamburg organisiert Informations‑, Begegnungs- und Präventionsprojekte zu allen Aspekten von seelischer Gesundheit, psychischer Erkrankung und Anderssein und wirbt für mehr Toleranz im Umgang mit anderen und mehr Sensibilität für sich selbst.…”

Section: Entwicklung Der Onlineinterventionunclassified

Development of an online intervention on suicidality—providing knowledge and reducing suicide stigma

Dreier

Ludwig

Baumgardt

et al. 2021

Bundesgesundheitsbl

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ZusammenfassungBei Suizidalität können die Angst, von anderen stigmatisiert zu werden, sowie Selbststigmatisierung und unzureichende Informationen dazu führen, dass Hilfsangebote weniger oder gar nicht in Anspruch genommen werden. E‑Mental-Health-Interventionen sind eine Möglichkeit, niederschwellig viele Betroffene über die Thematik zu informieren und auf persönliche Hilfsangebote vorzubereiten. Am Universitätsklinikum Hamburg-Eppendorf wurde eine komplexe Intervention entwickelt, gefördert im Rahmen des Förderschwerpunkts „Suizidprävention (A: Entstigmatisierung)“ des Bundesministeriums für Gesundheit. Entwicklung und Inhalte dieser Onlineintervention sollen im vorliegenden Beitrag beschrieben werden.Nach einer repräsentativen Telefonbefragung der deutschen Allgemeinbevölkerung, mit der Wissenslücken und Stigmatisierungstendenzen zum Thema Suizid untersucht wurden, entstand auf Basis eines australischen Suizidpräventionsprojekts und in Zusammenarbeit mit Betroffenen und Angehörigen die Onlineintervention „8 Leben – Erfahrungsberichte und Wissenswertes zum Thema Suizid“. Darin wurden sowohl wissenschaftlich-klinische Fakten rund um das Thema Suizidalität als auch eine gesellschaftlich-kulturelle Perspektive beleuchtet sowie auf Selbsthilfemöglichkeiten und professionelle Hilfsangebote verwiesen. Es wurden Videoerfahrungsberichte von Betroffenen und Angehörigen gezeigt. Aktuell wird das Projekt ausgewertet. Eine Weiterführung ist geplant.In der Intervention werden verschiedene Sichtweisen gezeigt und die Personen, die die Intervention in Anspruch nehmen, werden sowohl auf kognitiver als auch auf emotionaler Ebene angesprochen. Aufgrund der Prävalenz von Suizidalität und der dennoch bestehenden Tabuisierung des Themas scheinen seriöse, evidenzbasierte und niedrigschwellige Präventions- und Informationsangebote besonders relevant.

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“Irre menschlich Hamburg” – An Example of a Bottom-Up Project

Cited by 5 publications

References 10 publications

Development of an online suicide prevention program involving people with lived experience: ideas and challenges

Development of an online suicide prevention program involving people with lived experience: ideas and challenges

Development and evaluation of e-mental health interventions to reduce stigmatization of suicidality – a study protocol

Development of an online intervention on suicidality—providing knowledge and reducing suicide stigma

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