Irish persons with intellectual disability moving from family care to residential accommodation in a period of austerity

McConkey, Roy; Kelly, Fionnola; Craig, Sarah; Keogh, Fiona

doi:10.1111/jar.12439

Cited by 13 publications

(13 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…As generations of people with intellectual disabilities who lived with family all their lives enter old age and family caring capacity from parents in particular become more fragile, current policy and regulation may mean that there are few resources to support this capacity and a greater burden is placed on ageing families McConkey, Kelly, Craig, and Keogh (2018). In the context of diminished resources, there is a reluctance for service planners to proactively engage with families, resulting in a crisis management approach in practice (Bibby, 2013; Gorfin & McGlaughlin, 2004; McConkey et al, 2006).…”

Section: Discussionmentioning

confidence: 99%

“…This confirms previous suggestions of a gap in the research with regard to high‐quality intervention studies to improve future planning for this population (Arnold et al, 2012; Lunsky et al, 2014; McCallion & Nickle, 2008). This research gap exists within a dynamic situation between policy and social reality characterized by an ageing population of people with intellectual disabilities (Burke et al, 2014; McCallion, 2014), diminished caring capacity within families to care for adults with intellectual disabilities (Brennan, Murphy, McCallion, & McCarron, 2017) and a greater than ever social policy reliance on families to continue caring (McConkey et al, 2018). This dynamic has been previously illuminated by Bibby (2013) who noted a disparity between stated policy and practice on the ground.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Approaches to and outcomes of future planning for family carers of adults with an intellectual disability: A systematic review

Brennan

McCausland

O’Donovan

et al. 2020

Research Intellect Disabil

View full text Add to dashboard Cite

This paper sets out a systematic review of empirically evaluated intervention studies and structured models/ frameworks of future care planning for adults with intellectual disability by family carers. The failure to adequately plan for when they are older is one of the key barriers to successful ageing for people with an intellectual disability (McCallion & Nickle, 2008). Given that the majority of families intend to provide lifelong support at home for loved ones with intellectual disabilities and that people with intellectual disabilities themselves largely wish to remain in the family home (McConkey, McConaghie, Barr, & Roberts, 2006), it is essential that families engage in future care planning "if crisis situations are to be avoided, particularly the double shock… of losing their home at a time when they are also bereaved"(Gorfin & McGlaughlin, 2004). Furthermore, the need for general engagement in future planning is exacerbated by macro-level factors of ageing populations and post-institutionalization policy and service contexts which will likely lead to more people with intellectual disabilities ageing in a family care environment in the future. At the same time, increased life expectancy for people with intellectual disabilities

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Approaches to and outcomes of future planning for family carers of adults with an intellectual disability: A systematic review

Brennan

McCausland

O’Donovan

et al. 2020

Research Intellect Disabil

View full text Add to dashboard Cite

show abstract

“…Three notable conclusions can be drawn from the changes identified over 10 years in family care arrangements in Ireland. Although these changes may be particular to Ireland, the types of change identified could have wider applicability, especially when government spending in health and social care globally is under increased pressure from reductions in government spending, as happened during the economic crisis in Ireland from 2007 to 2012 (McConkey et al, 2018) and more widely in Europe (Hauben et al, 2012).…”

Section: Discussionmentioning

confidence: 99%

“…A third lesson from the Irish data is the intra-country variation that exists in the proportion of adult persons living with family carers across the nine CHO areas. This arises largely because of the uneven availability of residential provision although it is possible that social and cultural factors also play a part (McConkey et al, 2018). However, residential options are invariably much more expensive than family care especially for persons with more severe and profound disabilities.…”

Section: Discussionmentioning

confidence: 99%

Family carers of people with intellectual disabilities in Ireland: Changes over 10 years

Kelly¹,

McConkey²,

Craig³

2019

J Intellect Disabil

Self Cite

View full text Add to dashboard Cite

Data were obtained on nearly 20,000 Irish children and adults living in various family care arrangements in 2007, 2012, and 2017. Over 10 years, the percentage increase in adult persons living with family carers was three times higher than the rise in the general population, with people aged 50 years and over having the highest proportional increase. Also a greater number of persons aged 40–49 group continued to live with both parents in 2017 (47%) compared to 2007 (33%). However, there was marked variation across the nine Community Health Organization areas in the proportions of adults living with family carers (from 49% to 62%). In the coming decades, increased provision will be required in both the quantum and type of supports provided to families so as to sustain their caring role but ensuring equity of provision nationally will be a major challenge.

show abstract

“…Inclusion Ireland has further reported that austerity has led to cuts to respite services, residential places, home‐help and personal assistant hours, all of which are services that are important to people with an intellectual disability and their families. McConkey, Kelly, Craig, and Keogh () identified that funding for residential placements fell nationally by 9% during the period 2009–2014. This is despite a growing population of people with intellectual disability.…”

Section: Introductionmentioning

confidence: 99%

An exploration of care‐burden experienced by older caregivers of adults with intellectual disabilities in Ireland

Egan

Dalton

2019

Brit J Learn Disabil

View full text Add to dashboard Cite

Accessible summary ·Older family carers of an adult with an Intellectual disability were asked about how they sometimes feel when supporting another person. ·Most carers felt a little stressed or strained. ·Older carers felt less stressed than younger carers. ·The value of supports that help carers was identified. Abstract BackgroundPeople with intellectual disabilities are experiencing increased longevity, and in parallel, their family caregivers are also ageing. The literature identifies that these caregivers are at risk of burden. The aim of this study was to measure the level of caregiver burden among older carers of adults with intellectual disabilities in an Irish sample and to analyse the effect of socio‐demographic factors upon experiences of caregiver burden. Materials and MethodsThirty caregivers completed a survey questionnaire. Data were collected based upon participants’ self‐reports of burden using the Zarit Burden Interview (ZBI) and a socio‐demographic questionnaire. Data were analysed using SPSS version 24. ResultsOver 57% of carers indicated a mild‐to‐moderate level of burden. Analysis indicated that younger caregivers experience significantly higher levels of burden, when compared to older caregivers. ConclusionsThis study contributes to our understanding of burden among an Irish population of older caregivers supporting an adult with an intellectual disability. It identified that carers do experience burden. The importance of proactive assessments and supports for these caregivers was revealed. This study highlights a lack of Irish research in this area and may pave the way for future research which could build upon its findings.

show abstract

Irish persons with intellectual disability moving from family care to residential accommodation in a period of austerity

Abstract: More people will have to continue living with their families and for longer if funding for new places remains curtailed.

Cited by 13 publications

References 17 publications

Approaches to and outcomes of future planning for family carers of adults with an intellectual disability: A systematic review

Approaches to and outcomes of future planning for family carers of adults with an intellectual disability: A systematic review

Family carers of people with intellectual disabilities in Ireland: Changes over 10 years

An exploration of care‐burden experienced by older caregivers of adults with intellectual disabilities in Ireland

Contact Info

Product

Resources

About