Involving the patient: A prospective study on use, appreciation and effectiveness of an information system in head and neck cancer care

Brink, J.L. van den; Moorman, Peter W.; Boer, Maarten F. de; Pruyn, J.F.A.; Verwoerd, C. D. A.; Bemmel, Jan H. van

doi:10.1016/j.ijmedinf.2005.03.021

Cited by 54 publications

(45 citation statements)

References 21 publications

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“…A research group based in the Netherlands developed and tested a comprehensive electronic health information support system for use in head and neck cancer care [27]. The system had four patient-related functions: facilitating communication between patients and healthcare providers; providing information about the disease and its treatment; connecting patients with patients similarly diagnosed; and monitoring patients after hospital discharge.…”

Section: Introductionmentioning

confidence: 99%

Feasibility and Acceptance of a Telehealth Intervention to Promote Symptom Management during Treatment for Head and Neck Cancer

Head¹,

Keeney²,

Studts³

et al. 2011

The Journal of Supportive Oncology

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Patients undergoing treatment for head and neck cancers have a myriad of distressing symptoms and treatment side effects which significantly alter communication and lower quality of life. Telehealth technology has demonstrated promise in improving patient-provider communication by delivering supportive educational content and guidance to patients in their homes. A telehealth intervention using a simple telemessaging device was developed to provide daily education, guidance, and encouragement for patients undergoing initial treatment of head and neck cancer. The goal of this article is to report the feasibility and acceptance of the intervention using both quantitative and qualitative measures. No eligible patients declined participation based on technology issues. Participants completed the intervention over 86% of the expected days of use. Direct nursing contact was seldom needed during the study period. Satisfaction with the technology and the intervention was very high. In this study a telehealth intervention was shown to be feasible, well accepted, and regularly used by patients experiencing extreme symptom burden and declining quality of life as a result of aggressive treatment for head and neck cancer.

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Section: Introductionmentioning

confidence: 99%

Feasibility and Acceptance of a Telehealth Intervention to Promote Symptom Management during Treatment for Head and Neck Cancer

Head¹,

Keeney²,

Studts³

et al. 2011

The Journal of Supportive Oncology

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“…In the past decade, several studies have demonstrated various applications of log file tracking: to assess e-learning,10 – 12 to identify how to support health professionals or lay people,13 – 18 to observe the interest aroused by items of cancer-related public knowledge18 and to support patient information 19 – 21. There are no studies of log file assessment after institutional campaigns, although reference institutions’ websites command more credibility among the lay population as sources of reliable information 22.…”

mentioning

confidence: 99%

Cancer prevention campaigns and Internet access: promoting health or disease?

Vasconcellos-Silva

Castiel

Griep

et al. 2008

Journal of Epidemiology & Community Health

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“…The first of all was Immunity and Safety data with two sections, Prevention of Disease and Awareness and Knowledge about Disease. Other researcher showed that tele health technologies have been used with good results in areas of preventive care and management of certain disease especially in chronic diseases including osteoarthritis, heart disease and diabetes (42) and also used for consult with patient for health behaviors and give information about disease (43) and patient had satisfaction with these systems (91%) (44) and also have emphasized on improve knowledge with give information about nature, causes, stages, signs and symptoms of disease for self management and better recovery from it (45, 46). These researches have contingency with this results study.…”

Section: Discussionmentioning

confidence: 99%

“…Other researchers showed that patient to be inclined to access to rest results (50, 51, 52), monitor chronic disease including asthma, hypertension, congestive heart failure and high risk pregnancy (43) chemotherapy side effects and symptoms of patient receiving chemotherapy (43, 53) and had satisfied with using these systems (94%) (44). The patient had concern about and problem with when they used medical equipment and need to get information about application and some other information about these equipment (54).…”

Section: Discussionmentioning

confidence: 99%

Development of Common Data Elements to Provide Tele self-Care Management

Jeddi¹,

Rezaiimofrad²

2013

Acta Inform Med

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Background:Self-care management could empower patients to management of their health. Tele-health is the remote exchange of data between a patient and medical staff to improve healthcare quality.The aim:The aim of this research was developing common data elements to provide Tele self-care management and improve quality of care.Materials and methods:This was a cross-sectional study based on Delphi approach was done in 2011. Data was extracted by three sessions’ of conversation with 20 faculty members. Data had more than 75% agreement was inserted in minimum data element list, data with lower than 50% agreement was considered as failed data and whom was agreed between 50%-75% of participants were reconsidered for conversation until three sessions and after re-voting it was failed or accepted.Results:Results showed that self-care divides in three main categories and also some sub-categories including:1-Immunity and Safety with two subcategories (A: Prevention of Disease and B: Awareness and Knowledge about Disease); 2-Health Security and Maintains in six subcategories (A: Labratoary Test Results; B: Vital Data Monitoring; C: Rehabilitation; D: Drug Information; E: Follow up and F: Dental Health), 3- Well-Being Education in four subcategories (A: Nutrition; B: Health Promotion; C: Life Style Improvement and D: Patient Activity).Discussion:Consideration of all aspects of self management including information about prevention of disease, knowledge about disease, laboratory test result, vital signs monitoring, rehabilitation, drug information, follow up, dental health, nutrition, health promotion, life style improvement and patient activities is necessary.

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Involving the patient: A prospective study on use, appreciation and effectiveness of an information system in head and neck cancer care

Cited by 54 publications

References 21 publications

Feasibility and Acceptance of a Telehealth Intervention to Promote Symptom Management during Treatment for Head and Neck Cancer

Feasibility and Acceptance of a Telehealth Intervention to Promote Symptom Management during Treatment for Head and Neck Cancer

Cancer prevention campaigns and Internet access: promoting health or disease?

Development of Common Data Elements to Provide Tele self-Care Management

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