Involving drug users in treatment decisions: An exploration of potential problems

Fischer, Jan; Neale, Joanne

doi:10.1080/09687630701391604

Cited by 27 publications

(49 citation statements)

References 10 publications

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“…In the recent years, research on the subject of service user involvement in the provision of treatment services for drug users has revealed some progress but also many obstacles to full attainment of this ideal (Bryant, Saxon, Madden, Bath, & Robinson, 2008a, 2008bFischer & Neale, 2008). Research has indicated problems arising in relation both to the extent of involvement processes -which have been reported as low -and to the types of involvement processes most commonly used.…”

Section: Introductionmentioning

confidence: 92%

Service user involvement in methadone maintenance programmes: The ‘philosophy, the ideal and the reality’

King

2010

Drugs: Education, Prevention and Policy

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Internationally, service user involvement has become a common feature of public policy and more specifically public health policy in the recent decades. In a general context, the involvement of service users in health services has been well documented; however, less evidence is available within the area of drug treatment service provision. This study, which was conducted in Ireland, sought to address this gap in the knowledge and understanding of service user involvement within this setting. Qualitative in-depth interviews were undertaken with a broad range of participants. The sample, which totalled 20 individuals, comprised both service users and service providers. Meanings, and mechanisms of and limits to user involvement were explored. This study highlights the ambiguity that exists between policy recommendations on service user involvement and actual practice within treatment services. Although, participants acknowledged that services could and should learn from the individual and collective experiences of service users, they were found to be passive players in planning, developing, evaluating and delivering the services they received. The study suggests that in order to change the rhetoric of policy recommendations into a reality within this context, a much more committed approach which includes the education and training of all involved in drug treatment services is required.

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Section: Introductionmentioning

confidence: 92%

Service user involvement in methadone maintenance programmes: The ‘philosophy, the ideal and the reality’

King

2010

Drugs: Education, Prevention and Policy

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“…The challenges of involving people experiencing addiction as partners in treatment decision making have previously been documented (Fischer et al 2007, Fischer & Neale, 2008.…”

Section: Our Findings Show Notable Overlap With the Treatment Satisfamentioning

confidence: 99%

“…Furthermore, individual clinicians' willingness to involve patients will likely differ and be constrained by structural factors such as regulations, financial resources (including the patient's insurance), time, competing priorities, and the available treatment options (Fischer & Neale, 2008 (Friedrichs et al, 2016). Thus, it is incumbent on clinicians to try to facilitate this.…”

Section: Our Findings Show Notable Overlap With the Treatment Satisfamentioning

confidence: 99%

Patient views of opioid pharmacotherapy biodelivery systems: Qualitative study to assist treatment decision making.

Neale

Tompkins

Strang

2018

Experimental and Clinical Psychopharmacology

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The technology for delivering opioid pharmacotherapy (OPT) is expanding. It is important to know what OPT patients think of these developments, and to find ways of enabling patients and clinicians to make informed decisions about which bio-delivery system to choose. We explored the views of current and former OPT patients with a history of heroin use to identify factors influencing their preferences regarding routes of OPT administration. Data were generated via seven focus groups conducted in London, United Kingdom. Participants (n=44) considered standard bio-delivery systems (liquid/linctus, tablet, injectables), emergent systems (implants, depot injections), and a hypothetical system (nasal sprays). Groups were audio-recorded, transcribed verbatim, coded using qualitative software, and analyzed inductively via Iterative Categorization. Participants were cautious of, but willing to consider, new ways of receiving OPT and they welcomed having more choice. Their preferences and decision-making processes were influenced by nine interconnected factors: 1. personal dislike of particular bio-delivery systems; 2. desired feelings following OPT administration; 3.perceived effectiveness of OPT bio-delivery systems; 4. concerns about side effects; 5. ability to control the OPT; 6. impact on daily lives; 7. concerns about OPT-related stigma; 8. need for psychosocial support; and 9. personal treatment goals. This complexity may make it difficult for patients and clinicians to evaluate the pros and cons of the expanding array of OPT bio-delivery systems and to arrive at clear conclusions. We therefore use the findings to Article accepted by Experimental and Clinical Psychopharmacology 3 construct a checklist that may facilitate discussions with patients when decisions about OPT need to be made. KEYWORDS

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“…For both service staff and clients there are a range of issues related to a lack of experience and confidence in participating in consumer participation activities [7]. Additionally, service providers have previously expressed concerns that drug dependence itself, and the 'chaotic' nature of some drug users' daily lives, may limit the capacity of clients to engage in consumer participation [7,8]. According to Tuana marginalized communities such as people who use drugs and alcohol are often judged as not being "epistemically credible because they are constructed as being suggestible, gullible or vengeful" [9].…”

Section: Introductionmentioning

confidence: 99%

Current Perspectives on Consumer Participation among Non Government Drug and Alcohol Service Staff in New South Wales

Wilsona¹,

Brener²

2016

J Community Med Health Educ

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In Australia the successful implementation of consumer participation programs in mental health has demonstrated consumer participation to be achievable, particularly within other marginalized groups of people. The context of drug and alcohol services brings with it particular sensitivities and complexities, and these can present some challenges to implementing consumer participation. The aims of this study were to explore staff opinions current activities, attitudes and challenges in implementing consumer participation models in non government drug and alcohol services in NSW. A semi structured survey was developed, consisting of questions around service user participation, and was sent to non government alcohol and other drug services in New South Wales, Australia. The majority of services reported that they currently engage in some form of consumer participation, however many were unlikely to engage in activities that involved consumers and staff working cohesively together where consumers' perspectives are equal with those of staff . Despite this, most respondents believed their service could benefit from implementing consumer participation into planning and policy development. Over half the sample agreed that a main barrier to implementing consumer participation activities in their service was around staff concerns that they could not trust service users and that service users would have access to confidential information. Consumer participation has the potential to benefit those who plan and provide health care services, as well as patients who use the service. For staff and service users within the drug and alcohol sector to more successfully implement consumer participation, consumers and staff need to develop a stronger shared trust.

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Involving drug users in treatment decisions: An exploration of potential problems

Cited by 27 publications

References 10 publications

Service user involvement in methadone maintenance programmes: The ‘philosophy, the ideal and the reality’

Service user involvement in methadone maintenance programmes: The ‘philosophy, the ideal and the reality’

Patient views of opioid pharmacotherapy biodelivery systems: Qualitative study to assist treatment decision making.

Current Perspectives on Consumer Participation among Non Government Drug and Alcohol Service Staff in New South Wales

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