2012
DOI: 10.1258/jhsrp.2012.011086
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Involvement in research without compromising research quality

Abstract: Health research funders in the UK now ask applicants to state how their research will involve patients and members of the public. Such involvement can help with questions that researchers repeatedly face: about improving trial recruitment, response rates and follow-up. Patient and Public Involvement (PPI) in research is usually presented in the form of a ladder, from a low rung where studies are led by researchers with no patient involvement, to a high rung where studies are patient-led. This hierarchy does no… Show more

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Cited by 57 publications
(67 citation statements)
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“…The Collaboration for Environmental Evidence guidance noted that involving many people at an early stage may be particularly critical when the findings are likely to be contested (Fazey et al, 2004). However, stakeholder input needed to be carefully managed to avoid the question becoming too broad, complex or just impossible to answer (Stewart and Liabo, 2012). Review teams faced decisions about: which judgements they were willing and able to share with other stakeholders; which stakeholders could help make these judgements; who in the review team had the skills to consult or collaborate with stakeholders; what advance information would help stakeholders prepare for discussing the review; how much time was available for thought and discussion; what costs would be accrued; and how stakeholders' contributions would be acknowledged in the report (Rees and Oliver, 2012).…”
Section: Guidance For Stakeholder Involvementmentioning
confidence: 99%
“…The Collaboration for Environmental Evidence guidance noted that involving many people at an early stage may be particularly critical when the findings are likely to be contested (Fazey et al, 2004). However, stakeholder input needed to be carefully managed to avoid the question becoming too broad, complex or just impossible to answer (Stewart and Liabo, 2012). Review teams faced decisions about: which judgements they were willing and able to share with other stakeholders; which stakeholders could help make these judgements; who in the review team had the skills to consult or collaborate with stakeholders; what advance information would help stakeholders prepare for discussing the review; how much time was available for thought and discussion; what costs would be accrued; and how stakeholders' contributions would be acknowledged in the report (Rees and Oliver, 2012).…”
Section: Guidance For Stakeholder Involvementmentioning
confidence: 99%
“…We are cautious about advocating such a complete blurring of professions, in which the profession of researcher and its associated skill set become obsolete as this function is primarily exercised by users. Stewart and Liabo (2012) argue for contributions from all (research users and producers), but taking care not to diminish the technical skills required to conduct research. In 2017, we reflect on this and extend the argument that co-production equally runs the risk of diminishing the technical skills of civil servants.…”
Section: Discussionmentioning
confidence: 99%
“…There is a body of literature that aims to understand and advise how best to elicit contributions from stakeholders, including consideration of who initiates engagement [1]. There is however less guidance on what to do with the contributions stakeholders make, particularly if they contradict what methodologists recommend [2].…”
Section: Open Accessmentioning
confidence: 99%