Investigation of Anxiety, Depression and Perceived Caregiving Burden in Parents of Pediatric Patients Undergoing Open Heart Surgery and Being Followed Up in Intensive Care

Abstract

Objectives: This study aims to investigate the relationship between anxiety levels and perceived caregiver burden in mothers of children who had undergone Congenital Heart Disease Surgery (CHDS) and who were followed up in the intensive care unit with the surgical type and clinical variables applied. Patients and Methods: The study was conducted with the mothers of both patient groups who underwent Palliative Surgery (PS) (n:32) or Corrective (Biventricular) Repair (CR) (n:35) in the Pediatric Cardiovascular Surgery clinic of Istanbul Koşuyolu High Specialty Educational and Research Hospital. Sociodemographic-Clinical Data Form, Beck Depression Inventory (BDI), Standardized Mini-Mental Test, State-Trait Anxiety Inventory (STAI TX I-II), and Zarit Burden Interview (ZBI) were applied to the parents. Results: The rate of interventional birth was higher in the PS group whereas there was no difference between the PS and CR groups in terms of age, gender, birth weights, and presence of additional diseases (p: 0.001). There was no difference between maternal education levels and pregnancy duration. This difference was not significant even though the mean age of the mothers in the CR group was higher compared to the PS group. The mean STAI-S scores of the PS group (State Anxiety) were lower than the CR group, and the STAI-T scores of the PS group (Trait Anxiety) were higher. The ZBI scores were significantly higher in the PS group (p: 0.03) Conclusion: Congenital heart diseases and surgical interventions, as a result, are a major source of distress for affected families. Mothers are mainly affected by this situation. Changes in the mental status of the caregiver may have serious adverse effects on the operated child at every stage of the disease. Caregiving in parents is perceived as a burden and increased anxiety leads to different psychiatric clinical manifestations. Therefore, it is recommended that parents of children who have undergone congenital cardiac surgery receive routine psychiatric support from the early stages of the disease.

Long-Term Effects of Child Early Surgical Ventricular Septal Defect Repair on Maternal Stress

“…As mentioned in the beginning, the parental experience of stress related to the CHD has both consequences on their own well-being and mental health, but also on children's developmental outcomes [16], emphasizing the moderating role of parental well-being and mental health on the psychosocial prognosis of the CHD-affected children [7,8,13]. As parents of children with CHD have been shown to benefit from coping skills, a good understanding of the diagnosis and strong cohesive family functioning during the process of medical treatment [36], the importance of early intervention and psychological support of affected parents is stressed [86]; both for the psychosocial adjustment of parents themselves and for the healthy development of their children.…”