Investigating the decision-making needs of HIV-positive women in Africa using the Ottawa Decision-Support Framework: Knowledge gaps and opportunities for intervention

Doull, Marion; O’Connor, Annette M.; Jacobsen, Mary Jane; Robinson, Vivian; Cook, Laura; Nyamai-Kisia, Caroline; Tugwell, Peter

doi:10.1016/j.pec.2006.06.020

Cited by 21 publications

(18 citation statements)

References 50 publications

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“…Disclosure to partners is often complicated by the risk of infection and complexities in intimate relationships. Since women fear adverse consequences more than they are reported, helping individuals to obtain realistic outcome expectations should be integrated into post-test counselling (Doull et al, 2006). Focusing on positive outcomes of disclosure while assessing the risk for negative outcomes should be key in enhancing the effectiveness of post-test counselling and increasing disclosure among HIV-positive women, and thereby potentially decreasing the risks of HIV transmission to their partners and infants.…”

Section: Resultsmentioning

confidence: 99%

“…The stages of disclosure involve coming to terms with the traumatic diagnosis; deciding upon the appropriateness of disclosure to a specific person and weighing the anticipated consequences and benefits of disclosure and then choosing an appropriate situation for disclosure (Kimberly & Serovich, 1996). This process, well described in the HIV/AIDS literature, has not been given appropriate attention for HIV-positive pregnant women who face particularly challenging choices (Doull et al, 2006). Personal reasons for disclosure include stress relief and access to social support and treatment.…”

Section: Introductionmentioning

confidence: 99%

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To tell or not to tell: South African women's disclosure of HIV status during pregnancy

et al. 2008

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HIV-positive pregnant women often do not disclose their serostatus to their partners, family and friends, creating potential barriers to preventing sexual transmission to partners and mother-to-child transmission through breastfeeding. This research explores recently diagnosed HIV-positive pregnant women’s reasons for disclosure and non-disclosure of serostatus to various members of their social networks, as well as the consequences of their disclosure. Data were collected through open-ended questions as part of a semi-structured interview with 293 recently diagnosed HIV-positive pregnant women recruited from antenatal clinics in two townships in Tshwane, South Africa. A content analysis of responses showed that women weighed fear of abandonment and discrimination against their desire to raise risk awareness and their need for support. Partners most often responded to disclosure with disbelief and shock, whereas parents frequently exhibited emotional distress, but were still supportive, as were other relatives and friends. The women subsequently experienced low levels of adverse consequences after disclosure. The results can assist health care providers in understanding the complexity of pregnant women’s decisions to disclose to various members of their social networks and emphasize the need for continued counselling and support.

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

To tell or not to tell: South African women's disclosure of HIV status during pregnancy

et al. 2008

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“…We developed and tested a decision support intervention based on the Ottawa Decision Support Framework, which provides an approach to supporting individuals in making high-quality decisions that are informed and consistent with their values (19). In the context of prostate cancer testing, we would add that a high-quality decision is one that is consistent with men’s preferences (20).…”

Section: Introductionmentioning

confidence: 99%

Informed Decision Making About Prostate Cancer Testing in Predominantly Immigrant Black Men: A Randomized Controlled Trial

et al. 2012

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Background Decision support interventions have been developed to help men clarify their values and make informed decisions about prostate cancer testing, but they seldom target high-risk black and immigrant men. Purpose This study evaluated the efficacy of a decision support intervention focused on prostate cancer testing in a sample of predominantly immigrant black men. Methods Black men (N = 490) were randomized to tailored telephone education about prostate cancer testing or a control condition. Results Post-intervention, the intervention group had significantly greater knowledge, lower decision conflict, and greater likelihood of talking with their physician about prostate cancer testing than the control group. There were no significant intervention effects on prostate specific antigen testing, congruence between testing intention and behavior, or anxiety. Conclusions A tailored telephone decision support intervention can promote informed decision making about prostate cancer testing in black and predominantly immigrant men without increasing testing or anxiety. Clinical trial Registered in clinicaltrials.gov (NCT01415375)

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“…Researchers have noted that counseling strategies should go farther than just helping clients make decisions about whether or not to have an HIV test; they should also include elements of empowerment, ongoing psychological and emotional support, and assistance with accessing resources (Doull et al, 2006). The decision-making preferences and decision support needs of individuals undergoing HIV testing, however, are likely to differ for someone with a history of victimization and for whom issues such as safety, loss of autonomy, isolation, and chronic stress may be of particular concern.…”

mentioning

confidence: 99%

Trauma-Informed Decision-Making Among Providers and Victims of Intimate Partner Violence During HIV Testing: A Qualitative Study

Williams¹,

González-Guarda²,

Ilias³

2017

Journal of the Association of Nurses in AIDS Care

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We explored the process of implementing an HIV testing program at an intimate partner violence (IPV) service agency from the client and provider perspectives. A qualitative descriptive approach was used wherein semi-structured interviews were conducted with 19 key informants (i.e., women with a history of IPV, HIV service providers, IPV service providers). Interviews focused on facilitators and barriers to HIV testing implementation, the decision-making process during HIV testing, and support needs. All interviews were recorded and transcribed. The text of the interviews was analyzed using directed content analysis. Unique factors were found to influence HIV testing in victims of IPV including potential for re-traumatization, readiness for testing, competing priorities, and the influence of children. The results provided important information that can be used to improve the implementation of HIV testing, tailoring processes so they are more trauma-informed, and better support individuals with a history of IPV.

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Investigating the decision-making needs of HIV-positive women in Africa using the Ottawa Decision-Support Framework: Knowledge gaps and opportunities for intervention

Cited by 21 publications

References 50 publications

To tell or not to tell: South African women's disclosure of HIV status during pregnancy

To tell or not to tell: South African women's disclosure of HIV status during pregnancy

Informed Decision Making About Prostate Cancer Testing in Predominantly Immigrant Black Men: A Randomized Controlled Trial

Trauma-Informed Decision-Making Among Providers and Victims of Intimate Partner Violence During HIV Testing: A Qualitative Study

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