Investigating How Parental Instructions and Protective Responses Mediate the Relationship Between Parental Psychological Flexibility and Pain-Related Behavior in Adolescents With Chronic Pain: A Daily Diary Study

Beeckman, Melanie; Simons, Laura E.; Hughes, Sean; Loeys, Tom; Goubert, Liesbet

doi:10.3389/fpsyg.2019.02350

Cited by 12 publications

(8 citation statements)

References 75 publications

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“…Although the PCS-P has been used extensively in other populations, there are many other psychosocial variables that likely play a role in how parents rate and respond to their child's pain. For example, parent behavioral responses to pain, parent and child symptoms of anxiety and depression, and specific coping strategies have all been associated with outcomes for typically-developing children and adolescents with chronic pain [e.g., (12,(45)(46)(47)(48)]. There is also some disagreement in the literature regarding the validity of the construct of pain catastrophizing as measured through selfreport (49).…”

Section: Discussionmentioning

confidence: 99%

Parental Pain Catastrophizing, Communication Ability, and Post-surgical Pain Outcomes Following Intrathecal Baclofen Implant Surgery for Patients With Cerebral Palsy

Byiers¹,

Roberts²,

Burkitt³

et al. 2022

Front. Pain Res.

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There is strong evidence that psychosocial variables, including pain catastrophizing, influence parental and child ratings of pain, pain expression, and long-term outcomes among children with chronic pain. The role of these factors among children who have communication deficits due to cerebral palsy (CP) and other intellectual and developmental disabilities is currently unclear. In this study, parental pain catastrophizing was assessed before intrathecal baclofen (ITB) pump implantation for spasticity management in 40 children and adolescents with CP, aged 4 to 24 years. Pain was assessed before and after surgery with two methods: a parent-reported pain interference scale, and behavioral pain signs during a standardized range of motion exam. Linear mixed models with clinical/demographic factors and scores from the Pain Catastrophizing Scale for Parents (PCS-P), and child spoken language ability as predictors and the pain variables as the outcomes were implemented. On average, both pain outcomes improved after surgery. Only child spoken language ability predicted change in behavioral reactivity scores, with children with phrase speech showing an increase in reactivity at follow-up compared to pre-surgery levels, on average. A significant interaction between PCS-P scores and spoken language ability on change in pain interference scores over time showed that dyads with children with phrase speech whose parents reported high PCS-P scores reported the least improvement in pain interference at follow-up. Due to the preliminary nature of the study, future work is needed to investigate the parental behaviors that mediate the relationships between parental catastrophizing and pain outcomes in this population.

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Section: Discussionmentioning

confidence: 99%

Parental Pain Catastrophizing, Communication Ability, and Post-surgical Pain Outcomes Following Intrathecal Baclofen Implant Surgery for Patients With Cerebral Palsy

Byiers¹,

Roberts²,

Burkitt³

et al. 2022

Front. Pain Res.

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Section: Methodsmentioning

confidence: 99%

“…This study is part of the Child Pain In Context research project. Two publications are available from this project, one focused on the role of parental instructions on the relationship between parental psychological flexibility and adolescent pain-related behavior 7 and the second one explored potential antecedents and consequences of painrelated behavior in adolescents. 6 Participants were considered eligible for the study if they (1) were between 11 and 17 years, (2) reported persistent or recurrent pain for 3 months or longer, (3) had internet access at home or on an accessible smartphone, (4) did not have significant cognitive impairments (eg, intellectual disability and severe brain injury), (5) did not report severe psychiatric conditions, and (6) had a primary caregiver who was also willing to participate.…”

Section: Participantsmentioning

confidence: 99%

Association of parental and adolescent emotion-related factors with adolescent chronic pain behaviors

Koechlin

Beeckman

Meier

et al. 2021

Pain

Self Cite

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Chronic pain is a prevalent condition in youth, and the pain experience is strongly influenced by emotional processes. Studying emotion variability and regulation (ER) may help better understand pain behavior. As the development of emotion-related abilities predominantly takes place in the family context, examining ER within parent-adolescent dyads is important. We set out to test the association of parent and adolescent ER and adolescent emotional variability with adolescent pain behavior (ie, pain interference, activity avoidance, and activity engagement). A sample of 56 adolescents (M age 5 14.5, 85.7% women) with chronic pain and one of their parents (92.9% mothers) participated in this study. Adolescents completed baseline measures of average pain intensity, ER, and mean positive and negative affect. Furthermore, adolescents completed an electronic diary for 14 consecutive days, reporting on emotional state, activity avoidance, activity engagement, and pain interference. Parents completed measures of ER and their own history of pain. We performed a variable selection procedure, the least absolute shrinkage and selection operator method, to determine important predictors of adolescent pain behavior. Adolescent high positive affect was associated with more activity engagement, less pain interference, and less activity avoidance, indicating that positive affect might enhance the willingness to engage in activities in the presence of pain. Adolescent ER strategy emotional reappraisal and parents' own history of pain were predictors of less activity engagement. Parent ER was not related to adolescent ER. In conclusion, our results highlight the potential of enhancing positive affect as an intervention target for chronic pain.

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“…This happens especially in children and adolescents with chronic illnesses, who record vital signs or fill in numerical scales that enable clinicians to constantly monitor the course of the disease when patients are at home. Examples are the reports of pain scales in children with cancer, the bladder diary in children with enuresis, the glycemic monitoring of diabetic children, the diary of sleep disorders and seizure monitoring in children with epilepsy (Beeckman et al, 2019;Fuentes et al, 2019;Pellegrin et al, 2019;Schoch et al, 2019;Seckold et al, 2019). In some studies, data recording is entrusted to parents or more generally to the caregiver, especially in the case of particularly small children or highly disabling diseases.…”

Section: Introductionmentioning

confidence: 99%

Narrative Diaries in Pediatrics: A Scoping Review

Sansone

Dall’Oglio

Gesualdo

et al. 2021

Journal of Pediatric Nursing

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Health diaries with both clinical and narrative elements have been widely used in pediatrics to study children's and families' experiences of illness and coping strategies. The objective of this study is to obtain a synthesis of the literature about narrative health diaries using the PRISMA extension for scoping reviews.Eligibility criteria: Sources were limited to: English language; narrative diaries; children/adolescents and/or parents/caregivers. Sample: The following databases were searched: PubMed, Embase and CINAHL with no time limits. Results: Among 36 articles included the most common context where a diary was implemented was the home (61%), the hospital (17%) and the school (14%). The most common diarist is the child or adolescent (50%). Paper diary was the most common type (53%), followed by the video diary (19%), the e-diary (8%) or the audio diary (8%). None of the studies explored the impact of the use of diaries on patient outcomes. Conclusions: The narrative health diary is used to report patient experiences of illness or common life from the point of view of the child, adolescent or other family members. The diversity of the diaries found shows how the narrative diary may be 'adapted' to different settings and pediatric populations. Implications: The narrative diary is a relevant tool for the exploration of children's and adolescents' experiences of illness and common life. Studies are still needed to describe the impact of narrative diaries keeping on children's health outcomes.

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Investigating How Parental Instructions and Protective Responses Mediate the Relationship Between Parental Psychological Flexibility and Pain-Related Behavior in Adolescents With Chronic Pain: A Daily Diary Study

Cited by 12 publications

References 75 publications

Parental Pain Catastrophizing, Communication Ability, and Post-surgical Pain Outcomes Following Intrathecal Baclofen Implant Surgery for Patients With Cerebral Palsy

Parental Pain Catastrophizing, Communication Ability, and Post-surgical Pain Outcomes Following Intrathecal Baclofen Implant Surgery for Patients With Cerebral Palsy

Association of parental and adolescent emotion-related factors with adolescent chronic pain behaviors

Narrative Diaries in Pediatrics: A Scoping Review

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