Abstract:Background: Early 2014, Kaiser Permanente decided to adopt an innovative model for network-based allied healthcare for persons with Parkinson's disease (PD), based on the principles of the Dutch ParkinsonNet. Objective: We present the interventions that were performed to implement this method at Kaiser Permanente and we show the first outcomes based on these interventions. Methods: In this study, 57 physical therapists, 18 speech therapists and 20 occupational therapists, as well as 13 medical centers across t… Show more
“…We included 48 records in the qualitative review, from which 37 studies met the inclusion and exclusion criteria. The study characteristics of 8 randomized, controlled trials (RCTs) included in the quantitative meta‐analysis and 19 other experimental studies included in the systematic review are presented in Table . The remaining 10 articles included in our systematic review were nonexperimental (ie, review articles or descriptions of care models) and are detailed separately in Supplementary Table 1 …”
Section: Resultsmentioning
confidence: 99%
“…2 for geographical map), although large parts of the world remained underrepresented. Table presents the characteristics and results of all studies, including the RCTs included in the meta‐analysis, as well as other studies included in the systematic review (nonrandomized, controlled trials, pretest/posttest designs, observational cohort studies, and retrospective chart reviews) . In the online supplementary materials, Supplementary Table 1 presents articles with detailed descriptions of proposed care models and other related reviews of care models specific to integrated care in PD .…”
Section: Resultsmentioning
confidence: 99%
“…The majority of care models incorporated elements from 2 broad themes with overlapping features. Many studies (n = 26) focused on the process of care coordination including medical and surgical management, consultations, and allied health care . The other major theme was delivery of multidisciplinary rehabilitation in various settings (n = 11) .…”
Section: Resultsmentioning
confidence: 99%
“…The other major theme was delivery of multidisciplinary rehabilitation in various settings (n = 11) . Among the care coordination models, 24 were primarily based in the outpatient setting with or without care coverage extending to home or community . Two models were specifically tailored for perioperative evaluation of patients for deep brain stimulation, and another targeted neuropsychiatric symptoms in a comprehensive manner .…”
“…We included 48 records in the qualitative review, from which 37 studies met the inclusion and exclusion criteria. The study characteristics of 8 randomized, controlled trials (RCTs) included in the quantitative meta‐analysis and 19 other experimental studies included in the systematic review are presented in Table . The remaining 10 articles included in our systematic review were nonexperimental (ie, review articles or descriptions of care models) and are detailed separately in Supplementary Table 1 …”
Section: Resultsmentioning
confidence: 99%
“…2 for geographical map), although large parts of the world remained underrepresented. Table presents the characteristics and results of all studies, including the RCTs included in the meta‐analysis, as well as other studies included in the systematic review (nonrandomized, controlled trials, pretest/posttest designs, observational cohort studies, and retrospective chart reviews) . In the online supplementary materials, Supplementary Table 1 presents articles with detailed descriptions of proposed care models and other related reviews of care models specific to integrated care in PD .…”
Section: Resultsmentioning
confidence: 99%
“…The majority of care models incorporated elements from 2 broad themes with overlapping features. Many studies (n = 26) focused on the process of care coordination including medical and surgical management, consultations, and allied health care . The other major theme was delivery of multidisciplinary rehabilitation in various settings (n = 11) .…”
Section: Resultsmentioning
confidence: 99%
“…The other major theme was delivery of multidisciplinary rehabilitation in various settings (n = 11) . Among the care coordination models, 24 were primarily based in the outpatient setting with or without care coverage extending to home or community . Two models were specifically tailored for perioperative evaluation of patients for deep brain stimulation, and another targeted neuropsychiatric symptoms in a comprehensive manner .…”
“…We were encouraged to note that specialised allied health-care programmes, which were originally developed in the Netherlands, could be transferred successfully to a different health-care setting in another country with modifications dictated by the regional availability of resources. 2 …”
Introduction
Living a life with Parkinson's Disease (PD) is a challenge for both patients and spouses. Patients have to cope with an increasing limitation in all domains of their daily life and spouses need to adjust to these changes. The focus of this study is on exploring, both quantitatively and qualitatively, the psychosocial needs of both patients with PD and spouses.
Methods
An online survey with 11 themes, related to dealing with a chronic disease, was sent by an email to patients and spouses and two focus groups were planned, one with patients and one with spouses. Data from the survey were quantitatively analysed and audiotapes from the focus groups were transcribed verbatim and combined with notes.
Results
Percentages of relevance are higher than 50% for all the themes, whereas those of the need for and received support are all lower than 50%. Focus groups revealed a negative image of psychosocial therapy and associations with failure, but also difficulties in signalling problems by professionals, little attention for spouses and limited access to specialized psychosocial care.
Conclusion
Based on this exploration, there appears to be a threshold to ask for psychosocial support on the one hand and to find the right professional on the other hand. A permanent position for psychosocial health professionals in the multidisciplinary Parkinson teams and networks may close the gap between ‘supply and demand’.
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