Interviewing People with Intellectual Disabilities

The experience of patients with ABI and their families during the hospital stay: A systematic review of qualitative literature

“…However, depending on the severity of patient’s injury, patients may still be able to share their experience. Researchers’ and healthcare providers’ negative perceptions about the abilities of people with cognitive impairments to meaningfully participating in research have been documented in the literature, such as with people with intellectual disabilities or dementia [53,54]. Yet, research has shown that strategies can be used to facilitate effective interviewing with people with cognitive impairments, such as using shorter questions with active verbs and avoiding abstract concepts [54].…”

Health Surveillance and People with Intellectual Disabilities

“…Nevertheless, this body of research has highlighted the variable and at times very poor degree of agreement between people with intellectual disabilities and carers, especially for reports of internal states and feelings (Cummins, 2002;Perry, 2004;Stancliffe, 2000). For example, Turk and colleagues compared self-report and carers' responses to a simple health checklist for 59 adults with intellectual disabilities (Turk, Khattran, Kerry, Corney, & Painter, 2012).…”

Adaptive Behavior Assessment and the Diagnosis of Mental Retardation in Capital Cases

“…One study comparing self-reported adaptive behavior with respondent ratings showed that individuals with mental retardation showed good agreement with the respondent's ratings of the individual's adaptive behavior (Voelker et al, 1990). Research has also shown that individuals with mental retardation are particularly susceptible to acquiescence and leading questions (Everington & Fulero, 1999;Finlay & Lyons, 2002;Perry, 2004). Individuals with mental retardation often respond in the affirmative to questions they don't fully understand or might not be sure of the correct answer (Finlay & Lyons, 2002).…”