Interventions to support family caregivers of people living with dementia in high, middle and low-income countries in Asia: a scoping review

Hinton, Ladson; Tran, Duyen; Nguyen, Thi Thuy Trang; Ho, Janis; Gitlin, Laura N.

doi:10.1136/bmjgh-2019-001830

Cited by 35 publications

(38 citation statements)

References 44 publications

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“…This study is to the best of our knowledge, the first in India to evaluate the feasibility and effectiveness of an online training and support program for caregivers of persons with dementia. The study addresses the need for focus on the practicality and acceptability of caregiver interventions in LMIC 7,46 . Of the 151 caregivers who were randomized, 55 caregivers completed the pre‐ and postmeasurement measurements (T0 and T1): 29 caregivers in the experimental and 26 in the comparison condition.…”

Section: Discussionmentioning

confidence: 99%

Feasibility and preliminary effectiveness of an online training and support program for caregivers of people with dementia in India: a randomized controlled trial

Baruah

Varghese

Loganathan

et al. 2021

Int J Geriat Psychiatry

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Objectives Internet‐based interventions involving elements of cognitive behavior therapy, psychoeducation, relaxation and skills training for caregivers of people with dementia have been found to be promising in Western countries. Given these outcomes, the adapted version of a multi‐component online caregiver skills training and support program of the World Health Organization, called iSupport, was tested for feasibility and preliminary effectiveness in India. Methods One hundred fifty‐one caregivers of family members with a diagnosis of Alzheimer's disease or dementia were randomized to either the intervention arm (iSupport; n = 74) or to the control group (an education‐only e‐book program; n = 77). Participants were assessed using self‐rated measures of depression and perceived burden, which were the primary outcome measures, at baseline and 3‐month follow‐up. Person‐centered attitude, self‐efficacy, mastery and self‐rated health were also assessed. Results Fifty‐five caregivers (29 in the iSupport group and 26 in the control condition) completed the study. The recruitment and retention rate of the study were 44.67% and 36.42% respectively. No significant differences were found between the two groups at 3‐month follow‐up on the primary outcomes. Among the secondary outcomes, significant improvement was only seen in caregivers' person‐centered attitude towards persons with dementia in the iSupport group (t = 2.228; p < 0.05). Conclusions Despite efforts to recruit and retain participants to the online program, this study had a low recruitment and retention rate, which require closer attention and indicates a need for further adaptations of the Indian version of the iSupport program to improve its acceptability and accessibility. The lessons learned from this study will guide the further development of caregiver training and support interventions in India. The trial was registered with the Clinical Trials Registry‐India (Trial Registration No. CTRI/2017/02/007876).

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Section: Discussionmentioning

confidence: 99%

Feasibility and preliminary effectiveness of an online training and support program for caregivers of people with dementia in India: a randomized controlled trial

Baruah

Varghese

Loganathan

et al. 2021

Int J Geriat Psychiatry

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“…It is the so-called "the last year of life" [43]. Its costs of intensive, palliative, and home-based medical care, requiring nursing staff, due to the gradual disappearance of family caregiving across Asia [44], generates costs that are, on average, equal to the entire life-time medical consumption of that individual citizen.…”

Section: Discussionmentioning

confidence: 99%

Real GDP growth rates and healthcare spending – comparison between the G7 and the EM7 countries

et al. 2020

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Background: Accelerated globalisation has substantially contributed to the rise of emerging markets worldwide. The G7 and Emerging Markets Seven (EM7) behaved in significantly different macroeconomic ways before, during, and after the 2008 Global Crisis. Average real GDP growth rates remained substantially higher among the EM7, while unemployment rates changed their patterns after the crisis. Since 2017, however, approximately one half of the worldwide economic growth is attributable to the EM7, and only a quarter to the G7. This paper aims to analyse the association between the health spending and real GDP growth in the G7 and the EM7 countries. Results: In terms of GDP growth, the EM7 exhibited a higher degree of resilience during the 2008 crisis, compared to the G7. Unemployment in the G7 nations was rising significantly, compared to pre-recession levels, but, in the EM7, it remained traditionally high. In the G7, the austerity (measured as a percentage of GDP) significantly decreased the public health expenditure, even more so than in the EM7. Out-of-pocket health expenditure grew at a far more concerning pace in the EM7 compared to the G7 during the crisis, exposing the vulnerability of households living close to the poverty line. Regression analysis demonstrated that, in the G7, real GDP growth had a positive impact on out-of-pocket expenditure, measured as a percentage of current health expenditure, expressed as a percentage of GDP (CHE). In the EM7, it negatively affected CHE, CHE per capita, and out-of-pocket expenditure per capita. Conclusion: The EM7 countries demonstrated stronger endurance, withstanding the consequences of the crisis as compared to the G7 economies. Evidence of this was most visible in real growth and unemployment rates, before, during and after the crisis. It influenced health spending patterns in both groups, although they tended to diverge instead of converge in several important areas.

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“…There is an abundance of literature based on stress coping paradigms, because of the scientific evidence that family caregivers of people with dementia experience stress, overload, depression, and a variety of changes in physical health as a response to their role as caregiver. Duggleby et al 12 point out that among the changes in physical health are the decrease in immune system response and increase in risk of cardiovascular disease, hypertension, and insomnia. C9 (Sister) points out, "I don't think she is depressed, but I am."…”

Section: ª) Self-perception Of Physical and Emotional Impairmentmentioning

confidence: 99%

As demandas de cuidado e autocuidado na perspectiva do cuidador familiar da pessoa idosa com demência

Mattos

Oliveira

Novelli

2020

Rev. bras. geriatr. gerontol.

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Resumo Objetivo Conhecer as demandas de cuidado e autocuidado de cuidadores familiares de pessoas idosas com demência, a partir de rodas de conversa. Método Em 2017, foram realizados dois grupos com seis rodas de conversa cada, com as seguintes questões norteadoras: 1º)“Quem sou eu? De quem eu cuido?”; 2º) “O que é demência para mim?”; 3º)“Qual o meu papel diante das atividades de cuidado diário?”; 4º)“Quais os meus pensamentos ou emoções desencadeados pelo cuidar?” 5º) “Eu consigo ver algo de positivo nessa experiência de cuidar?”; e por último 6º) “Como eu cuido ou posso cuidar de mim?”. Os critérios de inclusão foram: ser cuidador familiar de idoso com demência, exercer esse papel no mínimo há 6 meses e ter disponibilidade para participar dos encontros. As rodas ocorreram quinzenalmente, com 1 hora e meia de duração, tendo uma terapeuta ocupacional como facilitadora. Todas foram gravadas, transcritas e posteriormente analisadas por meio da análise de conteúdo temática. Resultados No total, participaram 15 cuidadores familiares. A partir da análise, emergiram 09 categorias de demandas de cuidado e autocuidado: autopercepção de comprometimento físico e emocional; a busca por suporte; sobrecarga e estresse do cuidador; o que eu aprendi com essa experiência; a mistura de sentimentos; as perdas; valorização dos aspectos simples do cotidiano; já cuido de mim; e eu preciso cuidar de mim. Conclusão A identificação dessas demandas de cuidado e de autocuidado de cuidadores familiares de pessoas idosas com demência pode sensibilizar e conscientizar os profissionais de saúde sobre a importância de considerar esses aspectos na proposição de intervenções com foco nos cuidadores.

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Interventions to support family caregivers of people living with dementia in high, middle and low-income countries in Asia: a scoping review

Cited by 35 publications

References 44 publications

Feasibility and preliminary effectiveness of an online training and support program for caregivers of people with dementia in India: a randomized controlled trial

Feasibility and preliminary effectiveness of an online training and support program for caregivers of people with dementia in India: a randomized controlled trial

Real GDP growth rates and healthcare spending – comparison between the G7 and the EM7 countries

As demandas de cuidado e autocuidado na perspectiva do cuidador familiar da pessoa idosa com demência

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