Interventions to improve Quality of Life in Patients with Major Thalassemia: A Systematic Review

Sargolzaei, Mohammad Sadegh; Jahantigh, Farnaz; Allahyari, Jasem

doi:10.29252/payesh.19.6.723

Payesh

2020

DOI: 10.29252/payesh.19.6.723

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Interventions to improve Quality of Life in Patients with Major Thalassemia: A Systematic Review

Mohammad Sadegh Sargolzaei

Farnaz Jahantigh

Jasem Allahyari

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Cited by 3 publications

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“… 1 This chronic disease has been reported in more than 60 countries around the world. 2 According to the statistics reported by the Thalassaemia International Federation, around 200,000 patients with thalassaemia major (TM) are currently under treatment worldwide. 3 Thalassaemia has a higher prevalence in South and Southeast Asia, the Middle East and Mediterranean and Central African countries.…”

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confidence: 99%

Evaluating the Effect of Peer Education on the Hope of Patients with Thalassaemia Major

Seyedoshohadaee¹,

Khachian²,

Haghani³

et al. 2022

Sultan Qaboos Univ Med J

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Objective: Thalassemia major (TM) is one of the most common chronic genetic disorders in today’s world. The psychological impacts of this disease can affect patients’ hopes. Considering the positive role and importance of suitable educational methods, the aim of this study was to determine the effect of peer education on the hope of patients with TM. Methods: This was a quasi-experimental single-group study performed on 50 patients with TM undergoing treatment in Zabol in 2020. Patients were recruited by the continuous sampling method. Data collection tools included a demographic questionnaire and the Snyder’s Hope Scale. Patients were educated in groups by eligible peers in 2 sessions each for 60 minutes. Hope was measured before and one month after the educational sessions. Data was analyzed by SPSS software version 20. Results: The mean age of the participants was 24.5 (4.24) years. At the pretest, the mean score of total hope was 26.72 ± 5.82, which increased to 28.21 ± 5.11 at the posttest (P = 0.028). The mean hope score of patients in the pathway thinking dimension (P = 0.01), significantly increased after peer education. Despite an increase in the score of the agency thinking dimension, this was not statistically significant (P = 0.297). Conclusion: The findings of this study indicated that peer education can improve hope in patients with TM. So, considering that this educational method is easy, cheap, and experienced-based, it can be used in combination with other health care measures to improve TM patients’ hope. Keywords: Peer Group; Hope; Thalassemia Major; Beta-Thalassemia; Patient Education.

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confidence: 99%

Evaluating the Effect of Peer Education on the Hope of Patients with Thalassaemia Major

Seyedoshohadaee¹,

Khachian²,

Haghani³

et al. 2022

Sultan Qaboos Univ Med J

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“… 2 Around 200,000 TM patients are currently seeking treatment worldwide. 3 The prevalence of TM is particularly high in the central Asia, Middle East, India, southern China, Mediterranean countries and central Africa. 4 Iran is also among the countries with a high prevalence of TM, with more than 26,000 registered patients.…”

mentioning

confidence: 99%

The Effect of Happiness Training on Psychological Well-Being in Patients with Thalassaemia Major

Sargolzaei

Shirsavar

Allahyari

et al. 2022

Sultan Qaboos Univ Med J

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Objectives: Thalassemia major (TM) is a chronic hematological disease that can have deep effects on patients’ mental health and psychological well-being. So, the present study was conducted to determine the effects of happiness training on the psychological well-being of TM patients. Methods: This quasi-experimental study with a pre/post-test design was performed on 52 patients with TM in Zabol city (Iran) from August to December 2020. The patients were randomly categorized into experimental and control groups. In the experimental group, happiness training was performed in eight sessions, each for 60 minutes. The control group received routine care. The data collection tool was the Ryff's Scale of Psychological Well-being (RSPWB). Data were analyzed by SPSS 16 statistical software using descriptive (mean and standard deviation) and inferential (paired and independent t-test) statistics. Results: Regarding the psychological well-being score at the pre-test stage, there was no statistically significant difference between the intervention (74.92 ± 6.36) and control (74.57 ± 5.83) groups (p = 0.83). After the intervention; however, a statistically significant difference was observed between the two groups in terms of psychological well-being (p <0.001). Also, a statistically significant difference was seen comparing the psychological well-being score between the pre- and post-intervention phases in the experimental (p = 0.01) but not control (p = 0.12) group. Conclusion: The results of this study showed that happiness training improved TM patients’ psychological well-being. Therefore, this type of training can be used as an appropriate educational strategy to improve psychological well-being in these patients.Keywords: Happiness; Education; Mental Health; Thalassemia.

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The Effect of Peer Education on the Anxiety of Patients with Thalassemia Major: A Quasi-experimental Study

سرگلزائی¹,

خاچیان²,

سیدالشهدایی³

et al. 2021

IJN

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Background & Aims: Thalassemia major (TM) is one of the most common chronic genetic disorders in today's world. The number of patients with thalassemia in the world is estimated at 240 million and is reported in 60 countries. Iran is located in the thalassemia belt and has about 26,000 patients with thalassemia major. Patients with chronic diseases such as thalassemia have to undergo continuous medical treatment throughout their lives and their survival depends on these treatments. The treatment protocol affects different aspects of these patients' lives and can make them anxious. Therefore, any measures taken to reduce the anxiety of these patients are very important. Educational intervention can be a method for improving the quality of life in patients with chronic diseases. Nowadays, the educational methods that engage learners in their learning process have acquired attention. One of the methods to educate patients is peer education which has been effective in promoting their health status. In this educational approach, patients share their experiences about their common disease. Having worked in the thalassemia ward, the researcher realized the importance of peer education as a scientific and codified method for efficient education of these patients. Moreover, considering the clinical observation of psychological problems in patients with thalassemia major and also the lack of continuous and reliable research in this field, the present study aimed to evaluate the effect of peer education on the anxiety experienced by patients with thalassemia major. Materials & Methods: This one-group, quasi-experimental study was conducted at Imam Khomeini Hospital in Zabol between March and July 2020 on 50 participants, who were selected via continuous sampling from the patients with the thalassemia major based on the inclusion and exclusion criteria of the study. Data were collected using a demographic questionnaire exploring participants' age, sex, residency, occupation, level of education, economic status, parents' familial relationship, the frequency of blood transfusions per month, another family member with the same disease, the type of iron-chelating agent, regular drug consumption, and history of other diseases. In addition, the valid and reliable Beck Anxiety Inventory (BAI) was used to measure anxiety. The study began with the selection of eligible peers educators based on inclusion criteria. Finally, 2 patients with thalassemia major (a man and a woman) who obtained higher scores were selected as peer educators, who were then trained by the researcher in 3 sixty-minute educational sessions within one week. The educational content included explanations about research objectives, the importance and benefits of peer education, educational concepts, communication skills including attention to verbal and non-verbal behaviors, active listening skills, and anxiety control concepts. The educational content was taught through an interactive lecture using audio-visual aids, and question and answer. Based on the training g...

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Interventions to improve Quality of Life in Patients with Major Thalassemia: A Systematic Review

Cited by 3 publications

References 24 publications

Evaluating the Effect of Peer Education on the Hope of Patients with Thalassaemia Major

Evaluating the Effect of Peer Education on the Hope of Patients with Thalassaemia Major

The Effect of Happiness Training on Psychological Well-Being in Patients with Thalassaemia Major

The Effect of Peer Education on the Anxiety of Patients with Thalassemia Major: A Quasi-experimental Study

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