Interventions for increasing solid organ donor registration

Li, Alvin H.; Lo, Marcus; Crawshaw, Jacob; Dunnett, Alexie J.; Naylor, Kyla L.; Garg, Amit X.; Presseau, Justin

doi:10.1002/14651858.cd010829.pub2

Cited by 10 publications

(10 citation statements)

References 122 publications

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“…Ultimately, the structure of how the donation question is asked (and how often) can have a significant impact on the effectiveness of the registry. 45 For this reason, the design of a donor registry and alignment with the legal architecture will achieve the best outcomes.…”

Section: Intended Audience and Applicationmentioning

confidence: 99%

Organ and Tissue Donation Consent Model and Intent to Donate Registries: Recommendations From an International Consensus Forum

Walton

Pérez‐Blanco

Beed

et al. 2023

Transplantation Direct

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Background. Consent model and intent to donate registries are often the most public facing aspects of an organ and tissue donation and transplantation (OTDT) system. This article describes the output of an international consensus forum designed to give guidance to stakeholders considering reform of these aspects of their system. Methods. This Forum was initiated by Transplant Québec and cohosted by the Canadian Donation and Transplantation Program partnered with multiple national and international donation and transplantation organizations. This article describes the output of the consent and registries domain working group, which is 1 of 7 domains from this Forum. The domain working group members included administrative, clinical, and academic experts in deceased donation consent models in addition to 2 patient, family, and donor partners. Topic identification and recommendation consensus was completed over a series of virtual meetings from March to September 2021. Consensus was achieved by applying the nominal group technique informed by literature reviews performed by working group members. Results. Eleven recommendations were generated and divided into 3 topic groupings: consent model, intent to donate registry structure, and consent model change management. The recommendations emphasized the need to adapt all 3 elements to the legal, societal, and economic realities of the jurisdiction of the OTDT system. The recommendations stress the importance of consistency within the system to ensure that societal values such as autonomy and social cohesion are applied through all levels of the consent process. Conclusions. We did not recommend one consent model as universally superior to others, although considerations of factors that contribute to the successful deployment of consent models were discussed in detail. We also include recommendations on how to navigate changes in the consent model in a way that preserves an OTDT system’s most valuable resource: public trust.

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Section: Intended Audience and Applicationmentioning

confidence: 99%

Organ and Tissue Donation Consent Model and Intent to Donate Registries: Recommendations From an International Consensus Forum

Walton

Pérez‐Blanco

Beed

et al. 2023

Transplantation Direct

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“…A referral occurs sufficiently early to ensure that there is time to facilitate donation, which includes obtaining consent, undertaking donor assessment, and coordinating the logistics of donation. 22,44-46 In the absence of an absolute medical contraindication for donation (eg, metastatic cancer), referral leads to the approach to the family of the patient who is a potential donor, as described in detail below.…”

Section: Recommendationsmentioning

confidence: 99%

Organ Donation Organization Architecture: Recommendations From an International Consensus Forum

Williment

Beaulieu

Clarkson

et al. 2023

Transplantation Direct

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Background. This report contains recommendations from 1 of 7 domains of the International Donation and Transplantation Legislative and Policy Forum (the Forum). The purpose is to provide expert guidance on the structure and function of Organ and Tissue Donation and Transplantation (OTDT) systems. The intended audience is OTDT stakeholders working to establish or improve existing systems. Methods. The Forum was initiated by Transplant Québec and co-hosted by the Canadian Donation and Transplantation Program partnered with multiple national and international donation and transplantation organizations. This domain group included administrative, clinical, and academic experts in OTDT systems and 3 patient, family, and donor partners. We identified topic areas and recommendations through consensus, using the nominal group technique. Selected topics were informed by narrative literature reviews and vetted by the Forum’s scientific committee. We presented these recommendations publicly, with delegate feedback being incorporated into the final report. Results. This report has 33 recommendations grouped into 10 topic areas. Topic areas include the need for public and professional education, processes to assure timely referral of patients who are potential donors, and processes to ensure that standards are properly enforced. Conclusions. The recommendations encompass the multiple roles organ donation organizations play in the donation and transplantation process. We recognize the diversity of local conditions but believe that they could be adapted and applied by organ donation organizations across the world to accomplish their fundamental objectives of assuring that everyone who desires to become an organ donor is given that opportunity in a safe, equitable, and transparent manner.

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“…Given the importance of identifying the active ingredients of deceased organ donation registration interventions, we conducted a secondary content analysis of randomized trials from a Cochrane systematic review (Li et al, 2021). Our objectives were: (1) to identify which BCTs are reported in randomized trials of interventions to promote deceased organ donation registration; (2) to explore whether individual or combinations of BCTs were associated with intervention effect size.…”

Section: Objectivesmentioning

confidence: 99%

“…This prompted the undertaking of a Cochrane systematic review to identify randomized trials of interventions to increase deceased organ donation registration (Li et al, 2021). A total of 46 randomized trials were included in the review, and the target outcomes were registration intention (e.g., do you intend to register as a donor?)…”

Section: Introductionmentioning

confidence: 99%

Identifying behaviour change techniques within randomized trials of interventions promoting deceased organ donation registration

Crawshaw

Garg

et al. 2021

British J Health Psychol

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Objective. Increasing deceased organ donation registration may increase the number of available organs for transplant to help save lives. This study aimed to identify which behaviour change techniques (BCTs; or 'active ingredients') are reported within randomized trials of interventions promoting deceased organ donation registration and of those, which are associated with a larger intervention effect.Methods. We conducted a secondary analysis of 45 trials included in a Cochrane systematic review of deceased organ donation registration interventions. Two researchers used the BCT Taxonomy v1 to independently code intervention content in all trial groups. Outcome data were pooled and we used meta-regression to explore associations between individual and combinations of recurring BCTs and effect on registration intention and/or registration behaviour.Results. A total of 27 different BCTs (mean = 3.7, range = 1-9) were identified in intervention groups across the 45 trials. The five most common BCTs were: 'Information about health consequences' (71%); 'Instruction on how to perform the behaviour' (47%); 'Salience of consequences' (40%); 'Adding objects to the environment' (28%); and 'Credible source' (27%). Comparator groups in 20/45 trials also included identifiable BCTs (n = 12, mean = 3.1, range = 1-7). Meta-regression revealed that a combination

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Interventions for increasing solid organ donor registration

Cited by 10 publications

References 122 publications

Organ and Tissue Donation Consent Model and Intent to Donate Registries: Recommendations From an International Consensus Forum

Organ and Tissue Donation Consent Model and Intent to Donate Registries: Recommendations From an International Consensus Forum

Organ Donation Organization Architecture: Recommendations From an International Consensus Forum

Identifying behaviour change techniques within randomized trials of interventions promoting deceased organ donation registration

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