Intervention for individuals with fetal alcohol spectrum disorders: Treatment approaches and case management

Paley, Blair; O’Connor, Mary J.

doi:10.1002/ddrr.67

Cited by 93 publications

(71 citation statements)

References 81 publications

(77 reference statements)

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“…Therefore, FASD constitutes a serious health problem in the United States and worldwide. Notwithstanding the seriousness of the problem, there is a scarcity of empirically supported interventions for FASDs (Kalberg and Buckley 2007;Paley and O'Connor 2009). …”

Section: Introductionmentioning

confidence: 99%

From Research to Practice: An Integrative Framework for the Development of Interventions for Children with Fetal Alcohol Spectrum Disorders

Kodituwakku

2011

Neuropsychol Rev

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Since fetal alcohol syndrome was first described over 35 years ago, considerable progress has been made in the delineation of the neurocognitive profile in children with prenatal alcohol exposure. Preclinical investigators have made impressive strides in elucidating the mechanisms of alcohol teratogenesis and in testing the effectiveness of pharmacological agents and dietary supplementation in the amelioration of alcohol-induced deficits. Despite these advances, only limited progress has been made in the development of evidence-based comprehensive interventions for functional impairment in alcohol-exposed children. Having performed a search in PubMed and PsycINFO using key words, interventions, treatment, fetal alcohol syndrome, prenatal alcohol exposure, and fetal alcohol spectrum disorders, we found only 12 papers on empirically-based interventions. Only two of these interventions had been replicated and none met the criteria of "well-established," as defined by Chambless and Hollon (Journal of Consulting and Clinical Psychology 66(1):7-18, 1998). There has been only limited cross-fertilization of ideas between preclinical and clinical research with regard to the development of interventions. Therefore, we propose a framework that allows integrating data from preclinical and clinical investigations to develop comprehensive intervention programs for children with fetal alcohol spectrum disorders. This framework underscores the importance of multi-level evaluations and interventions.

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Section: Introductionmentioning

confidence: 99%

From Research to Practice: An Integrative Framework for the Development of Interventions for Children with Fetal Alcohol Spectrum Disorders

Kodituwakku

2011

Neuropsychol Rev

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“…We know that infants who were exposed to any level of alcohol inutero are at increased risk for alcohol related damage including characteristic facial features, congenital heart defects, and mental and behavioral abnormalities [2,3].…”

Section: Discussionmentioning

confidence: 99%

Accidental Ethanol Ingestion in a 32 Day Old Infant

Sankhla¹,

Schneider²,

Ghosh³

2017

J Clinic Toxicol

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Alcohol exposure can occur in all age groups but occurs much less commonly in infants. Prior studies have shown that no level of alcohol exposure is safe, and can affect the brain and other areas of development. We report a 32 day old previously healthy male who presented to an outside hospital early morning for "not acting normal". Earlier that morning, mom had fed him 3 ounces of formula mistakenly prepared with a clear liquid thought to be water, but later confirmed to be gin. The baby was mildly agitated on arrival, and the blood alcohol level 4 hrs postingestion was 230 mg/dl. This is one of the youngest documented cases of alcohol ingestion, and was remarkable for having a mild course with normal vital signs and electrolytes, and a non-focal physical exam. This case highlights the importance of having a high level of suspicion for alcohol exposure and a low threshold for checking blood ethanol levels in infants presenting with altered mental status, as there may be no hallmark signs, symptoms, or electrolyte abnormalities. Keywords: Ethanol; Bayley scales; Intoxication CaseWe report a case of a 32 day old previously healthy male who presented to an outside hospital in the early morning with chief complaint of "not acting normal". The mother reported that she woke up at 4am and prepared a 4 ounce bottle of formula with Enfamil and water for the baby, and the baby drank 3 ounces of the formula. Approximately an hour later, she observed that the baby was not acting right [1]. The baby was having excessive oral secretions, shaking his arms up and down, and was agitated. The father later recalled that he had left clear undiluted gin that he had shared with his friend earlier that evening in a disposable water bottle on the nightstand next to the formula powder. Waking up in the middle of the night and mistaking it for water, the mother then used the alcohol while mixing the patient's formula. The patient was immediately taken to an outside hospital.On arrival, the patient was afebrile with a heart rate of 150, respiratory rate of 28, temperature of 97.7, and oxygen saturation of 99%. Initial exam revealed a mildly agitated, somewhat somnolent male who appeared well hydrated. No obvious craniofacial abnormalities suggestive of Fetal Alcohol Syndrome. Head was atraumatic with a flat anterior fontanelle, and pupils were bilaterally equal, round, and reactive to light. Respirations were nonlabored and lungs were clear to auscultation bilaterally. Cardiac and abdominal exams were normal. Skin was warm and well perfused without bruises or lesions. Review of other systems yielded negative results. The mother denied any alcohol use during pregnancy or post-partum. Initial labs were drawn 3.5 hrs after ingestion of alcohol. His serum electrolytes, blood urea nitrogen, creatinine, bicarbonate, and glucose were within reference ranges. Blood alcohol level at 4 hrs post ingestion was 230 mg/dl and at 5 hrs 15 minutes was 211 mg/dl. Our institution was contacted as a tertiary care referral center and he was subseque...

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“…They described a hope for their youth to achieve their fullest potential, to be included, and to feel good about themselves. The literature, in contrast, placed emphasis on deficits (e.g., Kully-Martens et al 2012) and skill development (e.g., Kalberg and Buckley 2007), potential social and legal problems (e.g., Mela and Luther 2013), and interventions (e.g., Paley and O'connor 2009) for children and youth. While this difference in perspectives can be viewed as inconsistent and potentially in conflict, it also offers an opportunity to view these contrasting views as complementary.…”

Section: Upport Servicesmentioning

confidence: 99%

Caregivers of Youth with a Fetal Alcohol Spectrum Disorder: Hopes for Them as Adults

Brown

Kapasi

Nowicki

et al. 2017

Adv Neurodev Disord

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Caregivers of youth with a fetal alcohol spectrum disorder participated in telephone interviews about their hopes for their youths as adults. Interviews with 16 birth, adoptive, and foster parents, as well as with aunts and grandparents of children over the age of 10 years, were conducted. A total of 54 unique responses were made to the question BWhat do you want for your child as an adult?^. Participants independently grouped all responses into themes. The groupings were analyzed using multidimensional scaling and cluster analysis using the concept system and resulted in four concepts. The concepts included the following: (a) education and employment, (b) positive relationships, (c) community integration, and (d) support services. The main differences between the participants' experiences and the literature centered on different emphases on feelings relative to skills and on strengths relative to deficits.

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Intervention for individuals with fetal alcohol spectrum disorders: Treatment approaches and case management

Cited by 93 publications

References 81 publications

From Research to Practice: An Integrative Framework for the Development of Interventions for Children with Fetal Alcohol Spectrum Disorders

From Research to Practice: An Integrative Framework for the Development of Interventions for Children with Fetal Alcohol Spectrum Disorders

Accidental Ethanol Ingestion in a 32 Day Old Infant

Caregivers of Youth with a Fetal Alcohol Spectrum Disorder: Hopes for Them as Adults

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