Intersecting Health Policy and the Social Determinants of Health in Pediatric Type 1 Diabetes Management and Care

Visekruna, Sanja; Hall, Linda M.; Parry, Monica; Spalding, Karen

doi:10.1016/j.pedn.2017.06.001

Cited by 15 publications

(10 citation statements)

References 38 publications

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“…Participants in this study were selected from four hospitals in Taiwan. The contents of self‐management may be influenced by different health‐care systems (Visekruna, Hall, Parry, & Spalding, ). For example, carrying cards stating an individual is a diabetic is not emphasized in Taiwan because of the convenience of the National Health Care system.…”

Section: Discussionmentioning

confidence: 99%

Psychometric testing of the short‐form Chinese version of the self‐management for adolescents with type 1 diabetes scale

Lee

Chen²,

Wong³

et al. 2018

Research in Nursing & Health

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Self-management among adolescents with type 1 diabetes (T1D) is poorer than in other age groups during childhood. A valid and reliable short-form scale to measure selfmanagement in adolescents with T1D is prudent for enhancing their self-management in clinical settings. We used a cross-sectional design to develop a short-form Chinese version of the Self-Management of Type 1 Diabetes for Adolescents Scale (C-SMOD-A) and test its psychometric characteristics. Two hundred adolescents with T1D were recruited from four hospitals in Taiwan through convenience sampling. Content validity, exploratory factor analysis, and corrected item-total correlations were used to shorten the 52-item C-SMOD-A. Confirmatory factor analysis, criterion-related validity, and reliability testing were used to examine the psychometric characteristics of the short-form C-SMOD-A. Finally, the 23-item C-SMOD-A (C-SMOD-A-23) with five inter-correlated factors was developed. Glycated hemoglobin levels were significantly associated with each subscale of the C-SMOD-A-23 with correlation coefficients ranging from −0.18 to −0.31. The composite reliability and test-retest reliability of the five subscales ranged from 0.70 to 0.88 and from 0.78 to 0.93 respectively. Accordingly, the C-SMOD-A-23 has acceptable validity and reliability to measure five specific domains of self-management for adolescents with T1D. Healthcare providers could use the C-SMOD-A-23 as a clinical reference to assess specific domains of self-management and provide interventions to enhance self-management for adolescents with T1D.

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Section: Discussionmentioning

confidence: 99%

Psychometric testing of the short‐form Chinese version of the self‐management for adolescents with type 1 diabetes scale

Lee

Chen²,

Wong³

et al. 2018

Research in Nursing & Health

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show abstract

“…There are many examples of SLBs in the literature, including judges (Biland & Steinmetz, 2017), police officers (Oberfield, 2012), social workers and other social service agency personnel (Ellis, 2011), public sector hospital personnel (Thomas & Johnson, 1991), physicians (Gaede, 2016), case managers (Swanson & Weissert, 2017), teachers (Hohmann, 2016;Taylor, 2007), and school personnel (Barberis & Buchowicz, 2015;Robert, 2017). The SLB framework has been applied to nurses working in hospitals (Hoyle, 2014), clinical diabetic nurse educators (Visekruna, McGillis Hall, Parry, & Spalding, 2017), and in community or public health settings (Bergen & While, 2005;Hughes & Condon, 2016;Walker & Gilson, 2004). However, the SLB framework has not been applied specifically to the work of school nurses.…”

Section: The Street-level Bureaucracy Theoretical Frameworkmentioning

confidence: 99%

The Double Bind of School Nurses and Policy Implementation: Intersecting theStreet-Level BureaucracyFramework and Teaching Sexual Health Education

Dickson

Brindis²

2019

The Journal of School Nursing

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As described in the Framework for 21st Century School Nursing Practice, school nurses bridge the realities of health and education policy within the school community every day. This role is inclusive of helping teach sexual health education (SHE) to students. We were interested in characterizing how school nurses navigate requirements of health education policy to provide their students with the SHE content that they need. Using data from a larger study, we organized a subset of school nurse data within the street-level bureaucracy framework to better understand the many challenges school nurses face in implementing SHE policy. School nurses’ involvement in SHE policy implementation was congruent with characteristics of the framework. This included using their professional discretion to manage dilemmas, working with inadequate resources, unclear policy expectations, lack of support, and ambiguous policy goals. Trusted relationships with teachers and students helped school nurses with their SHE policy implementation responsibilities.

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“…It is an autoimmune disease characterized by the loss of insulin-producing β cells of the pancreas, leading to an inability to use glucose as fuel, thus requiring life-saving exogenous insulin administration [3]. The management of glucose is challenging because patients must consider a myriad of factors when making diabetes care decisions (eg, insulin administration and glucose checks), such as the amount of carbohydrates consumed, insulin administered, physical activity, stress, illness, hormonal changes that cause natural spikes in glucose (eg, dawn phenomenon), and access to diabetes treatment technologies (eg, continuous glucose monitoring [CGM] and insulin pump) [4][5][6]. This complex web of factors and subsequent management decisions can lead to a significant amount of glucose variability throughout the day, with frequent fluctuations between normal (euglycemia), high (hyperglycemia), and low (hypoglycemia) glucose levels [4].…”

Section: General Introductionmentioning

confidence: 99%

Technological Ecological Momentary Assessment Tools to Study Type 1 Diabetes in Youth: Viewpoint of Methodologies

Ray¹,

McMichael²,

Rivera-Santana³

et al. 2021

JMIR Diabetes

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Type 1 diabetes (T1D) is one of the most common chronic childhood diseases, and its prevalence is rapidly increasing. The management of glucose in T1D is challenging, as youth must consider a myriad of factors when making diabetes care decisions. This task often leads to significant hyperglycemia, hypoglycemia, and glucose variability throughout the day, which have been associated with short- and long-term medical complications. At present, most of what is known about each of these complications and the health behaviors that may lead to them have been uncovered in the clinical setting or in laboratory-based research. However, the tools often used in these settings are limited in their ability to capture the dynamic behaviors, feelings, and physiological changes associated with T1D that fluctuate from moment to moment throughout the day. A better understanding of T1D in daily life could potentially aid in the development of interventions to improve diabetes care and mitigate the negative medical consequences associated with it. Therefore, there is a need to measure repeated, real-time, and real-world features of this disease in youth. This approach is known as ecological momentary assessment (EMA), and it has considerable advantages to in-lab research. Thus, this viewpoint aims to describe EMA tools that have been used to collect data in the daily lives of youth with T1D and discuss studies that explored the nuances of T1D in daily life using these methods. This viewpoint focuses on the following EMA methods: continuous glucose monitoring, actigraphy, ambulatory blood pressure monitoring, personal digital assistants, smartphones, and phone-based systems. The viewpoint also discusses the benefits of using EMA methods to collect important data that might not otherwise be collected in the laboratory and the limitations of each tool, future directions of the field, and possible clinical implications for their use.

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Intersecting Health Policy and the Social Determinants of Health in Pediatric Type 1 Diabetes Management and Care

Cited by 15 publications

References 38 publications

Psychometric testing of the short‐form Chinese version of the self‐management for adolescents with type 1 diabetes scale

Psychometric testing of the short‐form Chinese version of the self‐management for adolescents with type 1 diabetes scale

The Double Bind of School Nurses and Policy Implementation: Intersecting theStreet-Level BureaucracyFramework and Teaching Sexual Health Education

Technological Ecological Momentary Assessment Tools to Study Type 1 Diabetes in Youth: Viewpoint of Methodologies

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