Interpretive Review : Feasibility and Effects of Decision Aids

Molenaar, Sjaak; Sprangers, Mirjam A. G.; Postma-Schuit, F.C.E.; Rutgers, Emiel J. T.; Noorlander, J.; Hendriks, J.; Haes, Hanneke C. de

doi:10.1177/0272989x0002000114

Cited by 148 publications

(125 citation statements)

References 54 publications

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“…Decision aids have been found to be feasible and acceptable to patients and to increase the agreement between patients' values and decisions (Molenaar et al, 2000). A recent systematic review found that DAs improve patients' knowledge and realistic expectations of treatment options, reduce decisional conflict, and stimulate patients to play a more active role in decision-making (O'Connor et al, 2002).…”

mentioning

confidence: 99%

Randomised trial of a decision aid and its timing for women being tested for a BRCA1/2 mutation

Roosmalen¹,

Stalmeier²,

Verhoef³

et al. 2004

Br J Cancer

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The aim of the study was to evaluate the impact of a decision aid (DA) and its timing in women being tested for a BRCA1/2 mutation. Women with and without a previous history of cancer were included after blood sampling for genetic testing. The DA consisted of a brochure and video providing information on screening and prophylactic surgery. To evaluate the impact of the DA, women were randomised to the DA group (n ¼ 184), receiving the DA 2 weeks after blood sampling, or to the control group (n ¼ 184). To evaluate the impact of timing, mutation carriers who had received the DA before the test result (n ¼ 47) were compared to mutation carriers who received the DA after the test result (n ¼ 42). Data were collected on well-being, treatment choice, decision and information related outcomes. The impact of the DA was measured 4 weeks after blood sampling. The impact of timing was measured 2 weeks after a positive test result. The DA had no impact on well-being. Regarding decision related outcomes, the DA group more frequently considered prophylactic surgery (P ¼ 0.02) corroborated with higher valuations (P ¼ 0.04). No differences were found for the other decision related outcomes. Regarding information related outcomes, the DA group felt better informed (P ¼ 0.00), was more satisfied with the information (P ¼ 0.00), and showed more accurate risk perceptions. Timing of the DA had no effect on any of the outcomes. No interactions were found between the DA and history of cancer. In conclusion, women being tested for a BRCA1/2 mutation benefit from the DA on information related outcomes. Because timing had no effect, the DA is considered useful either before or after the test result.

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mentioning

confidence: 99%

Randomised trial of a decision aid and its timing for women being tested for a BRCA1/2 mutation

Roosmalen¹,

Stalmeier²,

Verhoef³

et al. 2004

Br J Cancer

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“…Information only includes interventions aimed primarily at the exchange of information, by means of persuasive communication or information brochures [22]. Patients need information to [7]:…”

Section: Patient Education: Definition Educational Interventions Andmentioning

confidence: 99%

“…Such an exchange of information is an essential element of a process of shared decision making between patients and their doctors [22]. It is necessary to educate patients on the nature of the outcomes and the benefits and risks of the procedures to involve them in the decision-making process and enable them to achieve fully informed consent [10].…”

Section: Patient Education: Definition Educational Interventions Andmentioning

confidence: 99%

“…They tended to see the process of decision making as the sole responsibility of the doctor. A growing number of publications on patient-centred care, patient participation, patient involvement and shared decision making reflect that these traditional roles of physicians and patients in decision making are changing [22]. Nowadays, the role of the patient as an active partner in health care, and not just a passive object of diagnostic testing and medical treatment, is widely accepted [9].…”

Section: Introductionmentioning

confidence: 99%

“…Information and participation needs of patients, combined with a broader awareness in society of the ethics in health care, including respect for patient's autonomy have become important elements of modern health care [22].…”

Section: Introductionmentioning

confidence: 99%

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Patient information and education with modern media: the Spine Society of Europe Patient Line

Pellisé¹,

Sell

2009

Eur Spine J

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The role of the patient as an active partner in health care, and not just a passive object of diagnostic testing and medical treatment, is widely accepted. Providing information to patients is considered a crucial issue and the central focus in patient educational activities. It is necessary to educate patients on the nature of the outcomes and the benefits and risks of the procedures to involve them in the decision-making process and enable them to achieve fully informed consent. Information materials must contain scientifically reliable information and be presented in a form that is acceptable and useful to patients. Given the mismatch between public beliefs and current evidence, strategies for changing the public perceptions are required. Traditional patient education programmes have to face the potential barriers of storage, access problems and the need to keep content materials up to date. A computer-based resource provides many advantages, including ''just-intime'' availability and a private learning environment. The use of the Internet for patient information needs will continue to expand as Internet access becomes readily available. However, the problem is no longer in finding information, but in assessing the credibility and validity of it. Health Web sites should provide health information that is secure and trustworthy. The large majority of the Web sites providing information related to spinal disorders are of limited and poor quality. Patient Line (PL), a patient information section in the Web site of Eurospine, was born in 2005 to offer patients and the general population the accumulated expertise represented by the members of the society and provide up-to-date information related to spinal disorders. In areas where evidence is scarce, Patient Line provides a real-time opinion of the EuroSpine membership. The published data reflect the pragmatic and the common sense range of treatments offered by the Eurospine membership. The first chapters have been dedicated to sciatica, scoliosis, cervical pain syndromes, low back pain and motion preservation surgery. Since 2008, the information has been available in English, German, French and Spanish. The goal is for Patient Line to become THE European patient information Web site on spinal disorders, providing reliable and updated best practice and evidence-based information where the evidence exists.

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Effects of Decision Aids for Menorrhagia on Treatment Choices, Health Outcomes, and Costs

Kennedy

Sculpher

Coulter

et al. 2002

JAMA

215

194

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Interpretive Review : Feasibility and Effects of Decision Aids

Cited by 148 publications

References 54 publications

Randomised trial of a decision aid and its timing for women being tested for a BRCA1/2 mutation

Randomised trial of a decision aid and its timing for women being tested for a BRCA1/2 mutation

Patient information and education with modern media: the Spine Society of Europe Patient Line

Effects of Decision Aids for Menorrhagia on Treatment Choices, Health Outcomes, and Costs

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