Interpreting the “hidden program” of a place: An example from dementia day care

Moore, Keith Diaz

doi:10.1016/j.jaging.2004.03.004

Cited by 19 publications

(10 citation statements)

References 14 publications

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“…During large group activities cognitively impaired clients were often provided with alternative games or activities that they could actually “do.” This might have implications for stigmatization or segregation for such clients (and could constitute a threat to personhood). 11,12,28,29 Moreover, incorporating cognitively impaired clients into large group activities alongside cognitively intact clients (e.g., those who could speak and understand game instructions and tasks) also appeared to lead to disengagement on the part of these clients (e.g., staring, dozing off, and so forth). These barriers to engagement for cognitively impaired clients were often overcome by staff through the use of one-to-one care interaction, personal names, and emotional validation.…”

Section: Resultsmentioning

confidence: 99%

“…There is clearly a need for future studies of ADS to determine how these programs provide culturally tailored services and support to disabled older persons and their families. 12 Purposive sampling of family members may have also allowed for greater variation in the sample, as recommended by expert qualitative methodologists. While member checking is not universally viewed as necessary in some types of qualitative methods, 34,35 many methodologists agree that use of member checking is an important step to ensure the trustworthiness of interview data.…”

Section: Discussionmentioning

confidence: 99%

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The process of adult day service use

Gaugler

2014

Geriatric Nursing

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The objective of this study was to examine why and how families and older adults utilize adult day services. The current study included three months of participant observation in one rural and one suburban adult day service program in an upper-Midwestern region of the United States as well as semi-structured interviews with 14 family members of clients and 12 staff members from these programs. Several key constructs emerged that organized the multiple sources of qualitative data including programmatic philosophy, positioning, and environment of ADS; clients’ and family members’ reasons for use; the process of ADS use by families and clients; and pathways to family/client psychosocial and client functional outcomes. A number of inter-related themes emerged within each construct. The constructs identified and their potential associations among each other were used to expand upon and refine prior conceptualizations of ADS to frame future clinical and research efforts.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The process of adult day service use

Gaugler

2014

Geriatric Nursing

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“…Being involved in activity is undoubtedly more challenging for people with dementia, given the cognitive and perceptual decline that accompanies the disease, not to mention how societal and institutional practices can serve to limit opportunities for their involvement (Moore, 2004;Nolan, Grant, & Nolan, 1995;Orona, 1990;Powers, 1995). And yet, these participants did stay engaged in everyday life.…”

Section: Discussionmentioning

confidence: 99%

Doing as much as I can do: The meaning of activity for people with dementia

Phinney

Chaudhury

O’Connor

2007

Aging & Mental Health

259

270

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While it is assumed that persons with dementia benefit from being involved in meaningful activity, research examining this claim is limited. In particular, how individuals with dementia perceive this involvement is poorly understood. Therefore, the purpose of this research is to determine what constitutes meaningful activity from the perspective of persons with dementia, and to explore how they perceive its significance in their lives. We conducted an interpretive phenomenological analysis of multiple interviews and participant observation conducted with eight community-dwelling elders with mild to moderate dementia. For several participants, the single most important driving force in their lives was being active, doing as much as they possibly could. They were involved in a wide range of activities including leisure pastimes, household chores, work-related endeavors, and social involvements. These activities were meaningful in three ways: Through their involvement, participants experienced feelings of pleasure and enjoyment; felt a sense of connection and belonging; and retained a sense of autonomy and personal identity. Findings suggest that familiarity of the social and physical environment promotes involvement in activities. This provides a sense of continuity for people with dementia, with implications for their quality of life and personhood. Further implications of these findings for dementia care and future research are discussed.

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“…13 Also the decoration and architecture of many nursing homes show striking parallels to nurseries, schools and kindergartens. 14 These examples illustrate that the second-childhood trope does not belong to the past. In fact, sociologists called it the most widespread and pernicious of age stereotypes.…”

Section: Th E Ba Ck Gr Ou Nd a N D I M P Li Ca Ti On S Of Th E Secomentioning

confidence: 99%

Return to childhood? Against the infantilization of people with dementia

Jongsma

Schweda

2018

Bioethics

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The idea that dementia is essentially a return to childhood and those affected must somehow be similar to children constitutes a deeply rooted and pervasive cultural trope. While such tropes may be helpful in making sense of an otherwise elusive and inscrutable state, they can at the same time promote inadequate understandings of dementia and hence also influence our attitudes and behaviour towards those affected in several problematic ways. In the present work, we provide a detailed account of the origins and implications of the idea that people with dementia are somehow similar to children. In order to spell out the normative significance of this trope and to analyse its shortcomings, we will rely on a life-course perspective. We will point out that the second-childhood trope does not do justice to the particularities of the life phases of both children and people with dementia. This lack of biographical sensitivity brings about undignified treatment of and harm to those who have previously lived more autonomous lives. In conclusion, we will argue that people with dementia should not be equated with children as they are at a different point in their lives. This critical analysis of the second-childhood trope shows the usefulness of a culturally and biographically sensitive theoretical framework for bioethical reflection. In particular, it provides reasons to reject infantilizing attitudes and behaviours and instead take seriously the personality, values and preferences shaped throughout the course of an individual's life.

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Interpreting the “hidden program” of a place: An example from dementia day care

Cited by 19 publications

References 14 publications

The process of adult day service use

The process of adult day service use

Doing as much as I can do: The meaning of activity for people with dementia

Return to childhood? Against the infantilization of people with dementia

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