Interpretation of change and longitudinal validity of the quality of life for respiratory illness questionnaire in inpatient pulmonary rehabilitation

Stel, Henk F. van; Maillé, A. Rianne; Colland, Vivian T.; Everaerd, Walter

doi:10.1016/s0149-2918(02)85099-8

Cited by 12 publications

(17 citation statements)

References 41 publications

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“…For example, the MID for the Asthma Quality of Life Scale was determined on a sample of only 39 patients [52]. Furthermore, research indicates that retrospective ratings of health are fundamentally flawed [53][54][55]. Despite this, it would be interesting to see how the estimates of meaningful change in the PIQoL-AD compare using the standard methodology and that used in the present study.…”

Section: Discussionmentioning

confidence: 99%

“…Some researchers argue that a change in instrument score of one-SEM is sufficient and is equivalent to an instrument's minimal important difference (MID) [32,[35][36][37][38], while others employ a more conservative 1.96 SEM [39,40], which represents a 95% confidence interval.…”

Section: Distribution-based Approachmentioning

confidence: 99%

“…Although the anchor and distribution based approaches appear to be inherently different, recent studies [32,35,37,[42][43][44] have shown that there is similarity between the results that each method produces.…”

Section: Distribution-based Approachmentioning

confidence: 99%

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The Quality of Life of Parents of Children with Atopic Dermatitis: Interpretation of PIQoL-AD Scores

Meads¹,

McKenna²,

Kahler³

2005

Qual Life Res

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The PIQoL-AD has been used in several trials assessing quality of life (QoL) in parents of children with atopic dermatitis (AD), treated with pimecrolimus cream 1%. Secondary analysis of data from four trials (n = 621) was undertaken to help interpret the meaningfulness (significance) of the QoL results. A combination of anchor-based and distribution-based methods of interpreting instrument scores were employed. For each level on four AD severity indicators, mean PIQoL-AD scores and 95% confidence intervals were calculated. Low levels of association (r(s) range = 0.12-0.45) were observed between QoL and clinical indicators; confirming previous findings. When data from the different trials and time-points were combined clear patterns emerged indicating the clinical meaning of PIQoL-AD scores. Distribution-based statistics such as effect sizes, the standard error of measurement (SEM) and the standard error of difference (S(diff)) were also calculated. Despite a lack of consensus on how best to determine the meaningfulness of QoL scores, a large database of trial data was successfully used to link QoL scores to disease severity, aiding clinical interpretation of the former. Effect size, SEM and S(diff) values were consistent across the trials indicating that a change of 2 to 3 PIQoL-AD points over time could be considered meaningful. It is argued that it would be useful for clinicians to gain an understanding of the meaning of QoL scores through routine use of such measures in clinical practice.

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Section: Discussionmentioning

confidence: 99%

Section: Distribution-based Approachmentioning

confidence: 99%

See 1 more Smart Citation

The Quality of Life of Parents of Children with Atopic Dermatitis: Interpretation of PIQoL-AD Scores

Meads¹,

McKenna²,

Kahler³

2005

Qual Life Res

View full text Add to dashboard Cite

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“…The SEM has been proposed as a surrogate for the MID [22], and, taking into account its reliability, is a measure of the precision of a scale. Although there are problems with these types of analysis (particularly that of anchoring questionnaire scores to a global rating of change [23,24]), this approach to the determination of the MID is still regarded as the most appropriate [25,26]. The anchorbased and distributional values are ''triangulated'' in order to arrive at the MID threshold value [25].…”

Section: Analysesmentioning

confidence: 99%

The responsiveness and validity of the CAMPHOR Utility Index

Meads

McKenna²,

Doughty³

et al. 2008

European Respiratory Journal

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The aim of the present study was to validate and determine the mininal important difference (MID) and responsiveness of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) Utility Index, a new tool enabling cost utility analyses.CAMPHOR, 6-min walking test (6MWT) and New York Heart Association (NYHA) data for 869 pulmonary hypertension patients (545 (63%) female; mean¡SD age 56.6¡15.4 yrs) from three centres were analysed. Utility was correlated with 6MWT data and calculated by NYHA class to assess validity. Effect sizes were calculated for those with two CAMPHOR assessments. Distribution and anchor-based MIDs were calculated. Analyses were carried out in patients receiving bosentan in order to determine whether or not those remaining in NYHA class III following treatment improved.The Utility Index distinguished between adjacent NYHA classes and correlated with 6MWT results. CAMPHOR subscales and utility were as responsive as the 6MWT (effect sizes ranged 0.31-0.69 for the CAMPHOR and 0.16-0.34 for the 6MWT). The within-group MID for the Utility Index was estimated to be ,0.09. Patients remaining in NYHA class III experienced, on average, a significant improvement (CAMPHOR Utility Index and functioning), which exceeded the MID.The CAMPHOR Utility Index is valid and responsive to change. Patients can experience significant and important improvements even if they do not improve on the basis of traditional outcomes, such as NYHA functional class.

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“…Beneficial outcomes of pulmonary rehabilitation programs (PRPs) are well documented, [1][2][3][4] and previous research has indicated that pulmonary rehabilitation can enhance patients' perceived health status (HS), perceived quality of life (QoL), and psychological well-being. [5][6][7][8][9][10][11] Improvements in psychological well-being and QoL have tended to be weaker and less consistent than improvements in HS. [12][13][14][15][16] The majority of PRP studies have been conducted for samples of patients with chronic obstructive pulmonary disease (COPD), and only a few reports have used asthma samples 17 or combined samples of COPD and asthma patients.…”

Section: Introductionmentioning

confidence: 99%

Different short-term and longitudinal results on perceived health status for asthma and COPD patients after pulmonary rehabilitation. Patients living alone have the largest improvements in perceived quality of life

Haave

Hyland

2008

Chron Respir Dis

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A combined sample (n = 132) of asthma (70%, n = 92) and chronic obstructive pulmonary disease (COPD) (30%, n = 40) patients was assessed for short-term and longitudinal changes in perceived health status (HS), quality of life (QoL), and trait anxiety after a 4-week inpatient pulmonary rehabilitation program (PRP). The total sample improved on HS (P = 0.009, effect size (ES) = 0.12) and QoL (P = 0.011, ES = 0.16) immediately after rehabilitation but improvements diminished at 6 months follow-up. Trait anxiety scores changed very little. The COPD group improved on HS immediately after the rehabilitation program (P = 0.005, ES = 0.16) but scores had deteriorated at follow-up. The asthma group had only a small and non-significant HS improvement immediately after the program but got better during the follow-up period and improved significantly on HS (P = 0.040, ES = 0.21) from before rehabilitation to follow-up 6 months after the program. Within both diagnosis groups, patients who were living alone had the largest improvements in QoL scores. PRP may have different longitudinal effects for patients with asthma and COPD. After-care procedures are probably important in rehabilitation of patients with COPD. Chronic Respiratory Disease 2008; 5: 69-73

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Interpretation of change and longitudinal validity of the quality of life for respiratory illness questionnaire in inpatient pulmonary rehabilitation

Cited by 12 publications

References 41 publications

The Quality of Life of Parents of Children with Atopic Dermatitis: Interpretation of PIQoL-AD Scores

The Quality of Life of Parents of Children with Atopic Dermatitis: Interpretation of PIQoL-AD Scores

The responsiveness and validity of the CAMPHOR Utility Index

Different short-term and longitudinal results on perceived health status for asthma and COPD patients after pulmonary rehabilitation. Patients living alone have the largest improvements in perceived quality of life

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