Internet to boost patient accrual in oncology trials? A multiinstitutional AERIO study

Rodrigues, Manuel; Haberer, S.; Dionysopoulos, Dimitrios; Barrière, Jérôme; Wassermann, J.; Tazi, Youssef; Rajpar, Shanna; Giroux, Janet; Bidard, François-Clément; Loriot, Yohann

doi:10.1093/annonc/mdq746

Cited by 2 publications

(1 citation statement)

References 5 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Online clinical trial matching services have also been developed to help identify potential research participants [15-18]. The results of a number of surveys describe the willingness of people with cancer to search for information about cancer clinical trials on the internet [12,18-20]. The quality of information and the user-friendliness of cancer websites vary [21,22].…”

Section: Introductionmentioning

confidence: 99%

Consumer input into research: the Australian Cancer Trials website

Dear

Barratt

Crossing³

et al. 2011

Health Res Policy Sys

View full text Add to dashboard Cite

BackgroundThe Australian Cancer Trials website (ACTO) was publicly launched in 2010 to help people search for cancer clinical trials recruiting in Australia, provide information about clinical trials and assist with doctor-patient communication about trials. We describe consumer involvement in the design and development of ACTO and report our preliminary patient evaluation of the website.MethodsConsumers, led by Cancer Voices NSW, provided the impetus to develop the website. Consumer representative groups were consulted by the research team during the design and development of ACTO which combines a search engine, trial details, general information about trial participation and question prompt lists. Website use was analysed. A patient evaluation questionnaire was completed at one hospital, one week after exposure to the website.ResultsACTO's main features and content reflect consumer input. In February 2011, it covered 1, 042 cancer trials. Since ACTO's public launch in November 2010, until the end of February 2011, the website has had 2, 549 new visits and generated 17, 833 page views. In a sub-study of 47 patient users, 89% found the website helpful for learning about clinical trials and all respondents thought patients should have access to ACTO.ConclusionsThe development of ACTO is an example of consumers working with doctors, researchers and policy makers to improve the information available to people whose lives are affected by cancer and to help them participate in their treatment decisions, including consideration of clinical trial enrolment. Consumer input has ensured that the website is informative, targets consumer priorities and is user-friendly. ACTO serves as a model for other health conditions.

show abstract