Internet forums following a miscarriage: a place for women in particular pain?

Séjourné, Natalène; Fagny, J.; Got, F.; Lacroix, P.; Pauchet, C.; Combalbert, L.

doi:10.1080/02646838.2015.1079601

Cited by 7 publications

(21 citation statements)

References 18 publications

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“…Thirteen of 21 studies (62%) were cross-sectional studies (Black et al, 2021 ; Das et al, 2021 ; De Montigny et al, 2017 ; Hanschmidt et al, 2018 ; Keefe-Cooperman, 2005 ; Kersting et al, 2005 ; Krosch & Shakespeare-Finch, 2017 ; Kulathilaka et al, 2016 ; Lafarge et al, 2017 ; Nazaré et al, 2012 ; Rich 2000 ; Serrano & Lima, 2006 ; Séjourné et al, 2016 ) and 8 (38%) were prospective longitudinal studies (Burgoine et al, 2005 ; Conway & Russell, 2000 ; Gozuyesil et al, 2022 ; Güçlü et al, 2021 ; Johnson & Johnston, 2021 ; Köneş & Yildiz, 2021 ; Scheidt et al, 2012 ; Volgsten et al, 2018 ).…”

Section: Resultsmentioning

confidence: 99%

Grief in women with previous miscarriage or stillbirth: a systematic review of cross-sectional and longitudinal prospective studies

Mergl

Quaatz²,

Edeler³

et al. 2022

European Journal of Psychotraumatology

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Background: Women who have had miscarriages or stillbirths are known to have a high risk for enduring grief. However, the course and frequency of enduring grief in this subgroup are not fully understood. Objective: Our aims were to assess the intensity of grief and its course in women with miscarriages or stillbirths and to estimate the frequency of severe grief reactions in this population. Additionally, we compared subgroups with miscarriages versus stillbirths and with single versus recurrent pregnancy loss. Method: A systematic literature search of the databases MEDLINE, psycINFO and PSYNDEX was conducted to consider all studies published between 2000 and 31 March 2022 in English or German on the prevalence and intensity of grief in women who had miscarriages or stillbirths. Studies that used validated assessment methods were included in this systematic review. The PRISMA guidelines were followed. Results: Study characteristics and grief data were extracted independently by two investigators from 13 cross-sectional and eight longitudinal studies from 11 countries ( N = 2597). All studies used self-reporting instruments. According to 17 of 21 studies (81%), grief is markedly elevated in women after miscarriages or stillbirths. The studies are very heterogeneous regarding the samples, the length of pregnancies and the time of assessment regarding grief after miscarriages. Most studies document intense grief and frequent severe grief reactions – with a decrease over time – in women who have had miscarriages or stillbirths. Clear conclusions regarding corresponding differences between women with miscarriages and stillbirths or single and recurrent pregnancy losses cannot be drawn. Conclusions: Pronounced grief is frequent in women who had miscarriages or stillbirths. More longitudinal studies are needed to examine the course of grief in this group and to identify those women who develop prolonged grief disorder, depression or other mental-health problems.

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Section: Resultsmentioning

confidence: 99%

Grief in women with previous miscarriage or stillbirth: a systematic review of cross-sectional and longitudinal prospective studies

Mergl

Quaatz²,

Edeler³

et al. 2022

European Journal of Psychotraumatology

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“…Previous studies identified the importance of social support for the well-being of those who have miscarried (e.g., [13]), and described the experience of social support after miscarriage (e.g., [14]). In this study, we investigate the social support needs for those who have miscarried from a holistic perspective that integrates formal and informal care networks, and the role of eHealth in social support provision.…”

Section: Objectivementioning

confidence: 99%

The Miscarriage Circle of Care: Towards Leveraging eHealth for Social Support

Alqassim

Kresnye

Siek

et al. 2021

Preprint

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Background: Lack of social support during and after miscarriage can greatly affect mental wellbeing. With miscarriages being a common experience, there remains a discrepancy in the social support received after a pregnancy is lost. Method: 42 people who had experienced at least one miscarriage took part in an Asynchronous Remote Community (ARC) study. The study involved 16 activities (discussions, creative tasks, and surveys) in two closed, secret Facebook groups over eight weeks. Descriptive statistics were used to analyse quantitative data, and content analysis was used for qualitative data. Results: There were two main miscarriage care networks, formal (health care providers) and informal (friends, family, work colleagues). The formal care network was the most trusted informational support source, while the informal care network was the main source of tangible support. However, often, participants’ care networks were unable to provide sufficient informational, emotional, esteem, and network support. Peers who also had experienced miscarriage played a crucial role in addressing these gaps in social support. Technology use varied greatly, with smartphone use as the only common denominator. While there was a range of online support sources, participants tended to focus on only a few, and there was no single common preferred source.Discussion: We propose a Miscarriage Circle of Care Model (MCCM), with peer advisors playing a central role in improving communication channels and social support provision. We show how the MCCM can be used to identify gaps in service provision and opportunities where technology can be leveraged to fill those gaps.

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“…Previous studies identified the importance of social support for the well-being of those who have miscarried (e.g., [ 13 ]), and described the experience of social support after miscarriage (e.g., [ 14 ]). In this study, we investigate the social support needs for those who have miscarried from a holistic perspective that integrates formal and informal care networks, and the role of online spaces in social support provision.…”

Section: Introductionmentioning

confidence: 99%

“…Appropriate social support for women who have experienced a miscarriage can provide a much needed boost to their wellbeing both in the short term and in the long term [ 19 , 26 ]. The more satisfied women are with the level of support received, the less likely they are to experience mental health issues [ 13 , 22 , 27 , 28 ]. Unfortunately, many women are unhappy with the support they receive from their care network after their loss [ 13 , 29 ].…”

Section: Introductionmentioning

confidence: 99%

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The miscarriage circle of care: towards leveraging online spaces for social support

et al. 2022

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Background Lack of social support during and after miscarriage can greatly affect mental wellbeing. With miscarriages being a common experience, there remains a discrepancy in the social support received after a pregnancy is lost. Method 42 people who had experienced at least one miscarriage took part in an Asynchronous Remote Community (ARC) study. The study involved 16 activities (discussions, creative tasks, and surveys) in two closed, secret Facebook groups over eight weeks. Descriptive statistics were used to analyse quantitative data, and content analysis was used for qualitative data. Results There were two main miscarriage care networks, formal (health care providers) and informal (friends, family, work colleagues). The formal care network was the most trusted informational support source, while the informal care network was the main source of tangible support. However, often, participants’ care networks were unable to provide sufficient informational, emotional, esteem, and network support. Peers who also had experienced miscarriage played a crucial role in addressing these gaps in social support. Technology use varied greatly, with smartphone use as the only common denominator. While there was a range of online support sources, participants tended to focus on only a few, and there was no single common preferred source. Discussion We propose a Miscarriage Circle of Care Model (MCCM), with peer advisors playing a central role in improving communication channels and social support provision. We show how the MCCM can be used to identify gaps in service provision and opportunities where technology can be leveraged to fill those gaps.

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Internet forums following a miscarriage: a place for women in particular pain?

Cited by 7 publications

References 18 publications

Grief in women with previous miscarriage or stillbirth: a systematic review of cross-sectional and longitudinal prospective studies

Grief in women with previous miscarriage or stillbirth: a systematic review of cross-sectional and longitudinal prospective studies

The Miscarriage Circle of Care: Towards Leveraging eHealth for Social Support

The miscarriage circle of care: towards leveraging online spaces for social support

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