Internet-based technologies to improve cancer care coordination: Current use and attitudes among cancer patients

Girault, Anne; Ferrua, Marie; Lalloué, Benoît; Sicotte, Claude; Fourcade, A.; Yatim, Fatima; Hébert, Guillaume; Palma, Mario Di; Minvielle, Étienne

doi:10.1016/j.ejca.2014.12.001

Cited by 77 publications

(69 citation statements)

References 28 publications

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“…This implies that patients spend less time in hospital, which may result in a decrease in various kinds of support delivered by health care staff and peer patients. Increased outpatient care may be beneficial for patients who can spend less time at the hospital and even from an economic perspective, but presents challenges regarding the coordination of cancer care [3]. At the same time, the development toward a more empowered, self-determined, and partaking patient is continuing [4].…”

Section: Introductionmentioning

confidence: 99%

“…However, health-related Internet use is affected by sociodemographic characteristics such as age, gender, education, and civil and socioeconomic status, which should be further addressed in future research [20]. More knowledge is needed regarding cancer patients’ current use and appreciation of the Internet as a tool for health-related support, since these patients are generally older which indicate a barrier for Internet use [3,20]. …”

Section: Introductionmentioning

confidence: 99%

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Health-Related Internet Use in People With Cancer: Results From a Cross-Sectional Study in Two Outpatient Clinics in Sweden

Mattsson¹,

Olsson²,

Johansson³

et al. 2017

J Med Internet Res

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BackgroundThe access to various forms of support during the disease trajectory is crucial for people with cancer. The provision and use of Internet health services is increasing, and it is important to further investigate the preferences and demographical characteristics of its users. Investigating the uptake and perceived value of Internet health services is a prerequisite to be able to meet the needs in the targeted group.ObjectiveThe objective of this study was to investigate health-related Internet use among people with cancer.MethodsThe health online support questionnaire (HOSQ), examining the incentives for health-related Internet support use, was administered in two Swedish outpatient hospital clinics. Of the 350 copies of the questionnaire handed out, 285 (81.4%) were returned, answered by persons with cancer who had completed treatment or were under active surveillance or another medical treatment.ResultsA total of 215 (76.2%, 215/282) participants reported Internet use since being diagnosed with cancer. Internet-users were younger (P<.001), more likely to have a partner (P=.03), and had a higher level of education than nonusers (P<.001). The most common health-related activity on the Internet was searching for information (77.2%, 166/215), and users searched significantly more immediately after diagnosis compared with later on (P<.001). Use of My Healthcare Contacts was considered the most valuable Internet activity. Having a university degree (P ˂.001) and being younger in age (P=.01) were associated with a significantly higher frequency of health- related Internet use.ConclusionsPeople with cancer turn to the Internet for informational support that enables them to influence their care and to stay in touch with friends and relatives. Demographical differences regarding the uptake of Web-based support remains. This indicates a need for research on how to bridge this digital gap. By learning more about the use of health-related support on the Web among people with cancer, adequate support can be offered and potential strain reduced.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Health-Related Internet Use in People With Cancer: Results From a Cross-Sectional Study in Two Outpatient Clinics in Sweden

Mattsson¹,

Olsson²,

Johansson³

et al. 2017

J Med Internet Res

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show abstract

“…Most published studies have focused on specific patient populations and investigated heterogeneous items, with variable results. Interest towards telemedicine has been detected among cancer patients [24] and patients affected with chronic lung diseases [25], although, in some cases, the attitude towards the use of new technologies was low. In a large survey, patients affected with depression and those with a high risk of cerebrovascular disease reported a moderate interest in phone, email and Internet based services, while interest in social media based services was lower.…”

Section: Discussionmentioning

confidence: 99%

What drives attitude towards telemedicine among families of pediatric patients? A survey

et al. 2017

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BackgroundTelemedicine has been recognized as a way to improve accessibility, quality, and efficiency of care. In view of the introduction of new telemedicine services, we conducted a survey through a self-administered questionnaire among families of children attending the Bambino Gesù Children’s Hospital IRCCS, a tertiary care children’s hospital located in Rome, Italy.MethodsWe investigated sociodemographic data, clinical information, technological profile, attitude towards telemedicine, perceived advantages of telemedicine, fears regarding telemedicine, willingness to use a smartphone app providing telemedicine services and willingness to use a televisit service. Through logistic regression, we explored the effect of sociodemographic and clinical variables and technological profile on willingness of using a telemedicine app and a televisit service.ResultsWe enrolled a total of 751 families. Most patients had a high technological profile, 81% had at least one account on a social network. Whatsapp was the most popular messaging service (76%). Seventy-two percent of patients would use an app for telemedicine services and 65% would perform a televisit. Owning a tablet was associated with both outcome variables - respectively: OR 2.216, 95% CI 1.358–3.616 (app) and OR 2.117, 95% CI 1.415–3.168 (televisit). Kind of hospitalization, diagnosis of a chronic disease, disease severity and distance from the health care center were not associated with the outcome variables.ConclusionFamilies of pediatric patients with different clinical problems are keen to embark in telemedicine programs, independently from severity of disease or chronicity, and of distance from the hospital.Electronic supplementary materialThe online version of this article (doi:10.1186/s12887-016-0756-x) contains supplementary material, which is available to authorized users.

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“…Similarly, over two thirds of adults in the UK now own or have access to a tablet computer [15]. Similar statistics of Smart device ownership and use have been reported in cancer patient populations [16,17]. Mobile devices therefore offer the potential for wide reach at the point of need for patients with cancer.…”

mentioning

confidence: 87%

Use of Mobile Devices to Help Cancer Patients Meet Their Information Needs in Non-Inpatient Settings: Systematic Review (Preprint)

Richards¹,

Kinnersley²,

Brain³

et al. 2018

Preprint

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The use of mobile devices to help patients with cancer to meet their information needs in non-inpatient settings: A systematic review IntroductionIt is estimated that one in two people in Great Britain will develop some form of cancer during their lifetime [1]. In 2014, 357,000 new cases of cancer were diagnosed in the UK and the rate of incidence is increasing [2]. However, survival rates have doubled in the UK in the last 40 years and so, for many, cancer is a chronic condition with which they live for many years. Subsequently, there has been a shift from inpatient to outpatient and community cancer care, where patients are required to manage their condition at home, away from regular supervision by clinicians. This change in care requires patients to take a more active role in their treatment and survivorship. Patients are often faced with an uncertain future, unfamiliar tests and procedures, complex decisions about treatment options, treatment-related side-effects and lifestyle changes. In order to take a more active role in their care, and to cope with and manage these changes to daily life, patients require relevant information [3,4]. Research has established that patients have a wide range of information needs throughout their illness. Reviews of these studies suggest that patients generally want information on the extent of the disease, likelihood of cure and prognosis, available treatments, side-effects of treatment, self-care and return to normal life [5][6][7]. Other, less urgent, information needs include the impact of cancer and/or treatment on social activities, family and friends, mental wellbeing and sexual activity, and the risk of family and friends getting cancer [5,6]. There is evidence to suggest that information may help to reduce uncertainty, provide patients with a sense of control over their lives and support informed decision-making about treatment options [8,9]. While many people with cancer want as much information as possible about their condition [10], up to 93% of cancer patients across the US, Europe and the UK report having unmet information needs [11][12][13][14].The introduction of Smart technology has provided a new platform for delivering information-based interventions to patients. Approximately 93% of adults in the UK now personally own or use a mobile phone, of whom 71% specify that they own a Smartphone [15]. Similarly, over two thirds of adults in the UK now own or have access to a tablet computer [15]. Similar statistics of Smart device ownership and use have been reported in cancer patient populations [16,17]. Mobile devices therefore offer the potential for wide reach at the point of need for patients with cancer. Several existing systematic and scoping reviews have explored the general use of mobile devices for patients with cancer [18][19][20][21][22][23]. Findings from these reviews show that mobile interventions have been developed for a range of purposes, including the prevention, detection, and management of cancer; however, most interventions have been designed...

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Internet-based technologies to improve cancer care coordination: Current use and attitudes among cancer patients

Abstract: Most patients used IBTs every day. Overall, patients advocated for an extended use of IBT in oncology. Differences in perceived ease of use corresponding to age and socioeconomic status have to be addressed.

Cited by 77 publications

References 28 publications

Health-Related Internet Use in People With Cancer: Results From a Cross-Sectional Study in Two Outpatient Clinics in Sweden

Health-Related Internet Use in People With Cancer: Results From a Cross-Sectional Study in Two Outpatient Clinics in Sweden

What drives attitude towards telemedicine among families of pediatric patients? A survey

Use of Mobile Devices to Help Cancer Patients Meet Their Information Needs in Non-Inpatient Settings: Systematic Review (Preprint)

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