Internet and social media research by parents of pediatric otolaryngologic patients

Ward, Libby; LaRosa, Allyson H.; Prakash, Yash; Cohen, Michael B.; Levi, Jessica R.

doi:10.1016/j.amjoto.2022.103518

Cited by 2 publications

(2 citation statements)

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“…Several studies have reported that that parents can use YouTube™ as a source of information on healthcare issues for their children, including paediatric surgery, otolaryngologic surgery, cleft lip and palate, craniosynostosis and hydrocephalus. [12][13][14]26,27 Parents of children with craniofacial syndromes have concerns about surgery, 10 and it can be supposed that adequate parent information is crucial for the quality of treatment for children and the psychological needs of the family. Parents of patients with craniosynostosis reported higher levels of stress, anxiety and depression.…”

Section: Discussionmentioning

confidence: 99%

“…The Internet has emerged as a vital resource for public health information, especially for parents or caregivers of children with health problems 12 . Ward et al 13 stated that most parents of paediatric otolaryngologic patients use the Internet to access information related to surgery and make informed healthcare decisions. A published study has reported that parents of children with craniosynostosis rely on the Internet to learn about risks and consequences, alternative treatments and prognosis related to craniosynostosis, both at the time of suspicion and later 14 .…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

YouTube™ as a source of parents' information for craniosynostosis

Samur Erguven,

Topsakal,

Aksoy

2023

Orthod Craniofacial Res

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ObjectiveThis study aimed to evaluate the content, reliability and quality levels of YouTube™ videos regarding craniosynostosis for parents' information.MethodsA keyword search for ‘craniosynostosis’ was conducted on YouTube, and the uniform resource locators of the first 160 videos were initially recorded and evaluated. Ninety‐four videos that met the inclusion criteria were analysed. Each video received a score ranging from 0 to 9 points, classifying them as low‐content (0‐3), moderate‐content (4‐6) and high‐content (7‐9). The reliability scores adapted from DISCERN and Global Quality Scale (GQS) scores were recorded.ResultsThe median content score for the videos was 4. According to the content scores, 34% of included videos (n = 32) were classified as low‐content, 60.6% (n = 57) as moderate‐content, and 5.3% (n = 5) as high‐content. The median reliability score for the videos was 3, and the median GQS score was 3. The reliability and quality levels of videos classified as high‐content and moderate‐content were significantly superior to low‐content videos (P < .05). Laypersons were identified as the most frequent source of information in the videos. However, most of the videos lacked information about syndromic/non‐syndromic forms and specific complications. The importance of early referral/timing of surgery and minimally invasive surgical treatment techniques was mentioned in all high‐content videos.ConclusionThe results of the present study suggest that YouTube™ in its current format, is not a fully trustable source for parents seeking information on craniosynostosis. Craniofacial units must increase the content, quality and reliability level of videos on craniosynostosis.

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