Intensive care patient diaries in Scandinavia: a comparative study of emergence and evolution

Egerod, Ingrid; Storli, Sissel Lisa; Åkerman, Eva

doi:10.1111/j.1440-1800.2011.00540.x

Cited by 64 publications

(77 citation statements)

References 27 publications

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“…This is in accordance with the majority of reported patient diary usage which has been within Europe, particularly Scandinavia [18][19][20]51] and the United Kingdom [22,52].…”

Section: Discussionsupporting

confidence: 90%

“…Researchers [19]have previously discussed the role of the patient diary in the provision of a coherent narrative of the illness period, diminishing the impact or dominance of imagined occurrences and hallucination.…”

Section: Discussionmentioning

confidence: 99%

“…Patient diaries are generally written prospectively and addressed personally to the individual patient. ICU staff provide an overall structure for the diary, with a cover and sometimes a preprinted introduction and glossary of terms and equipment [19][20][21]. Diaries are generally structured with a summary outlining the reason and event of admission to ICU, daily entries, and a final note on discharge or transfer from the ICU [21].…”

Section: Intensive Care Unit (Icu) Diariesmentioning

confidence: 99%

See 2 more Smart Citations

Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review

Ullman

Aitken

Rattray

et al. 2015

International Journal of Nursing Studies

110

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This is the accepted version of the paper.This version of the publication may differ from the final published version. Review methods: Studies evaluated the effectiveness of patient diaries, when compared to no ICU diary, for patients or family members to promote recovery after admission to ICU were included. Outcome measures for describing recovery from ICU included the risk of post-traumatic stress disorder (PTSD), anxiety, depression and post-traumatic stress symptomatology, health-related quality of life and costs. We used standard methodological approaches as expected by The Cochrane Collaboration. Two review authors independently reviewed titles for inclusion, extracted data and undertook risk of bias according to pre-specified criteria. Permanent repository link Results:We identified three eligible studies; two describing ICU patients (N = 358), and one describing relatives of ICU patients (N = 30). No study adequately reported on risk of PTSD as described using a clinical interview, family or caregiver anxiety or depression, health-related quality of life or costs. Within a single study there was no clear evidence of a difference in risk for developing anxiety (RR 0.29, 95% CI 0.07 to 1.19) or depression (RR 0.38, 95% CI 0.12 to 1.19) in participants who received ICU diaries, in comparison to those that did not receive a patient diary. Within a single study there was no evidence of difference in median post-traumatic stress symptomatology scores (diaries 24, SD 11.6; no diary 24, SD 11.6) and delusional ICU memory recall (RR 1.04, 95% CI 0.84 to 1.28) between the patients recovering from ICU admission who received patient diaries, and those who did not. One study reported reduced post-traumatic stress symptomatology in family members of patients recovering from admission to ICU who received patient diaries (median 19; range 14 to 28), in comparison to no diary (median 28; range 14 to 38). Conclusions:Currently there is minimal evidence from RCTs of the benefits or harms of patient diaries for patients and their caregivers or family members. A small study has described their potential to reduce post-traumatic stress symptomatology in family members. However, there is currently inadequate evidence to support their effectiveness in improving psychological recovery after critical illness for patients and their family members.

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“…This is in accordance with the majority of reported patient diary usage which has been within Europe, particularly Scandinavia [18][19][20]51] and the United Kingdom [22,52].…”

Section: Discussionsupporting

confidence: 90%

Section: Discussionmentioning

confidence: 99%

Section: Intensive Care Unit (Icu) Diariesmentioning

confidence: 99%

See 1 more Smart Citation

Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review

Ullman

Aitken

Rattray

et al. 2015

International Journal of Nursing Studies

110

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“…47 The use of patient diaries is varied both internationally and nationally, although they are generally viewed as a record of events kept by the nursing staff or family on behalf of the patient, to be voluntarily read after recovery. Diary use is not yet considered routine practice, with the majority of reported usage being within Scandinavian countries 48 and the UK. 49 The literature published to date tends to be positive towards their use; however, there remain questions as to the primary objectives, methodological considerations and efficacy.…”

Section: Neurorehabilitative Strategiesmentioning

confidence: 99%

The psychological and neurocognitive consequences of critical illness. A pragmatic review of current evidence

Clancy

Edginton

Casarin

et al. 2015

Journal of the Intensive Care Society

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Mortality rates alone are no longer a sufficient guide to quality of care. Due to medical advances, patients are surviving for longer following critical illness and major surgery; therefore, functional outcomes and long-term quality of life are of increasing consequence. Post-operative cognitive dysfunction has been acknowledged as a complication following anaesthesia for many years, and interest in persistent cognitive dysfunction following a critical illness is growing. Psychological and neurocognitive sequelae following discharge from intensive care are acknowledged to occur with sufficient significance to have recently coined the term 'the post-intensive care syndrome'. Rehabilitation following critical illness has been highlighted as an important goal in recently published national UK guidelines, including the need to focus on both physical and non-physical recovery. Neuropsychological and cognitive consequences following anaesthesia and critical illness are significant. The exact pathophysiological mechanisms linking delirium, cognitive dysfunction and neuropsychological symptoms following critical illness are not fully elucidated but have been studied elsewhere and are outside the scope of this article. There is limited evidence as yet for specific peri-operative preventative strategies, but early management and rehabilitation strategies following intensive care discharge are now emerging. This article aims to summarise the issues and appraise current options for management, including both neuroprotective and neurorehabilitative strategies in intensive care. KeywordsIntensive care, critical illness, rehabilitation, cognitive dysfunction, delirium, post-traumatic stress disorder Over the last decade, there has been an increase in the complexity of patients presenting to intensive care, due in part to the severity of co-morbidities at presentation and an increasingly elderly population. Despite this, mortality rates are improving; the long-term consequences of critical illness are thus becoming ever more relevant. The risk factors and pathogenesis of delirium and post-cognitive dysfunction have been reviewed thoroughly elsewhere. This article summarises the relevant findings in these areas and deliberately focuses on the psychological and neurocognitive sequelae following critical illness including depression, anxiety, post-traumatic stress disorder and cognitive dysfunction; reviewing the evidence for incidence, pathophysiology and management. Psychological and neurocognitive consequences of critical illnessThe neuropsychological sequelae that occur following a critical care admission are numerous and can be highly distressing for patients and their families. Symptoms that occur include intrusive memories, delusions, delirium, panic episodes and nightmares. Conditions such as depression, anxiety, post-traumatic stress disorder (PTSD) and cognitive dysfunction are increasingly recognised among patients who survive an intensive care admission and are described collectively as the 'post-intensive care...

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“…12,19,20,22 The predominance of diaries in Scandinavian countries has been attributed to efficient networking amongst nurses in the region. 23 In summary, diary use appears to be limited to selective countries in Scandinavia and Northern Europe, with isolated reports in the UK. Reports of patient diary use in Australian ICUs are currently limited to conference presentations and anecdotal reports.…”

Section: Literature Reviewmentioning

confidence: 97%

The extent and application of patient diaries in Australian intensive care units: A national survey

Nair

Mitchell

Keogh

2015

Australian Critical Care

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Intensive care patient diaries in Scandinavia: a comparative study of emergence and evolution

Cited by 64 publications

References 27 publications

Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review

Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review

The psychological and neurocognitive consequences of critical illness. A pragmatic review of current evidence

The extent and application of patient diaries in Australian intensive care units: A national survey

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