Integration of Palliative Care Into All Serious Illness Care as A Human Right

Rosa, William E.; Ferrell, Betty; Mason, Diana J.

doi:10.1001/jamahealthforum.2021.1099

Cited by 15 publications

(19 citation statements)

References 8 publications

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“…To ensure the dignity and quality of life of people with serious illnesses, palliative care should be fully integrated throughout health care, 9 especially as the COVID-19 pandemic continues. Given the shortage of specialist palliative care providers, proficiency in palliative care is an ethical obligation for all nurses.…”

Section: Discussionmentioning

confidence: 99%

“…8 This has made the provision of generalist (or primary) palliative care-supportive care delivered by health care professionals not trained as palliative care specialists-a clinical imperative. 1,9 Nurses, who make up the largest part of the health care workforce, play a critical role in the delivery of primary palliative care. But evidence suggests that they lack confidence in their ability to do so.…”

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confidence: 99%

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Integrating Palliative Care into Nursing Care

Campos

Levoy

Pandey

et al. 2022

AJN, American Journal of Nursing

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The need for palliative care in our health care system has exponentially increased in the past few years as a result of the COVID-19 pandemic, the aging population, and the increasing number of people living with serious illnesses. While nurses play a critical role in delivering palliative care, many lack confidence and knowledge, causing practice gaps in the clinical and psychological management of seriously ill patients. The collective burden of the pandemic has demonstrated the importance of palliative care education and training, specifically in communication, symptom management, and continuing education. All nurses, including nursing students, transitioning nurses, and practicing nurses, should be trained to offer generalist (or primary) palliative care, in accordance with the American Association of Colleges of Nursing Essentials: Core Competencies for Professional Nursing Education. Provision of holistic, relationship-based, and integrated palliative care for patients and their families is an ethical obligation for all nurses.

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Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

Integrating Palliative Care into Nursing Care

Campos

Levoy

Pandey

et al. 2022

AJN, American Journal of Nursing

Self Cite

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“…The integration of palliative care services into mental healthcare is considered to be long overdue ( 4 ). A palliative approach can promote equitable health services and access to palliative care is considered a human right ( 30 ). With this approach dying is considered a normal process, but the World Health Organization (WHO) has estimated that only 14% of people receive palliative care when it is needed ( 31 , 32 ).…”

Section: Discussionmentioning

confidence: 99%

Ageism, human rights and ethical aspects of end-of-life care for older people with serious mental illness

Kotzé

Roos

2022

Front. Psychiatry

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There are many complex concepts to consider during end-of-life discussions and advance care planning, especially when vulnerable populations such as older individuals with serious mental illness are involved. This article aims to summarize some of these important concepts, such as the effects of ageism, preservation of human rights and dignity, supported or shared decision making and palliative approaches. It emerged from a study that found two thirds of 100 participants 60 years of age and older with serious mental illness had end-of-life decision-making capacity. This finding highlighted the individual and contextual nature of decision-making capacity, the importance of consideration of individual values and protection of human dignity during end-of-life care. Healthcare providers have a duty to initiate end-of-life and advance care discussions, to optimize decision-making capacity, and to protect autonomous decision-making. Chronological age or diagnostic categories should never be used as reasons for discrimination and all patients should receive end-of-life care in keeping with their preferences and values.

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“…However, there is 1 phenomenon which is particularly prevalent in the setting of the COVID-19 pandemic, that is, an under-recognized risk for complicated grief: bereavement overload. 9 There is no simple definition of bereavement overload (BO), but it is a term that was coined decades ago to describe individuals' reactions to losses transpiring in a quick succession, without the time and opportunity for coping. 10,11 Grief overload, cumulative grief, and, more recently, "micro-losses" 12 have been used to describe this condition.…”

Section: Complicated Grief In the Pandemicmentioning

confidence: 99%

“…

The COVID-19 pandemic brought about bereavement overload as a risk factor for complicated grief. Bereavement overload (BO) describes individuals' reactions to losses transpiring in a quick succession, without the time and opportunity for coping [9]. It can occur during catastrophic events and impact everyone experiencing the loss.

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confidence: 99%

The Virulence of Grief in the Pandemic: Bereavement Overload During COVID

Corona

Chin

et al. 2021

Am J Hosp Palliat Care

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The COVID-19 pandemic brought about bereavement overload as a risk factor for complicated grief. Bereavement overload (BO) describes individuals’ reactions to losses transpiring in a quick succession, without the time and opportunity for coping [9]. It can occur during catastrophic events and impact everyone experiencing the loss. With the high death toll from COVID-19, many people have lost multiple loved ones followed by an abbreviated grieving process due to the nature of the pandemic. This can have psychosocial impact on survivors for years. One of the evolving roles of Palliative Care within and after the pandemic should be to recognize those suffering from BO. Obtaining loss histories may identify those at risk of pathologic grief to provide preventive bereavement care. We present three cases encountered in our health system during the COVID-19 pandemic amongst a family member, a patient, and a healthcare provider. In each case the Palliative Care Team worked closely with these individuals to identify COVID-associated BO and helped them reconcile their unresolved grief to be able to move forward. These cases reflect only a fraction of those who experienced loss during the pandemic, but they illustrate how grief can be complicated by the pandemic for everyone involved. Palliative Care will have a crucial role moving forward, in treating the pandemic of complicated grief within the pandemic to adapt to the needs of all survivors, as we realize the effects of COVID will last long after its virulence has waned.

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Integration of Palliative Care Into All Serious Illness Care as A Human Right

Cited by 15 publications

References 8 publications

Integrating Palliative Care into Nursing Care

Integrating Palliative Care into Nursing Care

Ageism, human rights and ethical aspects of end-of-life care for older people with serious mental illness

The Virulence of Grief in the Pandemic: Bereavement Overload During COVID

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