Integrating Early Palliative Care for Patients With HIV

Lofgren, Sarah M; Friedman, Rachel; Ghermay, Rahwa; George, Maura; Pittman, John R.; Shahane, Amit Anil; Zeimer, Dorothy; Rı́o, Carlos del; Marconi, Vincent C.

doi:10.1177/1049909114550391

Cited by 9 publications

(4 citation statements)

References 14 publications

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“…But in spite of high-quality medical treatment, PLWH often experience inadequate symptom control (Harding et al, 2010; Karus et al, 2005; Merlin et al, 2012). The aging of the PLWH population, their risks for other chronic conditions, and their needs for better symptom management suggest a critical need for palliative care services for PLWH with other chronic conditions (PLWH/OCC; Lofgren et al, 2015; Ruiz & Cefalu, 2011). …”

mentioning

confidence: 99%

Palliative Care, Hospice, and Advance Care Planning: Views of People Living with HIV and Other Chronic Conditions

Slomka¹,

Prince-Paul²,

Webel³

et al. 2016

Journal of the Association of Nurses in AIDS Care

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People living with HIV (PLWH) who survive to older adulthood risk developing multiple chronic medical conditions. Health policymakers recognize the role of early palliative care and advance care planning in improving health quality for at-risk populations, but misperceptions about palliative care, hospice, and advance care planning are common. Before testing a program of early palliative care for PLWH and other chronic conditions, we conducted focus groups to elicit perceptions of palliative care, hospice, and advance care planning in our target population. Overall, participants were unfamiliar with the term palliative care, confused concepts of palliative care and hospice, and/or associated hospice care with dying. Participants misunderstood advance care planning, but valued communication about health care preferences. Accepting palliative care was contingent on distinguishing it from hospice and historical memories of HIV and dying. Provision of high-quality, comprehensive care will require changing public perceptions and individuals’ views in this high-risk population.

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confidence: 99%

Palliative Care, Hospice, and Advance Care Planning: Views of People Living with HIV and Other Chronic Conditions

Slomka¹,

Prince-Paul²,

Webel³

et al. 2016

Journal of the Association of Nurses in AIDS Care

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“…A benefit of early palliative care is the care team’s ability to build rapport and trust that will allow a deeper holistic assessment of the patient (Back et al, 2014; Yoong et al, 2013). The relationship that is built will allow the team to see that the patient may have greater needs than just symptom control and improve the patient’s willingness to accept the care team’s recommendations (Lofgren et al, 2015). Once a rapport is established, the palliative care team can act as a security blanket for the patient and family (Hannon, Swami, Rodin, Pope, & Zimmermann, 2017).…”

Section: Resultsmentioning

confidence: 99%

Evolution and Conceptual Foundations of Nonhospice Palliative Care

et al. 2019

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The term nonhospice palliative care was developed to describe and differentiate palliative care that is delivered prior to the end of life. The purpose of this article is to better define and clarify this concept using Rodgers’s evolutionary concept analysis method. Attributes of nonhospice palliative care include (a) patient- and family-centered care, (b) holistic care, (c) interdisciplinary team, (d) early intervention, (e) quality of life-enhancing, (f) advanced care planning, (g) any age of the patient, (h) at any stage in illness, (i) care coordination, (j) concurrent curative treatment options, and (k) provided by primary and specialist providers. Nonhospice palliative care antecedents are serious illness, education, and access to services; consequences include benefits for the patient, family, provider, and health care system. Offering a clearly defined concept may allow for changes in health care to improve access to these services.

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“…Within the HIV population, one author suggested that EPC should be de ned by clinical criteria, speci cally a CD4 T-cell in the 300-400 cells/mL. 110 Webel and colleagues (2019) de ned EPC as care initiated early in the disease trajectory for HIV patients. When examining the role of EPC among patients with COPD, authors based their de nition on advanced disease stage (stage III or IV based on the GOLD criteria).…”

Section: Characteristics Of Included Studiesmentioning

confidence: 99%

Defining “early palliative care” for adults diagnosed with a life-limiting illness: A scoping review

Kircher

Hanna

Tranmer

et al. 2023

Preprint

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Background: Palliative care is for people suffering from life-limiting illnesses that focuses on providing relief from symptoms and stress of illness. Previous studies have demonstrated that specialist palliative care consultation delivered earlier in the disease process can enhance patients’ quality of life, reduce their symptom burden, reduce use of hospital-based acute care services and extend their survival. However, various definitions exist for the term early palliative care (EPC). Objective: To investigate how EPC has been defined in the literature for adults with life- limiting illnesses. Methods: This review was conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) guidelines and the follows the Joanna Briggs Institution methodology for scoping reviews. Results: We identified 116 articles between 2008-2020 which met inclusion criteria. Five categories of operational definitions for EPC emerged: 1) time-based (time from advanced cancer diagnosis to EPC initiation); 2) prognosis-based (prognosis or the ‘surprise question’); 3) location-based (access point within the healthcare system such as outpatient setting); 4) treatment-based (physician’s judgement or prior to specific therapies); and 5) symptom-based (using symptom intensity questionnaires). Many studies included patients with cancer (n=78), with the most common definition category being time-based (n =41). Amongst studies focusing on multiple or non-cancer diagnoses (n=38), the most common definition category was symptom-based (n =13). Conclusion: Our findings provide a useful reference point for those seeking to understand the scope and breadth of existing EPC definitions in cancer and non-cancer illnesses and contemplate their application within clinical practice

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Integrating Early Palliative Care for Patients With HIV

Cited by 9 publications

References 14 publications

Palliative Care, Hospice, and Advance Care Planning: Views of People Living with HIV and Other Chronic Conditions

Palliative Care, Hospice, and Advance Care Planning: Views of People Living with HIV and Other Chronic Conditions

Evolution and Conceptual Foundations of Nonhospice Palliative Care

Defining “early palliative care” for adults diagnosed with a life-limiting illness: A scoping review

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