Integrated primary palliative care model; facilitators and challenges of primary care/family physicians providing community-based palliative care

Atreya, Shrikant; Patil, Chaitanya; Kumar, Raman

doi:10.4103/jfmpc.jfmpc_653_19

Cited by 9 publications

(6 citation statements)

References 17 publications

(21 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In 16.25% of the cases, we could liaise with the family physicians and handle the patient's issues. These findings were similar to the integrated model postulated by Atreya et al 25 in their study. Despite the pandemic situation, these family physicians worked relentlessly to assist in caring for these patients.…”

Section: Discussionsupporting

confidence: 93%

“PALLCARE Seva”—A Beacon Amid the Catastrophic COVID-19 Times: A Cross-Sectional Study from a Rural Oncology Institute in Western Maharashtra

Patil

Tanawade²,

Dhamne³

et al. 2022

Indian J Med Paediatr Oncol

View full text Add to dashboard Cite

Introduction Advanced cancer patients often require clinic or hospital follow-up for their symptom control to maintain their quality of life. But it becomes difficult for the patients to attend the same due to financial, commutation, and logistic issues. Objective The aim of this study was to audit the telephonic calls of the service and prospectively collected data to understand the quality of service provided to the patients at follow-up. Materials and Methods An ambispective observational study was conducted on the advanced stage cancer patients referred to the palliative care department at Kolhapur Cancer Center, Kolhapur, Maharashtra. We conducted an audit of the 523 telephonic calls of our service—“PALLCARE Seva” from June 2020 to February 2021. Prospectively, we assessed the quality of service based on 125 telephonic calls (n = 125) for this; we designed a questionnaire consisting of 11 items on the 5-point Likert scale for satisfaction by the patients or their caregivers at the follow-up. After a pilot study, the final format of questionnaire was used to collect the data. Results Of the 523 calls attended, we provided 30.11% patients with dosage change of medications for their symptom management, 16.25% patients have liaised with local general practitioners, and 14.34% of cases had to be referred for emergency management to our hospitals. We provided 23.9% of them with emotional and bereavement support and 6.21% with smartphone-based or video-assisted guidance to the patients and caregivers. Conclusions Liaison of general practitioners was possible in more than one-tenth of cases. The core components of our service were politeness and caring attitude, helpfulness, handling doubts regarding the illness, and an opportunity to share thoughts from the patients or caregivers. More than three-fourth of the callers have rated their experience as satisfactory and would recommend this service to other patients in need.

show abstract

Section: Discussionsupporting

confidence: 93%

“PALLCARE Seva”—A Beacon Amid the Catastrophic COVID-19 Times: A Cross-Sectional Study from a Rural Oncology Institute in Western Maharashtra

Patil

Tanawade²,

Dhamne³

et al. 2022

Indian J Med Paediatr Oncol

View full text Add to dashboard Cite

show abstract

“…Community based PC (CBPC) aims to integrate PC into local healthcare systems and has been shown to improve patient and caregiver satisfaction, quality of life (QoL), reduce health care expenditure and hospital admissions at end-of-life (EOL) [8,9]. However, there is scarcity of CBPC services in India [10][11][12]. One unique and sustainable CBPC model is neighbourhood network in PC (NNPC); operational in the southern Indian state of Kerala [13].…”

Section: Introductionmentioning

confidence: 99%

“…One unique and sustainable CBPC model is neighbourhood network in PC (NNPC); operational in the southern Indian state of Kerala [13]. However, NNPC is exclusive to the region because of unique sociopolitical-economic environment, availability of resources and their mobilization strategies, awareness, and varying degrees of economic self-su ciency, which were integrated through innovative approaches [11,13]. Above factors responsible for NNPC's sustainability limits its applicability to other regions with different socio-political context [13,14].…”

Section: Introductionmentioning

confidence: 99%

RETRACTED: Community-based palliative care needs and barriers to access among cancer patients in rural north India: A Participatory action research

Mayank,

Ankita,

Joshy

et al. 2024

Preprint

View full text Add to dashboard Cite

Background: Community based palliative care (CBPC) services are scarce in rural North India. An in-depth understanding of local needs and barriers is required to formulate sustainable and context-specific Palliative care (PC) strategies. This paper aimed to explore the PC needs and barriers to access among cancer patients in a rural region with high cancer burden. Methods: Study was conducted in a rural block of North India. Participatory action research (PAR) was employed to explore the PC needs, barriers and challenges faced by cancer patients to help design a context-specific comprehensive community based palliative care model for the study block. Situational assessment, community sensitization workshops (CSWs) and door-to-door surveys were planned, conducted and further developed over three PAR cycles. Systematic collection and analysis of qualitative data and quantitaive findings allowed methodological triangulation. Descriptive statistics and thematic analysis were used. Results: A total of 27 CSWs involving 526 stakeholders were conducted. Participants were recruited through convenient and purposive sampling. A total of 256 cancer patients identified through multi-faceted strategies were assessed for PC need and symptom burden. Patients were diagnosed in advanced stages with an estimated PC need of 1.22/1000 population. Majority (56.6%) had ≥ one moderate-severe symptoms with the most common symptoms being tiredness, pain and loss of appetite. Analysis of qualitative findings generated three overarching themes: Unmet needs, Burden of caregiving, and Barriers and challenges. Conclusion: The need for CBPC in rural North India was high. Cancer affected all domains of patients’ and their families’ lives contributing to biopsychosocial suffering. Lack of awareness, nearby healthcare facilities, transportation and essential medicines made access to PC difficult. Our findings emphasize the need for tailored CBPC interventions considering socio-cultural and geographic variations. Trial Registration: Clinical Trial Registry of India (CTRI/2023/04/051357)

show abstract

“…[20] Studies have shown that applying the integrated medical care rounds model to concurrent radiotherapy and chemotherapy for cervical cancer is conducive to promoting the recovery of patients, alleviating anxiety and depression of patients, reducing the occurrence of complications, and improving the quality of life of patients. [21] A qualitative study of medical staff's cognition and attitude towards patient reporting outcomes shows that the interviewed medical staff generally hold a positive and open attitude towards the concept of patient reporting outcomes, and nursing staff should formulate scientific and feasible application plans to promote patients. [22] After nursing in this study, the anxiety, depression, fatigue, and anger of the 2 groups of patients after cervical cancer surgery were significantly improved, and the emotional response score of the observation group was significantly lower than that of the control group.…”

Section: Discussionmentioning

confidence: 99%

The impact of hospital-family integrated continuation nursing based on information technology on patients unhealthy mood, family function and sexual function after cervical cancer surgery

Rao

Chen

et al. 2023

Medicine

View full text Add to dashboard Cite

The objective of this study was to explore the impact on hospital-family integrated continuation care based on information technology on the negative emotions, family function, and sexual function of patients after cervical cancer surgery. The clinical case data onto 114 postoperative cervical cancer patients who were nursing in our hospital from July 2019 to July 2021 were selected and were divided into a control group and an observation group. The control group used routine nursing care, and on this basis, the observation group used information technology as the basis for hospital-family integrated continuation care, and we observed and compared the differences in the 2 groups of patients bad mood, family function, and sexual function. The score of anxiety ( P = .017), depression ( P = .009), fatigue rating ( P = .012), and anger ( P < .001) in the observation group after care were significantly lower than those in the control group. Problem solving, role, emotional response, emotional involvement, and family function total score in the observation group after care was significantly lower than those in the control group ( P < .05). Sexual desire score, sexual arousal score, vaginal lubrication score, orgasm score, sexual satisfaction score, dyspareunia score, and Female Sexual Function Inventory total scores in the observation and control groups after care were significantly higher than those before care ( P < .05). The sexual function scores in the observation group after care was significantly higher than those in the control group ( P < .05). The hospital-family integrated continuation care based on information technology is more effective than conventional nursing care for patients after cervical cancer surgery.

show abstract

Integrated primary palliative care model; facilitators and challenges of primary care/family physicians providing community-based palliative care

Cited by 9 publications

References 17 publications

“PALLCARE Seva”—A Beacon Amid the Catastrophic COVID-19 Times: A Cross-Sectional Study from a Rural Oncology Institute in Western Maharashtra

“PALLCARE Seva”—A Beacon Amid the Catastrophic COVID-19 Times: A Cross-Sectional Study from a Rural Oncology Institute in Western Maharashtra

RETRACTED: Community-based palliative care needs and barriers to access among cancer patients in rural north India: A Participatory action research

The impact of hospital-family integrated continuation nursing based on information technology on patients unhealthy mood, family function and sexual function after cervical cancer surgery

Contact Info

Product

Resources

About