Integrated care for children living with complex care needs: navigating the long and winding road

Peters, Vincent; Winter, Peter de

doi:10.1007/s00431-023-04892-7

Cited by 1 publication

(2 citation statements)

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“…This observation holds true for children with anorexia nervosa (AN) which is a complex psychiatric disorder with potential severe somatic and psychosocial consequences. Children with AN require a network of professionals from different organizations [ 5 , 6 ] and, as a result, the organization and provision of care for children with AN face challenges [ 7 ]. Previous research outlines the challenges associated with the organization of outpatient care provision for children with AN, including the need for integrated and person-centered multidisciplinary approaches [ 7 ], dissatisfaction with care professionals [ 8 ], a lack of communication and information sharing among care professionals [ 5 ], and endangered COC [ 6 ].…”

Section: Introductionmentioning

confidence: 99%

“…Children with AN require a network of professionals from different organizations [ 5 , 6 ] and, as a result, the organization and provision of care for children with AN face challenges [ 7 ]. Previous research outlines the challenges associated with the organization of outpatient care provision for children with AN, including the need for integrated and person-centered multidisciplinary approaches [ 7 ], dissatisfaction with care professionals [ 8 ], a lack of communication and information sharing among care professionals [ 5 ], and endangered COC [ 6 ]. COC is endangered when the organization of care is complex, which can lead to overlaps and gaps in treatment and, consequently, poor health outcomes for children with AN.…”

Section: Introductionmentioning

confidence: 99%

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Continuity of care for children with anorexia nervosa in the Netherlands: a modular perspective

Lennips,

Peters,

Meijboom

et al. 2024

Eur J Pediatr

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Care provision for children with anorexia nervosa is provided by outpatient care teams in hospitals, but the way these teams are organized differs per hospital and hampers the continuity of care. The aim of this study is to explore the organization and continuity of care for children with anorexia nervosa in the Netherlands by using a modular perspective.We conducted a qualitative, exploratory case study and took the healthcare provision for children with anorexia nervosa, provided by outpatient care teams, as our case. We conducted nine interviews with healthcare professionals involved in outpatient care teams from six hospitals. A thematic analysis was used to analyze the data.The modular perspective offered insights into the work practices and working methods of outpatient care teams. We were able to identify modules (i.e. the separate consultations with the various professionals), and components (i.e. elements of these consultations). In addition, communication mechanisms (interfaces) were identified to facilitate information flow and coordination among healthcare professionals. Our modular perspective revealed gaps and overlap in outpatient care provision, consequently providing opportunities to deal with unnecessary duplications and blind spots. Conclusion: A modular perspective can be applied to explore the organization of outpatient care provision for children with anorexia nervosa. We specifically highlight gaps and overlap in healthcare provision, which in turn leads to recommendations on how to support the three essential parts of continuity of care: informational continuity, relational continuity, and management continuity. What is Known:• Care provision for children with anorexia nervosa requires a network of health care professionals from different organizations, as a result the organization and provision of care faces challenges. What is New:• Modular care provision sheds light on the complexity and organization of outpatient care provision and supports the three dimensions of continuity of care as experienced by children with anorexia nervosa and their parents/caregivers.

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