Instrument to Prepare for Acute Care of the Individual with Autism Spectrum Disorder in the Emergency Department

Venkat, Arvind; Migyanka, Joann M.; Cramer, Ryan; McGonigle, John J.

doi:10.1037/t56293-000

Cited by 3 publications

(3 citation statements)

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“…Regarding preparation, researchers recommend hospitals' implementation of a 1-page registration card, such that caregivers may identify specific accommodation requirements, potential stressors, individualized communication styles, and other methods for enhancing care. 18,24,26 Caregivers report that placing an "alert" in the child's file removes parents' obligation to repeatedly publicly disclose their child's diagnosis to health providers in the ED. 20 Furthermore, researchers suggest the development of a care…”

Section: Edmentioning

confidence: 99%

Medical Encounters for Youth With Autism Spectrum Disorder: A Comprehensive Review of Environmental Considerations and Interventions

Straus

Coburn

Maskell

et al. 2019

Clin Med Insights Pediatr

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Approximately 1 in 59 youth are currently diagnosed with autism spectrum disorder (ASD), a neurodevelopmental disorder. In comparison to typically developing peers, youth with ASD encounter hospitalization at higher rates due to their heightened health care needs. While visiting the hospital is a stressor for youth with neurotypical needs, the experience contains unique challenges for those with ASD. This systematic literature review highlights research that considers the psychosocial impact of the hospital environment on the coping and adjustment of youth with ASD. Specifically, the review focuses on recommendations and interventions that may be used by health care professionals while supporting this population as they encounter the health care system. Ninety-six articles were identified as meeting inclusion and exclusion criteria. The findings suggest that practicing clinicians should implement a wide variety of interventions for youth with ASD including diversion techniques, comfort positions, and picture schedules. Although there are published evidence-based interventions for supporting youth with ASD in the hospital, most clinicians lack ASD-specific training. This article concludes with recommendations for future research.

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Section: Edmentioning

confidence: 99%

Medical Encounters for Youth With Autism Spectrum Disorder: A Comprehensive Review of Environmental Considerations and Interventions

Straus

Coburn

Maskell

et al. 2019

Clin Med Insights Pediatr

View full text Add to dashboard Cite

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“…Continued investment is needed in educating ED staff about ASD and the diversity of presentations, with an emphasis on the types of accommodations that can be made, such as involving psychiatry, using quiet rooms, preparing for restraint use, reducing wait times, taking additional time to listen to patient and respond to their questions. Hospital passports and other communication tools can assist with this (Heifetz & Lunsky, 2018;Venkat, Migyanka, Cramer, & McGonigle, 2016). In addition to service-based accommodations, it is necessary to find ways to help health care providers develop greater empathy for those with ASD and families.…”

Section: Discussionmentioning

confidence: 99%

A review of emergency department visits made by youth and adults with autism spectrum disorder from the parent perspective

Lunsky

Tint

Weiss

et al. 2018

AIA

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Purpose: Past research has shown individuals with autism spectrum disorder (ASD) visit hospital emergency departments (ED) at high rates. In order to assist individuals with ASD, their families and health care providers to improve ED care, it is important to understand these encounters in greater detail. This study aimed to provide a descriptive summary of the ED experiences of adolescents and adults with ASD, from the perspective of their families.

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“…17,26 Surgical practices may find it helpful to develop a standardized list of questions to ask during these 2016) shared one example, designed to be used by healthcare teams caring for patients with ASD in the emergency department. 27 A copy of the Pediatric Individualized Behavior Checklist developed by Yale-New Haven Children's Hopsital is also included at the end of the review for reference (Appendix). While this information can be collected by asking parents to fill out a survey in the clinic setting, some parents have expressed concern that physicians will not read the responses and would prefer to discuss the patient's needs on the phone.…”

Section: Optimizing the Orthopaedic Clinic Experiencementioning

confidence: 99%

A Practical Guide for Improving Orthopaedic Care in Children with Autism Spectrum Disorder

Maloy¹,

Kaszuba²,

Stoeckel³

et al. 2023

Journal of the Pediatric Orthopaedic Society of North America

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Given the increasing prevalence of autism spectrum disorder (ASD), medical professionals' understanding of the presentation of ASD is essential to ensuring patients with ASD receive high-quality healthcare. Previous studies have found that individuals with ASD have a lower average bone density and higher fracture risk than those without ASD, increasing the likelihood that these patients will seek orthopaedic care. Early coordination with the patient's family, identification of stressors and coping strategies, and flexibility during the visit are key to promoting a positive medical encounter. Based on a review of the literature, we present a practical guide for orthopaedic providers to better care for pediatric patients with ASD and their families. Key Concepts• Children with ASD have more successful interfaces with pediatric orthopedists when the visits are tailored to meet their unique needs.• A multidisciplinary team, especially with ASD resources, can improve the experience of surgical admissions.• A phone call by a team member prior to an outpatient visit is an efficient way to ensure all of a child's needs will be met.• Children may have nonverbal communication strategies, including challenges in externalizing pain.

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Instrument to Prepare for Acute Care of the Individual with Autism Spectrum Disorder in the Emergency Department

Cited by 3 publications

References 0 publications

Medical Encounters for Youth With Autism Spectrum Disorder: A Comprehensive Review of Environmental Considerations and Interventions

Medical Encounters for Youth With Autism Spectrum Disorder: A Comprehensive Review of Environmental Considerations and Interventions

A review of emergency department visits made by youth and adults with autism spectrum disorder from the parent perspective

A Practical Guide for Improving Orthopaedic Care in Children with Autism Spectrum Disorder

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