Insights From Health Care Professionals Regarding Palliative Care Options on South Dakota Reservations

Abstract

To address the health disparities of the NA population specific to palliative care, public health policy reform and education for health professionals are necessary.

Key features of palliative care service delivery to Indigenous peoples in Australia, New Zealand, Canada and the United States: a comprehensive review

“…of articles Collaboration Community Engagement X [ 14 , 28 ] X [ 22 ] X [ 24 , 26 ] X [ 6 , 23 , 25 , 27 ] 9 Family Engagement X [ 14 , 31 ] X [ 32 – 34 ] X [ 24 , 30 ] X [ 25 , 27 , 29 ] 10 Health Care Provider Collaboration X [ 28 ] None identified None identified X [ 25 ] 2 Service Delivery Funding X [ 14 , 37 ] None identified None identified X [ 6 , 23 , 25 ] 5 Communication X [ 14 , 31 , 37 ] X [ 33 , 34 , 42 ] X [ 24 , 26 , 65 ] X [ 6 , 23 ] 11 Policy Change X [ 37 ] ...…”

“…Throughout the literature, the need to collaborate and to engage meaningfully with communities [ 6 , 14 , 22 – 28 ] and families [ 14 , 24 , 25 , 29 – 34 ] before designing and implementing any program was highlighted as a fundamental prerequisite for progress. Most of the studies were conducted in rural or remote locations where EOL care provisions were often not well-developed or well-understood.…”

Racial and Ethnic Disparities in Palliative Care: A Systematic Scoping Review

“…A large analysis of racial/ethnic disparities in palliative care in hospitals that served either majority white, mixed, or majority minority patients found that stroke patients of any race/ethnicity were less likely to receive palliative care in a mixed or majority minority hospital (Faigle et al, 2017). The only two studies that examined palliative care for American Indians/Alaskan Natives found that rural care settings were underresourced for culturally competent, accessible palliative care for this population (Isaacson et al, 2015; Isaacson & Lynch, 2018).…”

“…One study asked white, African American, and Hispanic patients if they had ever heard of palliative care, and those who had were more likely to be white and have higher education and income levels (Matsuyama et al, 2011). Mistrust of the medical system was cited in studies of American Indians (Isaacson et al, 2015) and African Americans, particularly strong in African American males (Duffy et al, 2006). These findings were echoed by palliative care providers who noted that mistrust of providers and lack of information on palliative care were strong deterrents to receiving high-quality end-of-life care in the African American community (Rhodes et al, 2015).…”

“…In another study, African American cancer patients were more likely than white patients to feel that they were overlooked by providers in delivering information and referrals for available outpatient palliative and supportive care services (Kumar et al, 2012). Two studies that focused on provider perceptions found that providers felt their lack of preparation and training in cultural sensitivity constituted a barrier to palliative care for minority populations (Isaacson et al, 2015; Rhodes et al, 2015).…”