Informer la famille : émotions et attitudes du consultant en oncogénétique pour risque familial de cancer sein/ovaire ou côlon

Kwiatkowski, Fabrice; Laquet, Claire; Dessenne, Pascal; Bignon, Yves‐Jean

doi:10.1016/j.bulcan.2014.09.001

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2019

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“…This intervention improved the family genetic screening. Having a confirmation of hereditary disease and duty to inform its relatives of their risk can be felt as two burdens (Kwiatkowski et al 2015). The patient may have a poor understanding and think that the HCP is more competent than him to inform his relatives about their risk.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of the template letter regarding the disclosure of genetic information within the family in France

Zordan

Monteil

Haquet³

et al. 2019

J Community Genet

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The 2011 French Bioethics Law regarding disclosure of genetic information within families enables health professionals to notify any at-risk relatives directly, with the patient's consent, using a template letter. To assess the impact of this template letter in terms of understanding, personal feelings and intent to contact a health professional, we conducted a study interviewing patients, members of the public and genetic professionals. Although the main response to the letter was anxiety, this was associated with good understanding of the content and most individuals mentioned intention to contact a health professional.

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Section: Discussionmentioning

confidence: 99%