Informelle außerfamiliäre Hilfe für alleinlebende Menschen im Alter und Versorgung am Lebensende

Pleschberger, Sabine; Wosko, Paulina

doi:10.1007/s00391-014-0817-4

Cited by 9 publications

(5 citation statements)

References 22 publications

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“…These two commonly related experiences were compounded by the absence of a support network, frequently constituting the main barrier to aging and dying at home (Turner & Flemming, 2019). In general, these issues were inadequately addressed, with very little or no preparation for what was ahead (Hammond & Baxter, 2019; Mogan et al, 2018; Morris et al, 2015; Pleschberger & Wosko, 2015; Sixsmith et al, 2019; Totman et al, 2015; Woodman et al, 2015). …like that first night we came home from the hospital […] I was really sad, because suddenly when we left the hospital I realised we were on our own (Caregiver, Totman et al, 2015, p. 501).Losing the relationship once held with the dying person and grieving before the death was particularly challenging for caregivers (Totman et al, 2015).…”

Section: Resultsmentioning

confidence: 99%

Section: Lack Of Preparation For the Journey Aheadmentioning

confidence: 99%

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Challenges and Facilitators for Psychosocial Support when Aging and Dying in Place: A Rapid Review of the Literature

Daudt

Spargo

2022

Can. J. Aging

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Most seniors in Canada live at home and consistently indicate that they prefer to stay there for as long as possible. Consequently, this desire places increasing pressure on supports such as informal caregivers and community services. The current rapid review set out to examine the psychosocial aspects of aging and dying in place that point to gaps in programs and services to support this preference. We searched PubMed, PsycInfo, and Google Scholar for peer-reviewed entries, and identified 42 articles for analysis, which we charted on a form we created and tested. Lack of attention to the whole person, lack of preparation for the journey ahead, and difficulties establishing collaborative and trusting relationships were, broadly, the challenges identified. A blend of initiatives in the community combined with an integrated palliative approach to care may mitigate some of the challenges that limit options for aging and dying in place.

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Section: Resultsmentioning

confidence: 99%

Section: Lack Of Preparation For the Journey Aheadmentioning

confidence: 99%

Challenges and Facilitators for Psychosocial Support when Aging and Dying in Place: A Rapid Review of the Literature

Daudt

Spargo

2022

Can. J. Aging

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“…However, informal caregivers are not a homogenous group [9]. Informal caregiving is generally understood as family caregiving, whereas little regard has been paid to non-kin-carers, such as friends and neighbors [10].…”

Section: Introductionmentioning

confidence: 99%

“…On average, however, friends invested more hours per week supporting their friend in need [18]. An exploratory study commissioned by the Austrian Ministry of Social Affairs on older people living alone with increasing care needs shed light on the substantial involvement of non-kin carers [10]. It is important to determine whether this kind of support can be robust enough to enable staying at home even at the end of life.…”

Section: Introductionmentioning

confidence: 99%

“…Literature does not provide a cohesive picture of non-kin involvement in end-of-life care but rather snapshots as illustrated in a scoping review [10]: Burns et al (2011) found that friends tended to involve specialist palliative care services earlier and more often than family members did [17]. Furthermore, the need for Advance Care Planning might be more evident in case of older people living alone than when family carers are in the same home [23] .…”

Section: Introductionmentioning

confidence: 99%

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Older people living alone (OPLA) – non-kin-carers’ support towards the end of life: qualitative longitudinal study protocol

et al. 2019

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Background A growing number of older people, mainly women, live in single households. They represent a vulnerable group as staying at home may turn out challenging when care needs increase, particularly at the end of life. Non-kin-carers can play an essential role in supporting individuals’ preferences to stay at home. In research little attention has been paid to non-kin-carers, such as friends and neighbors, yet. Thus, the Older People Living Alone (OPLA) study will evaluate whether non-kin support is robust enough to enable care dependent people to stay at home even at the end of life. This paper aims to introduce the research protocol. Methods We plan to apply a qualitative longitudinal study to better understand how older people living alone and their non-kin-carers manage to face the challenges with increased care needs towards the end-of-life. We will conduct serial interviews with the older persons living alone and their non-kin-carers. A total of 20–25 complete data sets and up to 200 personal interviews were planned. These will be complemented by regular telephone contacts. All interviews will be analysed following the grounded theory approach and strategies for reconstructing case trajectories, supported by MAXQDA software. In the course of the study, inter- and transdisciplinary workshops shall assure quality and support knowledge transfer. Discussion This study protocol aims to guide research in a field that is difficult to approach, with regard to its topic, methodology and the interdisciplinary approach. As this study introduces longitudinal qualitative research methodology in the field of home care in Austria, a deeper understanding of (end-of-life-) care trajectories will be enhanced, which is of major relevance for future care planning. With investment in additional reflexivity and communication procedures innovative results and robust knowledge are expected outcomes.

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Ethik in der kommunalen Sorge: Lebenskunst und ethische Spannungsfelder

Schuchter¹,

Wegleitner²,

Heller³

2022

Springer Reference Pflege – Therapie – Gesundheit

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Informelle außerfamiliäre Hilfe für alleinlebende Menschen im Alter und Versorgung am Lebensende

Cited by 9 publications

References 22 publications

Challenges and Facilitators for Psychosocial Support when Aging and Dying in Place: A Rapid Review of the Literature

Challenges and Facilitators for Psychosocial Support when Aging and Dying in Place: A Rapid Review of the Literature

Older people living alone (OPLA) – non-kin-carers’ support towards the end of life: qualitative longitudinal study protocol

Ethik in der kommunalen Sorge: Lebenskunst und ethische Spannungsfelder

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