Informed Consent as Societal Stewardship

Sawicki, Nadia N.

doi:10.1177/1073110517703098

Cited by 4 publications

(2 citation statements)

References 33 publications

(27 reference statements)

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“…Informed consent first emerged in the context of the implementation of clinical procedures in the field of Medicine (Clé ro, 2016;Farinde, 2014;Sawicki, 2017;Sousa, Araújo, & Matos, 2015). In this sense, informed consent is underpinned by a "voluntary decision, made by an autonomous and capable person […] after an informative and deliberative process, aiming at the acceptance of a specific treatment or experimentation, being aware of its nature, its consequences and its risks" (Sousa et al, 2015, p. 9).…”

Section: Informed Consentmentioning

confidence: 99%

Informed Consent in Social Sciences Research: Ethical Challenges

Ferreira¹,

Serpa²

2018

IJSSS

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Informed consent is a critical procedure for the fulfilment of the ethical dimension in scientific research in social sciences. On the basis of a stance centred in Sociology research practices developed by the authors, this paper reflects on informed consent, its relevance in research, and procedures involved in its production and its concomitant implications. The reflection on the research process is stressed, emphasising the need to not consider the informed consent procedure as something that is fulfilled only once, but rather as something that integrates both the research process and its product and that, therefore, should be continuously considered and assessed throughout research.

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Section: Informed Consentmentioning

confidence: 99%

Informed Consent in Social Sciences Research: Ethical Challenges

Ferreira¹,

Serpa²

2018

IJSSS

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“…The principle of social justice is another important consideration for physicians, but inherently difficult to consider from a clinical perspective. Unlike the principles of autonomy, beneficence, and nonmaleficence, social justice requires physicians to think beyond their patients as individuals, but rather as members of the larger community [ 39 ]. High cost interventions (especially those that still result in significant ongoing morbidity) implicate the professional and ethical tension of “dual agency” -- physicians are caught between (1) the best interests of individual patients, and (2) just distribution of healthcare resources [ 40 ].…”

Section: Main Textmentioning

confidence: 99%

The ethics of caring for hospital-dependent patients

Sung

Herbst

2017

BMC Med Ethics

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BackgroundHospital-dependent patients are individuals who are repeatedly readmitted to the hospital because their acute medical needs cannot be met elsewhere. Unlike the chronically critically ill, these patients do not have a continuous need for life-sustaining equipment and can experience periods of relative stability where they have a good quality of life. However, some end up spending months or even years in the hospital receiving resource-intensive care because they are unable to be safely discharged, despite an initial optimistic prognosis. It is hard to reliably identify these patients on admission and more research is needed to better understand the unique medical needs of this population. But the inability to safely discharge these patients to their home or to a skilled nursing facility without rapid readmissions also creates ethical implications for the physicians who care for them. The aim of this paper is to clarify some of the ethical considerations involved in caring for hospital-dependent patients.Main bodyAmong physicians, the care of hospital-dependent patients is likely to disproportionately affect hospitalists and intensivists, whose care is often evaluated in terms of reducing patient length of stay and readmissions. Because hospital-dependent patients’ medical needs thwart the traditional goal of safe discharge, both clinical ethics and physicians’ professional obligations are implicated by their care. The inability to reliably identify these patients early can complicate discussions about treatment goals and informed consent. Similarly, the tremendous dedication of limited resources to these patients without safe discharge back to the community may raise concerns about the just allocation of healthcare resources.ConclusionOur current acute care hospitals are not designed to provide long-term care for hospital-dependent patients. Unfortunately, safe discharge options remain elusive for these patients. Further research and support of this population is needed to more reliably identify hospital-dependent patients on admission, better inform the discussions of short- and long-term treatment goals, and more wisely allocate resources both within our acute care hospitals and larger healthcare system.

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The Law, Ethics and Body Donation: A Tale of Two Bequeathal Programs

Hutchinson

Kramer

Billings

et al. 2019

Anatomical Sciences Ed

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Historically, legislature has been utilized to facilitate appropriate use of cadavers in the anatomical sciences. However, cadaver acquisition and use have also been guided by ethically appropriate and morally acceptable principles. Various global and regional frameworks of “ethical practice” guide body donation, including the use of unclaimed bodies by institutions. These frameworks are responsive to, and reciprocal with the various ethical, moral and legal factors that influence the development of body donation programs. This reciprocity supports the notion that anatomists and anatomical societies have a responsibility to advocate for legal reform when required. In this study, two body bequest programs from geopolitically and socially disparate countries are used as cases to contrast existing legal and governance frameworks for body donation and to examine whether anatomists can direct the acquisition of ethically donated cadavers. The study includes an Australian donor program that has exclusively accepted bequests since its inception, and a South African program that has recently transitioned to a bequest system. Elements such as consent by next‐of‐kin and Inspector of Anatomy, use of unclaimed bodies and ethics committee approval amongst others, are compared. It is acknowledged that legal frameworks for cadaver acquisition generally deliver broad guidance on acceptable utilization of bodies for the anatomical sciences. However, professional discretion is of importance in adapting to societal needs and values. Thus, while anatomists have been able to progress toward more ethical practice than that which is required by the law, they must continue to do so as societal values evolve.

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Informed Consent as Societal Stewardship

Cited by 4 publications

References 33 publications

Informed Consent in Social Sciences Research: Ethical Challenges

Informed Consent in Social Sciences Research: Ethical Challenges

The ethics of caring for hospital-dependent patients

The Law, Ethics and Body Donation: A Tale of Two Bequeathal Programs

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