Informed consent and minors

Nicolussi, Andrea

doi:10.1186/1824-7288-41-s2-a51

Cited by 3 publications

(1 citation statement)

References 2 publications

(1 reference statement)

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“…Furthermore the Oviedo Convention requires that the opinion of the minor must still be taken into consideration. Thus the decision-making process involves three parties: the clinicians, the person with parental responsibility and the child undergoing treatment (Nicolussi 2015). According to the Children Act 2004, parental responsibility extends to the child's parents if married at the time of conception or birth, the child's father if not married to the mother but who features on the birth certificate or the child's legally appointed guardian or a local authority who has been granted a care order in respect of the child.…”

Section: Consenting For Treatmentmentioning

confidence: 99%

Transplantation Through the Generations

Castagna

Mcmonagle²,

Eeltink

et al. 2017

The European Blood and Marrow Transplantation Textbook for Nurses

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Biologically, a child is a human being between the stages of birth and puberty. The legal definition of child generally refers to a minor, otherwise known as a person younger than the age of majority (Oxford University Press (Accessed 5th January 2013)). The ability to cure children with cancer has radically improved over the recent decades. Today, more than 80% of children with cancer are cured of their disease (Franklin 2014). This incredible achievement is one of the greatest triumphs in the history of medicine and is the result of numerous factors, including developments in paediatric haematopoietic stem cell transplantation (HSCT). Treatment advances for the sick child have been accomplished in various cancer treatments including chemotherapy, surgery, radiotherapy and HSCT. Whilst these therapies have vastly improved outcomes in childhood cancers, there remains scope for further improvement. Keywords HSCT • Paediatric 8.1.1 The Role of EBMT in Paediatric HSCT Changes in HSCT approaches are responsible for progress in this particular area. The role and status of transplantation have evolved. It is no longer considered a salvage therapy for patients in desperate circumstances but is now the treatment of choice for many diseases. The history of paediatric HSCT in Europe began in Poland in 1949 (Raszek-Rosenbusch), with therapeutic transfusion of bone marrow in children with leukaemia and other blood diseases. Subsequent developments in paediatric HSCT were driven on by the creation in 1974, of

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Section: Consenting For Treatmentmentioning

confidence: 99%

Transplantation Through the Generations

Castagna

Mcmonagle²,

Eeltink

et al. 2017

The European Blood and Marrow Transplantation Textbook for Nurses

View full text Add to dashboard Cite

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Transplantation Through the Generations

Castagna

Mekelenkamp

Mcmonagle

et al. 2023

The European Blood and Marrow Transplantation Textbook for Nurses

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Whilst the basic principles of HSCT remain the same, regardless of the age of the patient, there are a number of important additional considerations relating to transplantation of our younger and older patients and those of adolescent age. The principles outlined in this chapter serve as a valuable reminder supporting age-appropriate patient-centred care delivery. This chapter initially focuses on transplanting the child and its physiological and psycho-social aspects. Subsequently, the nursing challenges in the AYA population will be addressed. This chapter ends with considerations for treatment and care for the older adult.

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Parents’/Patients’ Perception of the Informed Consent Process and Surgeons Accountability in Corrective Surgery for Adolescent Idiopathic Scoliosis

Chan

Chong

Lee

et al. 2020

Spine

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Study Design. Prospective study. Objective. To determine the parents’/patients’ perception on the informed consent process prior to posterior spinal fusion (PSF) for adolescent idiopathic scoliosis (AIS) patients. Summary of Background Data. Understanding parents/patients perspective on the process is important in order to achieve the goal of consent and prevent medico-legal implications. Methods. Fifty AIS patients operated between August 2019 and November 2019 were prospectively recruited. Parents’/patients’ perceptions on three sections were evaluated: the process of the informed consent, specific operative risk which they were most concerned with and the accountability of surgeons for the surgical risks. These data were ranked and scored using a 5-point Likert Scale. Preferences were reported in mean and standard deviation. Differences in terms of preferences were studied using One-way analysis of variance (ANOVA) analysis and deemed significant when P < 0.05. Results. There were 30 females (60.0%) and 20 males (40.0%) with a mean age of 41.8 ± 10.6 years. Majority of parents/patients preferred the inform consent to be explained more than once (P = 0.021), once during clinic consultation and once during admission (4.2 ± 1.0). Consent taking by both attending surgeons was preferred (4.5 ± 0.6) compared with other healthcare providers, P < 0.001. Death (60.0%) and neurological deficit (30.0%) were the two most concerned surgical risks. Parents/patients would still hold the surgeon accountable for any complications despite signing the informed consent and they felt that surgeons were directly responsible for screw-related injuries (3.9 ± 0.9), neurological injury (3.8 ± 0.9), and intraoperative bleeding (3.7 ± 0.9). Conclusion. Parents/patients preferred the attending surgeons to personally explain the informed consent, more than once with the use of visual aid. They would still hold the surgeons accountable when complications occur despite acceptance of the informed consent. Level of Evidence: 2.

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Informed consent and minors

Cited by 3 publications

References 2 publications

Transplantation Through the Generations

Transplantation Through the Generations

Transplantation Through the Generations

Parents’/Patients’ Perception of the Informed Consent Process and Surgeons Accountability in Corrective Surgery for Adolescent Idiopathic Scoliosis

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