Information‐seeking and use of information resources among melanoma patients of German skin cancer centers

Brütting, Julia; Bergmann, Max; Garzarolli, Marlene; Rauschenberg, Ricarda; Weber, Christiane; Berking, Carola; Tilgen, Wolfgang; Schadendorf, Dirk; Meier, Friedegund

doi:10.1111/ddg.13630

Cited by 16 publications

(23 citation statements)

References 27 publications

(41 reference statements)

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“…This is consistent with a previous report by Brütting et al who surveyed melanoma patients from 27 German skin cancer centers and found that the majority used the internet and booklets as their preferred source of information [30,31]. The probability of rating the internet as an important information source was 2.2 times higher in melanoma patients aged ≤55 years [30]. However, an evaluation of German booklets has shown that most of them are of medium quality and difficult to read owing to incomplete reporting and insufficient meta-information [32].…”

Section: Discussionsupporting

confidence: 93%

“…Indeed, most patients in our study preferred to read a printed patient brochure for education to downloading and using a skin cancer app. This is consistent with a previous report by Brütting et al who surveyed melanoma patients from 27 German skin cancer centers and found that the majority used the internet and booklets as their preferred source of information [30,31]. The probability of rating the internet as an important information source was 2.2 times higher in melanoma patients aged ≤55 years [30].…”

Section: Discussionsupporting

confidence: 91%

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Patient Attitudes and Their Awareness Towards Skin Cancer–Related Apps: Cross-Sectional Survey

Steeb¹,

Wessely²,

Mastnik³

et al. 2019

JMIR Mhealth Uhealth

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Background In the emerging era of digitalization and electronic health, skin cancer–related apps represent useful tools to support dermatologic consultation and examination. Yet, little is known about how patients perceive the value of such apps. Objective The aim of this study was to investigate patient attitudes and their awareness toward skin cancer–related apps. Methods A cross-sectional study including 200 patients from the oncological outpatient unit was conducted at the University Hospital (LMU Munich, Germany) between September and December 2018. Patients were asked to complete a self-administered questionnaire on the popularity and usefulness of health-related and skin cancer–related apps. A descriptive analysis was performed with the expression of categorical variables as frequencies and percentages. For continuous variables, the median and range were indicated. Contingency tables and chi-square tests were performed to investigate associations between sociodemographic data and selected items of the questionnaire. Results A total of 98.9% (195/197) of patients had never used skin cancer–related apps or could not remember. In 49.7% (93/187) of cases, patients were unsure about the usefulness of skin cancer apps, whereas 42.6% (78/183) thought that skin cancer apps could supplement or support the professional skin examination performed by a physician. However, 47.9% (90/188) were interested in acquiring more information by their dermatologists about skin cancer apps. Young age ( P =.002), male gender ( P =.02), a previous history of melanoma ( P =.004), and higher educational level ( P =.002) were significantly associated with a positive attitude. Nevertheless, 55.9% (105/188) preferred a printed patient brochure on skin cancer to downloading and using an app. Conclusions The experience and knowledge of skin cancer–related apps was surprisingly low in this population, although there was a high general interest in more information about such apps. Printed patient brochures were the preferred information source.

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Section: Discussionsupporting

confidence: 93%

Section: Discussionsupporting

confidence: 91%

Patient Attitudes and Their Awareness Towards Skin Cancer–Related Apps: Cross-Sectional Survey

Steeb¹,

Wessely²,

Mastnik³

et al. 2019

JMIR Mhealth Uhealth

Self Cite

View full text Add to dashboard Cite

show abstract

“…The source of information was also investigated in many trials. [2][3][4] Printing media and TV were shown as the two most relevant sources for skin health information followed by physicians 2 ; however, a German survey (n = 529) concluded that 81% of patients consulted with their physicians, 43% with family/friends, and 29% with their health care professionals. 3 Besides, in recent years, internet use has increased as an information source.…”

mentioning

confidence: 99%

“…[2][3][4] Printing media and TV were shown as the two most relevant sources for skin health information followed by physicians 2 ; however, a German survey (n = 529) concluded that 81% of patients consulted with their physicians, 43% with family/friends, and 29% with their health care professionals. 3 Besides, in recent years, internet use has increased as an information source. [4][5][6] In conclusion, significant insufficiency in awareness and general knowledge about MM, particularly regarding protection, was observed.…”

mentioning

confidence: 99%

Awareness on malignant melanoma and its prevention measures among Turkish cutaneous malignant melanoma patients: A tertiary cancer center experience

Taş

Cinar

Ertürk

2020

Dermatologic Therapy

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Many genetic and phenotypic risk factors connected to malignant melanoma (MM) have been extensively studied and documented in the literature. Among them, sun exposure is considered one of the main causative factors for the development of MM. The risk is increased especially when vulnerable persons are subjected to sun intensely and intermittently. Therefore, creating a balance between sun exposure and protection measures, such as sun avoidance, is cru

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“…Nevertheless, patients expect their physicians to advise them about information resources such as the internet or booklets, which they could use in addition to medical consultations, as has been demonstrated in a crosssectional survey of melanoma patients in 27 German skin cancer centers. 26 In another analysis, the authors also highlighted that younger clinicians tend not to recommend additional sources of information and support in contrast to older clinicians, while non-recommending of decisionaids was irrespective of the clinicians' gender and qualification. 27 Hence, especially younger dermatooncologists should be encouraged to involve their patients in the decision-making processes about the disease or respective treatment.…”

Section: General Impressionmentioning

confidence: 99%

Experiences of In-Patients with Skin Cancer in a German University Hospital Setting: A Cross-Sectional Survey

Steeb

Wessely

Merkl

et al. 2021

PPA

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Purpose: An important measure of hospital quality is the satisfaction of the patients receiving in-patient care. This cross-sectional study aimed to assess skin cancer patients' experiences in a university hospital setting as a measure of quality of cancer care. Patients and Methods: Questionnaires were mailed to patients with skin cancer after receiving in-patient overnight treatment in the dermatological unit of the university hospital Erlangen (Germany) from 1 September to 30 November 2017. Patients were asked to evaluate their overall experience of this episode of care and to complete the Picker Inpatient Survey questionnaire on specific aspects of their care, such as patient satisfaction regarding contact with staff, need for information, recommendation of the hospital as well as tumor-specific questions. The results were re-coded as problems and reported as frequencies and their percentage. Results: A total of 103 of 159 questionnaires were returned (64.8%). All patients rated the treatment and care they had received to be good or very good. Additionally, all patients would recommend our in-patient clinic to their families or friends. The patients most commonly criticized inconsistency of care delivered by the same physician (29.7%, 30/ 101) and feeling of insufficient involvement in the decision-making processes (21.1%, 20/ 95). Besides this, 19.0% (11/58) and 34.6% (18/52) of patients were not satisfied with physicians and nurses, respectively, appropriately addressing their fears or anxieties. In the cancer-specific questionnaire, the majority of patients were dissatisfied with further support regarding professional and social rehabilitation possibilities (85.7%, 30/35) and psychooncology (56.3%, 18/32). Conclusion: Overall, the majority of patients were satisfied with the in-patient skin cancer treatment. However, physicians and nurses can enhance patient satisfaction by addressing patients' fears and anxieties regarding their disease and treatment. Besides, our results highlight the importance of psycho-oncological support.

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Information‐seeking and use of information resources among melanoma patients of German skin cancer centers

Abstract: Most MPs expected their physician to advise them about IRs they could use in addition to medical consultations. Peer support services were quite underused by MPs. The various preferences of media by MPs should be considered when deve-loping and providing IRs.

Cited by 16 publications

References 27 publications

Patient Attitudes and Their Awareness Towards Skin Cancer–Related Apps: Cross-Sectional Survey

Patient Attitudes and Their Awareness Towards Skin Cancer–Related Apps: Cross-Sectional Survey

Awareness on malignant melanoma and its prevention measures among Turkish cutaneous malignant melanoma patients: A tertiary cancer center experience

Experiences of In-Patients with Skin Cancer in a German University Hospital Setting: A Cross-Sectional Survey

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