Information needs of women during early treatment for breast cancer

Graydon, Jane E.; Galloway, Susan; Palmer-Wickham, Sherrol; Harrison, D; Bij, Louanne Rich-van der; West, Pamela; Burlein-Hall, Stephanie; den, Barbara Evans‐Boy

doi:10.1046/j.1365-2648.1997.1997026059.x

Cited by 155 publications

(118 citation statements)

References 20 publications

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“…It is widely accepted that most women with invasive breast cancer require adequate information to help them accept and adjust to the diagnosis (Graydon et al, 1997) and this can enhance psychological well-being (Okamura et al, 2003). This study suggests that DCIS patients have similar needs, requiring accurate and sufficient information to facilitate adjustment, but importantly in the case of DCIS, information is needed particularly to achieve an understanding of an unfamiliar and complex condition.…”

Section: Discussion and Implications For Nursingmentioning

confidence: 85%

The challenge of being diagnosed and treated for ductal carcinoma in situ (DCIS)

Kennedy¹,

Harcourt²,

Rumsey³

2008

European Journal of Oncology Nursing

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Following the introduction of the National Health Service Breast Screening Programme (NHSBSP) in the UK increasing numbers of women are diagnosed with ductal carcinoma in situ (DCIS). In DCIS, the cancer cells are confined to the ducts of the breast but considerable uncertainty surrounds the condition. Patients are often reassured that it is non-invasive and not life-threatening but they are recommended similar treatments to patients with invasive breast cancer. Little research has investigated the psychosocial impact of DCIS; therefore the aim of this qualitative study was to explore women's experiences of the condition. Semi-structured interviews were conducted with a purposive sample of 16 women previously diagnosed and treated for DCIS. Thematic analysis identified six key themes: 1) Invisibility of DCIS, 2) Uncertainty, 3)Perceptions of DCIS, 4) Acceptance of Treatment, 5) Social Support and 6) Moving On.The results highlight the substantial challenges faced by women diagnosed with DCIS.These findings have clear significance for healthcare professionals, especially specialist nurses, who work closely with DCIS patients.

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Section: Discussion and Implications For Nursingmentioning

confidence: 85%

The challenge of being diagnosed and treated for ductal carcinoma in situ (DCIS)

Kennedy¹,

Harcourt²,

Rumsey³

2008

European Journal of Oncology Nursing

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“…The 'Expected benefits from routine followup' and 'Needs and preferences in routine follow-up' were measured with a self-developed questionnaire, because existing questionnaires (Degner et al, 1997;Graydon et al, 1997;Mesters et al, 2001) were unsuitable for measuring specific needs and benefits in breast cancer routine follow-up. In a pilot study, the feasibility of the questionnaire was tested, for acceptability and understanding, among 15 women who were in follow-up at our breast clinic and who were treated for invasive breast cancer before January 1998.…”

Section: Measurementsmentioning

confidence: 99%

Patients needs and preferences in routine follow-up after treatment for breast cancer

Bonnema

Bock²,

Zwaan³

et al. 2004

European Journal of Cancer Supplements

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The purpose of the study was to analyse the needs of women who participated in a routine follow-up programme after treatment for primary breast cancer. A cross-sectional survey was conducted using a postal questionnaire among women without any sign of relapse during the routine follow-up period. The questionnaire was sent 2 -4 years after primary surgical treatment. Most important to patients was information on long-term effects of treatment and prognosis, discussion of prevention of breast cancer and hereditary factors and changes in the untreated breast. Patients preferred additional investigations (such as X-ray and blood tests) to be part of routine follow-up visits. Less satisfaction with interpersonal aspects and higher scores on the Hospital Anxiety and Depression Scale (HADS) scale were related to stronger preferences for additional investigation. Receiving adjuvant hormonal or radiotherapy was related to a preference for a more intensive follow-up schedule. There were no significant differences between patients treated with mastectomy compared to treated with breast-conserving therapy. During routine follow-up after a diagnosis of breast cancer, not all patients needed all types of information. When introducing alternative follow-up schedules, individual patients' information needs and preferences should be identified early and incorporated into the follow-up routine care, to target resources and maximise the likelihood that positive patient outcomes will result.

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“…There is growing evidence in the literature of the effectiveness of nurse-given patient education on increase in knowledge acquisition and promotion of self-care behaviours (Derdiarian, 1989;Dodd, 1981Dodd, , 1982aDodd, , 1982bDodd, , 1983Dodd, , 1984aDodd, , 1984bDodd, , 1984cDodd, , 1987Dodd, , 1988aDodd, , 1988bDodd et al, 1996;Graydon et al, 1997;Luker et al, 1995;Nettles-Carlson, Field, Friedman & Smith, 1988;Thomas & Dodd, 1992;Weintraub & Hagopian, 1990). Also, the need to study the cost-effectiveness of nursing care has been identified by a number of authors (Henry et al, 1987;Hermansdorfer, Henry, Moody & Smyth, 1990;Ingersoll, Hoffart & Schultz, 1990).…”

Section: Literature Reviewmentioning

confidence: 99%