Information needs of people with low back pain for an online resource: a qualitative study of consumer views

Nielsen, Mandy; Jull, Gwendolen; Hodges, Paul W.

doi:10.3109/09638288.2013.829532

Cited by 30 publications

(30 citation statements)

References 26 publications

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“…Panellists were unequivocal in recommending that women seek professional advice from their healthcare team and consult appropriately qualified organisations, such as arthritis consumer organisations and breast feeding organisations, for more information. Notably, while internet searching is important to consumers in this context,6 41 data from recent studies examining website quality as it relates to chronic pain suggest it is highly variable 4243…”

Section: Discussionmentioning

confidence: 99%

Establishing cross-discipline consensus on contraception, pregnancy and breast feeding-related educational messages and clinical practices to support women with rheumatoid arthritis: an Australian Delphi study

Briggs

Jordan²,

Ackerman

et al. 2016

BMJ Open

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ObjectiveRecognising the need for a best-practice and consistent approach in providing care to women with rheumatoid arthritis (RA) in relation to (1) general health, (2) contraception, (3) conception and pregnancy, (4) breast feeding and (5) early parenting, we sought to achieve cross-discipline, clinical consensus on key messages and clinical practice behaviours in these 5 areas.Design3-round eDelphi study. In round 1, panellists provided free-text responses to open-ended questions about care for women with RA across the 5 areas. Subsequently, panellists refined and scored the synthesised responses, presented as metathemes, themes and detailed elements. Where ≥5% of panellists did not support a theme in a given round, it was removed.SettingPanel of practicing Australian rheumatologists (n=22), obstetricians/obstetric medicine physicians (n=9) and pharmacists (n=5).Results34 (94.4%) panellists participated in all 3 rounds. The panel supported 18 themes across the 5 areas (support/strongly support: 88.2–100%) underpinned by 5 metathemes. Metathemes focused on coordination in information delivery, the mode and timing of information delivery, evidence underpinning information, engagement of the right health professionals at the right time and a non-judgemental approach to infant feeding. Themes included practices for primary prevention of chronic disease and their sequelae, the importance of contraception and planning pregnancy and breast feeding, close monitoring of medications, supporting mental well-being, managing disease activity and providing practical support for early parenting.ConclusionsA cross-disciplinary clinical panel highly supported key information and clinical practices in the care for women with RA across the continuum of contraception to early parenting within a whole-person, chronic disease management approach.

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Section: Discussionmentioning

confidence: 99%

Establishing cross-discipline consensus on contraception, pregnancy and breast feeding-related educational messages and clinical practices to support women with rheumatoid arthritis: an Australian Delphi study

Briggs

Jordan²,

Ackerman

et al. 2016

BMJ Open

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show abstract

“…People with chronic pain desire online programs that include information, activities and tools that will help them feel equipped to gain back control [26,31]. Our study participants often described that they appreciated receiving positive affirmations and reminders as part of the program and that this allowed them to check in with their progress.…”

Section: Discussionmentioning

confidence: 99%

“…Including subjective, individualized components to online programs is a common thread noted throughout the literature to meet participants' needs [24,25,26,31]. While the CPMP does offer daily tracking and activity scheduling that can be personalized, these features were also ones that seemed to cause the most technical difficulties for some participants.…”

Section: Discussionmentioning

confidence: 99%

“Focus on the Good” - Participant Perspectives after Engaging in an Online Pain Self-Management Program

Wilson¹,

Shaw

2017

Proceedings of the 50th Hawaii International Conference on System Sciences (2017)

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The purpose of this study was to evaluate participants' perspectives after engaging in an 8-week online pain self-management program. Unexplored qualitative data for this analysis were collected via secure online surveys distributed during a previously published randomized controlled trial. Participants for the present study were 55 adults prescribed opioid medicines for chronic pain. A qualitative descriptive approach using content analysis methods was used to analyze data obtained from three open-ended survey questions. Five common themes were identified from participant responses regarding online participation. Three themes described the benefits of the program and included: positive reframing, improved accountability, and feeling supported. Two themes described how participants would like to improve the program experience and included: desire for personalizing and ease of use. Participants' insights regarding perceived benefits and limitations can assist health care providers in understanding how online programs may assist in chronic disease selfmanagement for a multitude of health problems.

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“…The Internet has become a leading resource for the dissemination of health information to the public (Ahmed et al., ; Bailey et al., ; Demetriades et al., ; Nielsen et al., ; Palermo et al., ; Valenzuela‐Pascual et al., ). Over 3.3 billion people access the Internet worldwide (Miniwatts Marketing Group, ) and 80% of users within the United States are estimated to access health information online (Fox, ).…”

Section: Introductionmentioning

confidence: 99%

“…Popularity of the search term ‘lower back pain’ within the Google search engine has been consistently increasing (Google, ), compared to other related search terms that are specific to the lower back (Google, ), an observation that reflects the public trend towards seeking freely available online LBP information. Education is a critical aspect to LBP management (Dagenais et al., ); therefore, it seems reasonable to suggest that increased access to health information could aid in the management of such a burden, yet LBP disability remains substantially high as online access to health information continues to rise (Ahmed et al., ; Bailey et al., ; Demetriades et al., ; Nielsen et al., ; Palermo et al., ; Valenzuela‐Pascual et al., ). An understanding of current online LBP information and how its content compares to a current understanding of LBP is critical if the Internet is to become an effective educational resource in LBP management.…”

Section: Introductionmentioning

confidence: 99%

A biopsychosocial understanding of lower back pain: Content analysis of online information

Black

Sullivan

Mani

2017

European Journal of Pain

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Information needs of people with low back pain for an online resource: a qualitative study of consumer views

Cited by 30 publications

References 26 publications

Establishing cross-discipline consensus on contraception, pregnancy and breast feeding-related educational messages and clinical practices to support women with rheumatoid arthritis: an Australian Delphi study

Establishing cross-discipline consensus on contraception, pregnancy and breast feeding-related educational messages and clinical practices to support women with rheumatoid arthritis: an Australian Delphi study

“Focus on the Good” - Participant Perspectives after Engaging in an Online Pain Self-Management Program

A biopsychosocial understanding of lower back pain: Content analysis of online information

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