Information needs of parents of children admitted to a neonatal intensive care unit

Rouck, Sofie De; Leys, Mark

doi:10.1016/j.pec.2009.01.014

Cited by 114 publications

(125 citation statements)

References 101 publications

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“…brochures, books, and posters), many parents report feeling stressed and often actively seek alternative ways to find information. 6,7 As technology continues to become widely used, many parents are turning to the Internet to find out more about their children's medical health needs. 8,9 In a qualitative survey conducted by Sundstrom, 9 one participant articulated: "I do that for everything-go online.…”

mentioning

confidence: 99%

Learning to parent from Google? Evaluation of available online health evidence for parents of preterm infants requiring neonatal intensive care

Dol¹,

Richardson

Boates

et al. 2018

Health Informatics J

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The study aim was to identify and evaluate the reliability and quality of online resources for parents of preterm infants seeking health information about their infant using the DISCERN tool and Health on Net code. An Internet search (www.google.com) was used to identify websites for parents of preterm infants on their infants' health and health issues. For each search, the top 100 "hits" were downloaded, yielding 1200 websites. After reviewing websites for exclusion criteria and duplicates, 197 websites remained and were analyzed. According to the DISCERN tool, the websites had a moderate reliability score (mean = 29.88, standard deviation = 4.88, range: 18-40), moderate treatment score (mean = 24.15, standard deviation = 5.79, range: 10-35), and moderate overall quality score (mean = 3.41, standard deviation = 0.89, range: 1-5). Only 24 (12.2%) websites had current Health on Net code approval and no other websites met full eligibility for certification. Overall, the reliability and quality of information available online to parents of preterm infants is lacking.

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mentioning

confidence: 99%

Learning to parent from Google? Evaluation of available online health evidence for parents of preterm infants requiring neonatal intensive care

Dol¹,

Richardson

Boates

et al. 2018

Health Informatics J

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show abstract

“…Parents of children admitted in NICU need lots of information to engage in the treatment process and supportive care. Health care professionals in NICU, printed materials, audio recording of neonatologist consultation consider useful and worthy information source [4]. If parents omitted from care and decision making process, they would stop feeling responsibility [8].…”

Section: Discussionmentioning

confidence: 99%

“…Physicians and nurses are the main sources of information. Teaching and training courses during admission days about post discharge care would be a great help for parents [4]. Lindberg in 2009 reported that parents were satisfied with a videoconference program as a link between NICU and home after home coming with infants.…”

Section: Discussionmentioning

confidence: 99%

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Evaluation of Parents’ Awareness and Knowledge about Problems and Issues Related to Their Premature Infants in an Iranian Hospital

Khalesi¹,

Anjom

Rezaeiezadeh³

et al. 2015

OJN

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Premature infant is an infant who was born before the end of 37th weeks of pregnancy. Approximately 9.6% of infants are premature and they can be at risk for hospitalization. This study has done for evaluation of awareness and knowledge of parents about problems of premature infants in Neonatal Intensive Care Unit (NICU). This was a descriptive study with 160 parents whose premature infants were admitted to NICU (Tehran-Iran, 2009-2011). Data were collected by a questionnaire for evaluation of awareness and knowledge of parents about problems of prematurity, and then analyzed by using descriptive analytic statistical methods and SPSS software. Based on the results, there was a significant relation between age and the total score of questionnaire (P = 0.022, R = 0.18). Mothers had higher awareness and knowledge than fathers (P < 0.05). The most awareness in parents was about doing of hygienic principle when they entered to NICU and about the importance of regularly and continuous attendance in ward. Awareness and knowledge of parents about problems of their premature infant were related to their age and being a mother or father. Parents had little knowledge about some NICU principles and premature infant's needs and care.

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“…42 The humanization in the communication process of difficult news, molds from the emotional expression, empathetic and caring anyway when there is the establishment of empathic communication links are and make necessary interventions. 43 The empathetic attitude and positive emotions are factors that give health care having effect on the good working relationship-familiar. 19 Such revelations require reflection on the relationship of professionals and family members in the communication process, because the words ratified the settings of these authors to defend that when family members have better communication and relationship with humanized the professionals have the opportunity to better understand the disease and its dynamics.…”

Section: Sub-theme 2: Structural Elements For Reporting Difficult Newmentioning

confidence: 99%

Dimensões qualificadoras para a comunicação de notícias difíceis na unidade de terapia intensiva neonatal Dimensions qualifying for communication of difficult news in neonatal intensive care unit

Cabeça

Sousa

2017

R. pesq. cuid. fundam. online

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Objetivo: Compreender dimensões qualificadoras para a comunicação de notícias difíceis em Unidade de Terapia Intensiva Neonatal. Método: Estudo exploratório descritivo, qualitativo apoiado pela Análise Temática. Foram sujeitos de pesquisa 10 mães de recém-nascidos e 14 profissionais da terapia intensiva neonatal. Resultados: A utilização de estratégias auxiliadoras no/para a comunicação das notícias difíceis na UTIN foram reveladas nas falas dos participantes da investigação como facilitadoras para o processo de interação entre profissionais, mães e famílias, permitindo nesse tipo de comunicação, reduzir o sofrimento dos envolvidos, favorecer apoio e suporte à mãe e à família e ampliar segurança para ultrapassar dificuldades e desafios. Conclusão: os resultados sugerem competências relacionais, interpessoais e comunicacionais a partir de uma perspectiva ampliada do cuidado que ultrapassa a dimensão técnica e tecnológica tão prevalentes em terapia intensiva.Descritores: Enfermagem. Comunicação. Notícias difíceis. Unidade de Terapia Intensiva Neonatal.

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Information needs of parents of children admitted to a neonatal intensive care unit

Cited by 114 publications

References 101 publications

Learning to parent from Google? Evaluation of available online health evidence for parents of preterm infants requiring neonatal intensive care

Learning to parent from Google? Evaluation of available online health evidence for parents of preterm infants requiring neonatal intensive care

Evaluation of Parents’ Awareness and Knowledge about Problems and Issues Related to Their Premature Infants in an Iranian Hospital

Dimensões qualificadoras para a comunicação de notícias difíceis na unidade de terapia intensiva neonatal Dimensions qualifying for communication of difficult news in neonatal intensive care unit

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