Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting

Kerr, Joanna; Hilari, Katerina; Litosseliti, Lia

doi:10.1080/02687030903383738

Cited by 24 publications

(11 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…If the clinician is not able to involve individuals with aphasia or dysphasia in the “goal-setting process”[37], it is important to resort to other means such as involving their families, or using card sorting [23,24]. The disconnect between the expectations of clinicians and stroke survivors and their caregivers can be attributed to the patient complexities including, patient’s personal characteristics, availability of support, social determinants, and health system factors geared towards discharging patients sooner from the hospital [38].…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Patient-centered mobility outcome preferences according to individuals with stroke and caregivers: a qualitative analysis

Krishnan

Pappadis

Weller

et al. 2017

Disability and Rehabilitation

View full text Add to dashboard Cite

Purpose To explore the mobility-related preferences among stroke survivors and caregivers following post-acute rehabilitation at inpatient or skilled nursing facilities. Methods In this cross-sectional study; semi-structured, qualitative interviews of stroke survivors (n=24) and informal caregivers (n=15) were conducted. The participants were recruited from the community. Results Comparative content analysis was used to identify themes by two independent coders. The survivors (68 years) and caregivers (58 years) mentioned mobility related consequences including inability to walk, balance, drive, and transfer; and increased falls. The survivors (63%) and caregivers (73%) also mentioned the use of assistive devices. The common rehabilitation activities included: walking (62%); followed by standing and mobility; strength and balance; and wheelchair skills. Some stroke survivors were dissatisfied as their rehabilitation was not patient-centered. Frequently mentioned outcome preferences by survivors were ability to walk (88%), move, and balance. They also wanted to acquire assistive devices to move independently. Caregivers were concerned with the survivor’s safety and wanted them to drive (53%), prevent falls, have home accommodations, and transfer independently. Caregivers (40%) also expressed the importance of receiving realistic information. Conclusions This study suggests a need to consider the stroke survivors’ and caregivers’ mobility outcome preferences to improve the patient-centered rehabilitation care.

show abstract

Section: Discussionmentioning

confidence: 99%

“…Some questions were rephrased so that they could point out to yes/no cue cards so that they could point out and prioritize their preferred ones using the card sorting method [24]. Field notes were documented for these individuals with aphasia, to record their responses since most of the times the audio could not capture their responses.…”

Section: Methodsmentioning

confidence: 99%

Patient-centered mobility outcome preferences according to individuals with stroke and caregivers: a qualitative analysis

Krishnan

Pappadis

Weller

et al. 2017

Disability and Rehabilitation

View full text Add to dashboard Cite

show abstract

“…In another paper a so-called secondary information need is mentioned, that means that the medium (the web) and the use of this medium are mentioned to help with obtaining access to the needed information (Kerr, Hilari & Litosseliti 2010: 1185.…”

Section: Examples From the Literaturementioning

confidence: 99%

“… "The findings of the present study highlight the changing pattern of patients" preferences and information needs during the evolving clinical situation; therefore, clinicians should be sensitive to such changes" (Decker et al 2007: 464).  "Placing information on the website will enable people with stroke and their families to access information about particular topics as their needs change over time and at a time, place, and pace to suit them" (Kerr, Hilari & Litosseliti 2010: 1185.  "In response to changing situations, events and experiences information needs and preferences for information inevitably change.…”

Section: Examples From the Literaturementioning

confidence: 99%

“Information needs changing over time”: a critical discussion

Bothma

Bergenholtz

2013

South African Journal of Libraries and Information Science

View full text Add to dashboard Cite

Stable or unstable information needsThe statement that information needs change over time occurs quite frequently in information science literature. Neither "change" nor "over time" is, however, clearly defined and from the context of the use of the phrase it is clear that different authors interpret both concepts differently. Most of the articles are purely descriptive and don"t try to offer a theoretical discussion. In this paper we give an overview of examples as they occur in recent publications and discuss all variables that impact on the interpretation of these terms.The often-cited article by Belkin and Croft (1992) deals primarily with the relation between information filtering and information retrieval. They conclude that "information retrieval and information filtering are indeed two sides of the same coin. They work together to help people get the information needed to perform their tasks" (Belkin and Croft 1992: 37). One of the characteristics of information filtering, according to them, is that[i]nformation filtering is concerned with much larger data sets, and, generally, with information needs which are relatively stable over relatively long periods of time (Belkin and Croft 1992: 37).For this discussion the second part of this quotation is of primary importance: if there are information needs that are relatively stable over relatively long periods of time, the logical deduction is that there are also information needs that are relatively unstable over long or short periods of time. Instability implies change, i.e. it is safe to deduce that their description implies that information needs may change over time (regardless of the length of the time period). This is to a certain extent substantiated by the following quotation from Belkin and Croft (1992): relatively stable, long-term, or periodic goals or desires (e.g., accomplishing a work task, or being entertained) [...] then lead to regular information interests (e.g., keeping up-to-date on a topic) that may change slowly over time as conditions, goals, and knowledge change (Belkin and Croft 1992: 31).Even though they here refer to interests and not needs, the statement still supports the preceding deduction, as information interests imply or lead to information needs. They also imply that the changing information needs could be triggered by conditions external or internal to the user of the information: conditions can refer to the context or situation of the information need; goals are internal in the user of the information and knowledge could be either the knowledge of the user or refer to the "state of knowledge" (e.g. changes in factual knowledge as the world changes). Belkin and Croft (1992), however, do not discuss the issue of changing information needs any further. As this issue is not the focus of their article, they do not discuss either the nature of such changes in information needs or the concept "over time" in any detail. Does change, for example, refer to a gradual change in an existing information need, or does change imply a new...

show abstract

“…Kerr, Hilari, and Litosseliti (2010) investigated the information needs of stroke survivors, with and without aphasia. The requested information included "stroke causes and effects (particularly emotional issues), roles of local agencies, and returning to previous activities (driving, going out)" (p. 1170).…”

Section: Introductionmentioning

confidence: 99%