Informatics-Enabled Behavioral Medicine in Oncology

Hesse, Bradford W.; Suls, Jerry

doi:10.1097/ppo.0b013e318227c811

Cited by 17 publications

(8 citation statements)

References 81 publications

(98 reference statements)

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“…Although both system types are appropriate in oncology, there is a need for long-term monitoring across the cancer care continuum. 15 Our study identified increased development of patient-centered systems over the past 5 years, which may be due in part to this report, as well as the increasing ability to electronically capture patient data in care settings. Ideally, it would be useful for e-PRO systems to monitor patients throughout the course of care while capturing detailed information about patients' responses to specific treatments in order to balance these important objectives.…”

Section: Discussionmentioning

confidence: 92%

“…Although many large cancer centers have resources necessary to develop, run, and maintain an e-PRO system, limited capacity in smaller rural and community-based practice settings, where real-time monitoring is especially useful, can pose an issue. 15,20 As systems move further away from clinical settings, managing score-based alerts becomes challenging. System alerts occurring outside the clinic can be in the form of an electronic communication between patient and provider.…”

Section: Data Collection Featuresmentioning

confidence: 99%

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Review of Electronic Patient-Reported Outcomes Systems Used in Cancer Clinical Care

Jensen

Snyder

Abernethy

et al. 2014

JOP

277

210

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Purpose: The use of electronic patient-reported outcomes (PRO) systems is increasing in cancer clinical care settings. This review comprehensively identifies existing PRO systems and explores how systems differ in the administration of PRO assessments, the integration of information into the clinic workflow and electronic health record (EHR) systems, and the reporting of PRO information.Methods: Electronic PRO (e-PRO) systems were identified through a semistructured review of published studies, gray literature, and expert identification. System developers were contacted to provide detailed e-PRO system characteristics and clinical implementation information using a structured review form.Results: A total of 33 unique systems implemented in cancer clinical practice were identified. Of these, 81% provided detailed information about system characteristics. Two system classifications were established: treatment-centered systems designed for patient monitoring during active cancer treatment (n ϭ 8) and patient-centered systems following patients across treatment and survivorship periods (n ϭ 19). There was little consensus on administration, integration, or result reporting between these system types. Patient-centered systems were more likely to provide userfriendly features such as at-home assessments, integration into larger electronic system networks (eg, EHRs), and more robust score reporting options. Well-established systems were more likely to have features that increased assessment flexibility (eg, location, automated reminders) and better clinical integration. Conclusion:The number of e-PRO systems has increased.Systems can be programmed to have numerous features that facilitate integration of PRO assessment and routine monitoring into clinical care. Important barriers to system usability and widespread adoption include assessment flexibility, clinical integration, and high-quality data collection and reporting.

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Section: Discussionmentioning

confidence: 92%

Section: Data Collection Featuresmentioning

confidence: 99%

Review of Electronic Patient-Reported Outcomes Systems Used in Cancer Clinical Care

Jensen

Snyder

Abernethy

et al. 2014

JOP

277

210

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“…As treatment progresses, the oncologist may introduce the patient to a nurse navigator to help schedule appointments, arrange for tests, and report symptoms. These services provide informational support from the environment to complement the patient's evolving knowledge about their condition(s) [27].…”

Section: A Health Systems Perspective On Health Literacymentioning

confidence: 99%

The health information national trends survey (HINTS): A resource for consumer engagement and health communication research

Hesse

Greenberg

Peterson

et al. 2017

ISU

Self Cite

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Abstract. The contemporary healthcare system can help improve health literacy outcomes in two ways: first, by nurturing the skills and motivations needed for patients to be actively engaged in their own health and healthcare decisions; and, second, by creating a prepared and proactive healthcare system that adapts to patients' capacities and needs in efficacious ways. In 2001, the National Cancer Institute launched the Health Information National Trends Survey (HINTS) as a way for researchers and planners to understand how the public is interacting with a rapidly changing health information environment. Original iterations of the HINTS national probability sampling strategies took place on a biennial basis, but in subsequent years the protocol moved to a yearly administration. This yields a rich resource of cross-sectional, national surveillance data to evaluate for trends across and within vulnerable populations. Sixteen studies are presented from the published literature to illustrate how HINTS data were used to explore constructs of direct interest to health literacy researchers. Suggestions are given for how this ongoing public surveillance mechanism can be used: (a) to provide a sentinel view of how the public is interacting with information in the environment to address their health needs; (b) to generate research questions and hypotheses for further exploration using complementary methodologies; and (c) to explore the diffusion of new health communication channels within and between segments of the national population.

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“…Likewise, the National Institutes of Health is partnering with the National Science Foundation to create improved participatory platforms for turning "Big Data" into practicable knowledge. Ultimately, the goal is to help coordinate efforts and improve situational awareness with highly accessible community dashboards and other types of data visualizations (68,69). Kreuter noted that the best innovations in cancer communication do not necessarily achieve broad uptake by researchers, public health and clinical practitioners, and policy makers (70).…”

Section: Goal 3: Align Systemsmentioning

confidence: 99%

Partnering Against Cancer Today: A Blueprint for Coordinating Efforts Through Communication Science

Hesse

Cole²,

Powe³

2013

JNCI Monographs

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One of the hallmarks of the communication revolution over the past decade has been its support for participation, whether that be in the active engagement of patients searching the Web for answers to vital health questions, or in the collective energies of self-organizing communities through social media. At the same time, some of the major obstacles to achieving a full and equitable reach of evidence-based cancer control knowledge have been traced back to discontinuities in communication either within clinical care or the broader public awareness system. Communication scientists from the National Cancer Institute, the Centers for Disease Control and Prevention, and the American Cancer Society joined forces in 2010 to investigate ways in which communication science can be used to improve coordination and enhance participation in cancer control for the nation. From 2010 to 2013, the three organizations worked together in 1) convening two meetings designed to assess the status of funded research in communication science, 2) completing a systematic review of literature published over the previous 10 years, and 3) authoring a blueprint for coordinated efforts using the implications of communication science. The blueprint consists of three major goals: first, to identify high-yield targets of opportunity using the health impact pyramid articulated by Centers for Disease Control and Prevention Director, Thomas Frieden; second, to leverage opportunities within the new communication environment, including the opportunities catalyzed by national efforts to create an infrastructure for evidence implementation through health information technology; and third, to assist in coordinating efforts across collaborative entities through participative media.

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Informatics-Enabled Behavioral Medicine in Oncology

Cited by 17 publications

References 81 publications

Review of Electronic Patient-Reported Outcomes Systems Used in Cancer Clinical Care

Review of Electronic Patient-Reported Outcomes Systems Used in Cancer Clinical Care

The health information national trends survey (HINTS): A resource for consumer engagement and health communication research

Partnering Against Cancer Today: A Blueprint for Coordinating Efforts Through Communication Science

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