Informal Caregiving Burden in Advanced Non-small Cell Lung Cancer: The HABIT study

Gridelli, Cesare; Ferrara, Carmine; Guerriero, Ciro; Palazzo, Salvatore; Grasso, Giuseppe; Pavese, Ida; Satta, F.; Bajetta, Emilio; Cortinovis, Diego; Barbieri, Fausto; Gebbia, Vittorio; Grossi, Francesco; Novello, Silvia; Baldini, Editta; Gasparini, Giampietro; Latino, Walter; Durante, E; Giustini, Lucio; Negrini, C

doi:10.1097/01.jto.0000275342.47584.f3

Cited by 20 publications

(12 citation statements)

References 21 publications

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“…Also, in this case, costs were reported as incremental cost per patient per month, and adjustments were made for the number of SREs per year. Other SRErelated costs, associated with the use of skilled nursing facilities, strong opioid usage, caregiver burden, and short-term disability and productivity loss, were calculated based on multiple sources, and are described in Table 5 (Amgen data on file, 2017) 11,[48][49][50][51][52] . All values were adjusted for inflation by multiplying the cost by the Medical Care consumer price index of March 2017.…”

Section: Costsmentioning

confidence: 99%

A cost-effectiveness analysis of denosumab for the prevention of skeletal-related events in patients with multiple myeloma in the United States of America

Roodman

Willenbacher

Shimizu

et al. 2018

Journal of Medical Economics

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Section: Costsmentioning

confidence: 99%

A cost-effectiveness analysis of denosumab for the prevention of skeletal-related events in patients with multiple myeloma in the United States of America

Roodman

Willenbacher

Shimizu

et al. 2018

Journal of Medical Economics

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“…Ferrell & Mazanec, 2009). Added to these intense demands is the reality of lung cancer as a disease with frequent recurrence in early stage disease and death in late stage disease (Gridelli et al, 2007; Ryan, Howell, Jones, & Hardy, 2008). …”

Section: Introductionmentioning

confidence: 99%

Family Caregiver Burden, Skills Preparedness, and Quality of Life in Non-Small Cell Lung Cancer

Grant¹,

Sun²,

Fujinami³

et al. 2013

Oncology Nursing Forum

178

134

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Purpose/Objectives Describe burden, skills preparedness, and QOL for caregivers of patients with NSCLC, and describe how findings informed the development of a caregiver palliative care intervention that aims to reduce caregiver burden, improve caregiving skills, and promote self-care. Design Descriptive, longitudinal. Setting One NCI-designated comprehensive cancer center in Southern California. Sample A total of 163 family members or friends who were 18 years or older and identified by patients as being the caregiver were accrued. Methods All eligible caregivers were approached by advance practice nurses (APNs) during a regularly scheduled patient clinic visit. Informed consent was obtained prior to study participation. Outcome measures were completed at baseline and repeated at 7, 12, 18, and 24 weeks. Descriptive statistics were computed for all variables, and one-way repeated measures Analysis of Variance (ANOVA) was used to test for change over time for all predictor and outcome variables. Main Research Variables Caregiver burden, skills preparedness, psychological distress, and QOL. Findings Caregivers were highly functional. Caregiver burden related to subjective demands increased significantly over time. Perceived skills preparedness was high at baseline, but decreased over time. Psychological distress was moderate but increased over time. Overall QOL was moderate at baseline, and decreased significantly over time. Psychological well-being had the worst QOL score. Conclusions Caregivers experienced high levels of caregiver burden, and report deteriorations in psychological well-being and overall QOL over time. Implications for Nursing Oncology nurses need to ensure that caregivers receive information that supports the caregiving role throughout the cancer trajectory.

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“…The mechanisms through which lung cancer and its treatments affect sexuality and intimacy are likely multifactorial, including biological, psychological, and interpersonal pathways, as with other cancer types. For most lung cancer patients, a spouse is the primary caregiver and the most important social relationship 2. Negative emotional consequences from providing care include distress, depression, anxiety, fear, and marital strain that can further contribute to poor health outcomes for the partner and the patient 3, 4.…”

Section: Introductionmentioning

confidence: 99%

Communication about sexuality and intimacy in couples affected by lung cancer and their clinical‐care providers

et al. 2011

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OBJECTIVE Little is known about the effects of lung cancer on intimate and sexual relationships. This study explores health care provider, patient, and partner perspectives on: 1) the effects of lung cancer on physical and emotional intimacy, 2) the ways in which intimacy affects the experience of living with lung cancer, and 3) communication about intimacy and sexuality in the context of lung cancer. METHODS Qualitative, in-depth interviews with 8 cancer care providers and 13 married couples (ages 43–79) affected by lung cancer were conducted and audiotaped in the clinical setting. Interviews were transcribed, iteratively analyzed, and coded according to the above domains. Coding was performed independently by members of an interdisciplinary team; inter-rater reliability was assessed using the kappa statistic; and analyses were summarized by domain. RESULTS Most cancer care providers and couples affected by lung cancer believed intimacy and sexuality issues were salient, yet few reported discussing these. Couples described negative and positive effects of cancer on intimacy. Negative effects were driven by cancer or its treatment, including physical and psychological effects. Positive effects included an increase in non-coital physical closeness and appreciation of the spouse. Age was perceived as an important factor influencing the relationship between lung cancer and intimacy. CONCLUSIONS Emotional intimacy and sexuality are important concerns for couples affected by lung cancer. The findings suggest previously unrecognized positive effects of lung cancer on emotional and physical intimacy. Couples affected by lung cancer and providers believe these issues are relevant for lung cancer care.

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Informal Caregiving Burden in Advanced Non-small Cell Lung Cancer: The HABIT study

Abstract: Considering quality of life as the ultimate health outcome, clinicians are challenged to contribute to a research and policy agenda that holds burden of care in due consideration.

Cited by 20 publications

References 21 publications

A cost-effectiveness analysis of denosumab for the prevention of skeletal-related events in patients with multiple myeloma in the United States of America

A cost-effectiveness analysis of denosumab for the prevention of skeletal-related events in patients with multiple myeloma in the United States of America

Family Caregiver Burden, Skills Preparedness, and Quality of Life in Non-Small Cell Lung Cancer

Communication about sexuality and intimacy in couples affected by lung cancer and their clinical‐care providers

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