Informal caregivers’ views on the quality of healthcare services provided to older patients aged 80 or more in the hospital and 30 days after discharge

Lilleheie, Ingvild; Bye, Asta; Bergland, Astrid

doi:10.21203/rs.2.17065/v3

Cited by 4 publications

(4 citation statements)

References 41 publications

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“…Our findings identified that FCs appreciated that the interventions place the onus on healthcare providers to initiate communication. That FCs recognized their need for information but did not know what questions to ask concurs with other studies [47][48][49]. In a systematic review of the literature of how healthcare consumers enact involvement in care, Murray concluded that many healthcare consumers are receptive to receiving information but do not have the capacity to actively seek out the information they need [41] which may be related to health literacy (i.e., the ability to retrieve, process, and use health information) [50].…”

Section: Discussionsupporting

confidence: 82%

Family caregivers’ perspectives on the acceptability of four interventions proposed for rural transitional care: A multi-method study

et al. 2022

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Background There is a critical need for hospital-to-home transitional care interventions to prepare family caregivers for patients’ post-discharge care in rural communities. Four evidence-based interventions (named discharge planning, treatments, warning signs, and physical activity) have the potential to meet this need but family caregivers’ perspectives on the acceptability of the interventions have not been examined. This gap is significant because unacceptable interventions are unlikely to be used or used as designed, thereby undermining outcome achievement. Accordingly, this study examined the perceived acceptability of the four interventions to rural family caregivers. Materials and methods A multi-method descriptive design was used. The quantitative method entailed the administration of an established scale to assess the interventions’ perceived acceptability to family caregivers. The qualitative method involved semi-structured interviews to explore family caregivers’ perceived acceptability of the interventions in greater depth, including acceptable and unacceptable aspects, in the context of their own transitional care experience. Participants were the family caregivers of a relative who had been discharged home in a rural community from an acute care hospital in Ontario, Canada. Results The purposive sample included 16 participants who were mostly middle-aged women (n = 14; 87.5%) caring for a parent (n = 9; 56.3%) at high risk for hospital readmission. The mean scores on the acceptability measure were 3 or higher for all interventions, indicating that, on average, the four interventions were perceived as acceptable. In terms of acceptable aspects, four themes were identified: the interventions: 1) involve family caregivers and proactively prepare them for discharge, 2) provide clear, written, and detailed guidance, 3) place the onus on healthcare providers to initiate communication, and 4) ensure post-discharge follow-up. In terms of unacceptable aspects, one theme was identified: the physical activity intervention would be challenging to implement. Discussion The findings support implementing the four interventions in practice throughout the hospital-to-home transition. Healthcare providers should assess family caregivers’ comfort in participating in the physical activity intervention and tailor their role accordingly.

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Section: Discussionsupporting

confidence: 82%

Family caregivers’ perspectives on the acceptability of four interventions proposed for rural transitional care: A multi-method study

et al. 2022

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“…Since transitions from one care organization to another are common in the LYOL, this might explain the low degree of satisfaction. Other studies from the perspective of informal caregivers have also observed problems in discharge management and unorganized transitions [30]. Future surveys using the same instrument may observe improvements in discharge management.…”

Section: Discussionmentioning

confidence: 88%

Patient-centered care during the last year of life: adaptation and validation of the German PACIC short form for bereaved persons as proxies (PACIC-S9-proxy)

Vennedey¹,

Dust²,

Schippel³

et al. 2020

BMC Palliat Care

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Background Providing patient-centered care (PCC) during the last year of life (LYOL) can be challenging due to the complexity of the patients’ medical, social and psychological needs, especially in case of chronic illnesses. Assessing PCC can be helpful in identifying areas for improvements. Since not all patients can be surveyed, a questionnaire for proxy informants was developed in order to retrospectively assess patient-centeredness in care during the whole LYOL. This study aimed to evaluate the feasibility and validity of an adapted version of the German Patient Assessment of Chronic Illness Care (PACIC) for surveying bereaved persons in order to assess PCC during the decedents’ LYOL. Methods The German PACIC short form (11 items) was adapted to a nine-item version for surveying bereaved persons on the decedent’s LYOL (PACIC-S9-Proxy). Items were rated on a five-point Likert scale. The PACIC adaptation and validation was part of a cross-sectional survey in the region of Cologne. Participants were recruited through self-selection and active recruitment by practice partners. Sociodemographic characteristics and missing data were analyzed using descriptive statistics. An exploratory factor analysis was conducted in order to assess the structure of the PACIC-S9-Proxy. Internal consistency was estimated using Cronbach’s alpha. Results Of the 351 informants who participated in the survey, 230 (65.52%) considered their decedent to have suffered from chronic illness prior to death. 193 of these informants (83.91%) completed ≥5 items of the questionnaire and were included in the analysis. The least answered item was item (74.09%) was item 4 (encouragement to group & classes for coping). The most frequently answered item (96.89%) was item 2 (satisfaction with care organization). Informants rated the item” Given a copy of their treatment plan” highest (mean 3.96), whereas “encouragement to get to a specific group or class to cope with the condition” (mean 1.74) was rated lowest. Cronbach’s alpha was 0.84. A unidimensional structure of the questionnaire was found (Kaiser-Meyer-Olkin 0.86, Bartlett’s test for sphericity p < 0.001), with items’ factor loadings ranging from 0.46 to 0.82. Conclusions The nine-item questionnaire can be used as efficient tool for assessing PCC during the LYOL retrospectively and by proxies. Trial registration The study was registered in the German Clinical Trials Register (DRKS00011925) on 13 June 2017.

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“…Lilleheie et al. (2020) found that informal caregivers of vulnerable patients want healthcare providers to be more responsive to family needs and preferences by providing information and engaging them in the care processes. Future work to inform and educate caregiver/care recipient dyads about relevant weight management information (including how to find and nuances specific to SCI nutrition and physical activity needs) and the importance of communicating this information is warranted.…”

Section: Discussionmentioning

confidence: 99%

Informal caregivers’ self‐identified roles in facilitating health‐promoting behaviours for weight management in community‐dwelling care recipients living with spinal cord injury in the United States

LaVela

Pedersen

Ehrlich-Jones

et al. 2021

Health Social Care Comm

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Health providers often focus on secondary conditions and spend less time prioritising overweight/obesity care. Informal caregivers are well positioned to facilitate health-promoting behaviours of healthy eating and physical activity among community-dwelling care recipients with spinal cord injury (SCI) for prevention and management of overweight/obesity. Literature has typically focused on caregiver adjustment post-injury and burden related to their roles in secondary condition care. The novel objective of this study was to describe informal caregivers' perspectives of their roles in facilitating health-promoting weight management behaviours, healthy eating and physical activity, for care recipients with SCI. This was a qualitative study that used semi-structured interviews with informal caregivers for data collection in 2019. Braun & Clarke's established thematic phases were used for analysis.Participants included informal caregivers of individuals with SCI living in the community (n = 24). Caregivers identified eight themes to describe their role in facilitating weight management for care recipients. Themes included: (1) meal planning/shopping, (2) meal preparation/cooking, (3) using portion control, (4) serving/feeding, (5) helping the care recipient with physical activity and/or leisure activities, (6) mutually participating in weight management activities, (7) providing motivation and encouragement and ( 8) being an information liaison. In summary, informal caregivers have an intimate understanding of care recipients' needs and have insights on obstacles and enablers to health-promoting behaviours, making their involvement in facilitating weight management in individuals with SCI vital. Caregivers self-identified several significant roles for promoting weight management. This is especially valuable for conditions such as overweight/obesity for which prevention and treatment involve health-promoting behaviours that need consistent attention in the community setting. It is important to ensure that informal caregivers and care recipients have the information required in order to facilitate healthy eating and physical activity in persons with SCI and have opportunities for mutual dyadic participation when both partners are interested. e1586 | LAVELA Et AL.

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Informal caregivers’ views on the quality of healthcare services provided to older patients aged 80 or more in the hospital and 30 days after discharge

Cited by 4 publications

References 41 publications

Family caregivers’ perspectives on the acceptability of four interventions proposed for rural transitional care: A multi-method study

Family caregivers’ perspectives on the acceptability of four interventions proposed for rural transitional care: A multi-method study

Patient-centered care during the last year of life: adaptation and validation of the German PACIC short form for bereaved persons as proxies (PACIC-S9-proxy)

Informal caregivers’ self‐identified roles in facilitating health‐promoting behaviours for weight management in community‐dwelling care recipients living with spinal cord injury in the United States

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